Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,793 members • 6,795 posts

All posts for January 2014

Hi my husband is on dialysis after suffering from chronic renal failure in 2011. In2005 he had a kidney biopsy and as a day patient was

Treated for vasculitis then had a one off follow up appointment in 2005 saying he had been treated and needed no further treatment. He then had a heart attack...

Treated for vasculitis then had a one off follow up appointment in 2005 saying h...

Ironingqueen20

•10 years ago

14 Replies

Anyone have any advice for natural, alternative treatments for Churg Strauss?

Newly diagnosed..Cant face a life on steroid and the awful side effects! Would really appreciate any experiences. Many thanks

Newly diagnosed..Cant face a life on steroid and the awful side effects! Would r...

Tambo7

•10 years ago

18 Replies

Causation of vasculitis.

What research is being done as to the causation of vasculitis in its various forms. Possible outside agents such as viruses triggering an auto-immune response...

What research is being done as to the causation of vasculitis in its various for...

Albasain

•10 years ago

20 Replies

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short term memory

does anybody who takes cellcept and prednisolone find they get short term memory problems.

does anybody who takes cellcept and prednisolone find they get short term memory...

molliecatone

•10 years ago

11 Replies

NHS Greenwich CCG, Tweeted this today on Twitter.

This was posted on Twitter today by Greenwich CCG. I thought I would share the tweet just in case anyone wanted to go along. @NHSGreenwichCCG: 2moro 3-6pm We...

This was posted on Twitter today by Greenwich CCG. I thought I would share the t...

Suzym2u

Moderator•10 years ago

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New research reveals more about Giant Cell Arteritis

New research has been revealed about how Giant Cell Arteritis (GCA) may be caused by a certain group of white blood cells called "neutrophils". GCA (also known...

New research has been revealed about how Giant Cell Arteritis (GCA) may be cause...

Suzym2u

Moderator•10 years ago

16 Replies

Drugs refused funding...

Six years after diagnosis of Takayasu's Arteritis I seem to have gone through all the immunosuppressants (aza, mycophenolate, cyclo, MTX) all of which I've...

Six years after diagnosis of Takayasu's Arteritis I seem to have gone through al...

JElsom

•10 years ago

4 Replies

My mum has just been told she has vasculitis and it's definitely affected her brain! She also has temple arthritis and has been on steroids

For over a year and eAch time they try to reduce it the inflammation gets worse in her head? She is now having more tests done and is on another medication...

For over a year and eAch time they try to reduce it the inflammation gets worse ...

Kelly1987

•10 years ago

7 Replies

West Country Vasculitis Support Group Lunch

Just a quick reminder: if anyone is planning on coming to next Saturday's Vasculitis Support Group lunch and hasn't let me know yet I'd be grateful if you...

Just a quick reminder: if anyone is planning on coming to next Saturday's Vascu...

DevonLottie

•10 years ago

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Bone marrow transplant

Hi All I know its a long shot but have any of you ever heard of someone having a bone marrow transplant for severe vasculitis. I know there has been for WG and...

Hi All I know its a long shot but have any of you ever heard of someone having a...

Sarahjh2004

•10 years ago

2 Replies

Can anyone help with overseas holiday insurance company for my husband who has suffered cerebral vasculitis please

Simmonds797

•10 years ago

7 Replies

Back to work meeting with HR

Had my meeting today and though I was dreading it everything went well. It was all about helping me to return to work and any help time off for appointments...

Had my meeting today and though I was dreading it everything went well. It was a...

molliecatone

•10 years ago

2 Replies

Sharing Your Patient Record Can Help Researchers Save Lives The NHS is creating a new system to share information.

Everybody in England and Scotland can choose how information from their patient record is shared in this new system....

Everybody in England and Scotland can choose how information from their patient ...

Suzym2u

Moderator•10 years ago

2 Replies

Does Taking Multiple Medicines Increase Risk of Being Admitted to Hospital? Yes and No

This came up this morning so thought I would share it....

Suzym2u

Moderator•10 years ago

Be the first to reply

Hey guys worried question about sores in mouth and raised rheumatiod factor,

Hey everyone, just wondering about mouth sores and vasculitis. My mom got her results back today from her biopsy, and the biopsy showed vasculitis. They are...

Hey everyone, just wondering about mouth sores and vasculitis. My mom got her r...

pepsi4814

•10 years ago

16 Replies

Yoga 'can ease pain of arthritis': Studies finds exercise can provide physical relief and reduced depression.

This was from Twitter this morning. Thought I would share it for those who maybe interested, It reminded me a little of The Tai Chi we did at the East Midlands...

This was from Twitter this morning. Thought I would share it for those who maybe...

Suzym2u

Moderator•10 years ago

3 Replies

update after visit to renal

the meds I was on for my BP have been changed to a single tablet so maybe I will rattle a little less!!! I am waiting to have an MRI scan as the scan I had...

the meds I was on for my BP have been changed to a single tablet so maybe I will...

molliecatone

•10 years ago

3 Replies

Benefits and Work January 2014 Newsletter

PIP AND DLA NEWS This month (from 13th January) PIP is due to be introduced in the DG, ML, EH and TD postcode areas, so people whose DLA is due to end on or...

PIP AND DLA NEWS This month (from 13th January) PIP is due to be introduced in t...

Suzym2u

Moderator•10 years ago

1 Reply

So glad to see the end of December - I've learnt a lot, but it's been no fun.

Just lost most of the last few weeks, because of UTI, shingles, then more UTI, then two sessions in hospital. All fairly trivial in comparison to some of the...

Just lost most of the last few weeks, because of UTI, shingles, then more UTI, t...

BronteM

•10 years ago

8 Replies

Juan Torre had a successful career as a newspaper photographer when at the age of 30 he was diagnosed with Behcet's, a type of Vasculitis

http://www.bbc.co.uk/news/magazine-25668809?SThisFB

Suzym2u

Moderator•10 years ago

1 Reply

Anyone got dysplastic kidneys with Alagille Syndrome?

Hi, My daughter has Alagille syndrome and we've been told her major problem is with her Kidneys. While they are working well now (she's nearly 2 years of age)...

Hi, My daughter has Alagille syndrome and we've been told her major problem is w...

lazz2

•10 years ago

2 Replies

Has anybody had an allergy to injected steroids?

I have recently had severe reactions to injected steroids. I am still taking oral steroids without any issues but then I am currently taking a very low dose....

I have recently had severe reactions to injected steroids. I am still taking or...

SusieMC

•10 years ago

7 Replies

Case Study for Rituximab needed. "URGENTLY"

If your experience of being treated with Rituximab has been really good and you would like to share your experience. We would like to hear from you Urgently...

If your experience of being treated with Rituximab has been really good and you ...

Suzym2u

Moderator•10 years ago

4 Replies

Have been unwell for past 18 months with fatigue, weight loss, anemia, joint and muscle pain. For the past 8 months I have had headaches,

blurry vision, jaw/nose/facial pain. Was on high dose pred, now on 10mg pred and just increased MTX to 25mg. I don't have a diagnosis other than " something...

blurry vision, jaw/nose/facial pain. Was on high dose pred, now on 10mg pred and...

Hidden

•10 years ago

21 Replies

Back Ache?

Hi All, I have MPA which is believed to be rumbling along. However in the last few weeks I have had really sore lower back ache, that also appears down the...

Hi All, I have MPA which is believed to be rumbling along. However in the last f...

JaneLE

Administrator•10 years ago

4 Replies

New, in depth information concerning Corticosteroids (steroids) available on the Vasculitis UK website

http://www.vasculitis.org.uk/news/cortisone-info-jan-2014

John_Mills

Volunteer•10 years ago

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Prof Little and the Irish Times

I don't think this has been posted before - it has only just been brought to my attention. The Vasculitis Registry is mentioned and, of course, this is the...

I don't think this has been posted before - it has only just been brought to m...

PatriciaAnn

•10 years ago

5 Replies

another hospital visit but no further forward

visit to the chest clinic today, usual time going though health issues and medication that I am on followed by the examination, I am able to recite all my meds...

visit to the chest clinic today, usual time going though health issues and medic...

molliecatone

•10 years ago

1 Reply

Has anybody, who is ANCA negative, tried azathioprine? How did you fare after taking this drug?

cricket0710

•10 years ago

9 Replies

Long Term Physical Health Conditions, Your Emotional Health and Well Being

This was taken from Twitter this morning tweeted by Manchester NHS....

Suzym2u

Moderator•10 years ago

4 Replies

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for January 2014

Hi my husband is on dialysis after suffering from chronic renal failure in 2011. In2005 he had a kidney biopsy and as a day patient was

Anyone have any advice for natural, alternative treatments for Churg Strauss?

Causation of vasculitis.

short term memory

NHS Greenwich CCG, Tweeted this today on Twitter.

New research reveals more about Giant Cell Arteritis

Drugs refused funding...

My mum has just been told she has vasculitis and it's definitely affected her brain! She also has temple arthritis and has been on steroids

West Country Vasculitis Support Group Lunch

Bone marrow transplant

Can anyone help with overseas holiday insurance company for my husband who has suffered cerebral vasculitis please

Back to work meeting with HR

Sharing Your Patient Record Can Help Researchers Save Lives The NHS is creating a new system to share information.

Does Taking Multiple Medicines Increase Risk of Being Admitted to Hospital? Yes and No

Hey guys worried question about sores in mouth and raised rheumatiod factor,

Yoga 'can ease pain of arthritis': Studies finds exercise can provide physical relief and reduced depression.

update after visit to renal

Benefits and Work January 2014 Newsletter

So glad to see the end of December - I've learnt a lot, but it's been no fun.

Juan Torre had a successful career as a newspaper photographer when at the age of 30 he was diagnosed with Behcet's, a type of Vasculitis

Anyone got dysplastic kidneys with Alagille Syndrome?

Has anybody had an allergy to injected steroids?

Case Study for Rituximab needed. "URGENTLY"

Have been unwell for past 18 months with fatigue, weight loss, anemia, joint and muscle pain. For the past 8 months I have had headaches,

Back Ache?

New, in depth information concerning Corticosteroids (steroids) available on the Vasculitis UK website

Prof Little and the Irish Times

another hospital visit but no further forward

Has anybody, who is ANCA negative, tried azathioprine? How did you fare after taking this drug?

Long Term Physical Health Conditions, Your Emotional Health and Well Being

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