Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,815 members • 6,819 posts

All posts for January 2014

How long can a vasculitis skin rash take to go away?

My mom is suffering from something, doctors don't know what it is yet. Still doing lots of tests. Doctors think it is vasculitis. She has a skin rash started...

My mom is suffering from something, doctors don't know what it is yet. Still doi...

pepsi4814

•10 years ago

9 Replies

What to expect??

Hi, may ramble on a bit but please bear with me. my mum was diagnosed with wegeners vasculitis in November 2013 following a spell of what the doctors thought...

Hi, may ramble on a bit but please bear with me. my mum was diagnosed with wegen...

nadz84

•10 years ago

7 Replies

Please do not forget it is Rare Disease Day February 28th 2014

http://www.vasculitis.org.uk/news/rare-disease-day-2014

Suzym2u

Moderator•10 years ago

5 Replies

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Returning to work assessment

I received a letter asking me to go to an organization which deals with the company health stuff (I remember filling out a form.from.them when I first...

I received a letter asking me to go to an organization which deals with the comp...

rrahman

•10 years ago

2 Replies

GPA and cat allergies/sinus issues?

I've lived with our pet cat for over 10 years and I've never had an issue not even whenI was first diagnosed with it in Feb 2013.however, recently my sinuses...

I've lived with our pet cat for over 10 years and I've never had an issue not ev...

rrahman

•10 years ago

8 Replies

Long term medication?

I was diagnosed with Takasayu's Arteritis six years ago today. I have been on a number of different immunosuppressants over the years and either I haven't been...

I was diagnosed with Takasayu's Arteritis six years ago today. I have been on a ...

JElsom

•10 years ago

4 Replies

Azathioprine

Hi I have WG been to see consultant she seems pleased with my progress all blood are fine. Had 6th cycle of cyclo 4 more to go remains on 10mg prednisolone. I...

Hi I have WG been to see consultant she seems pleased with my progress all blood...

DBH1969

•10 years ago

10 Replies

I'm feeling low. I have GPA which has affected my kidneys, heart, hearing, sinuses also have vasculitis in both eyes.

I have now been told I have cataracts from long term steroid use. I already feel as though I live in a dark cave as I have blind spots in my eyes. What does...

I have now been told I have cataracts from long term steroid use. I already feel...

valwood

•10 years ago

14 Replies

What pain and symptoms can I expect from Cutaeneous Vasculitis please?

my doctor suspects that is what I have and has advised me to go to aerobics classes, swimming and cycling for my joint pains. I can hardly walk somedays as...

my doctor suspects that is what I have and has advised me to go to aerobics clas...

Badgerswood23

•10 years ago

5 Replies

Swindon Advertiser today :- FATHER and daughter duo, Clarry Bean and Abby Mansi are launching their new professional vocal duo act.

FATHER and daughter duo, Clarry Bean and Abby Mansi are launching their new professional vocal duo act in a fund-raising concert for Vasculitis UK at the...

FATHER and daughter duo, Clarry Bean and Abby Mansi are launching their new prof...

Suzym2u

Moderator•10 years ago

2 Replies

A&E: Some patients visit units 50 times a year

Thought I would share this, just in case anyone would like to complete the form at the bottom of the article. http://www.bbc.co.uk/news/health-25628009

Thought I would share this, just in case anyone would like to complete the form ...

Suzym2u

Moderator•10 years ago

Be the first to reply

Is anyone interested in starting a support group in Wales?

There is a thriving Vasculitis Support Group in South Wales. Jenny and Vasculitis UK would be interested to hear from anyone who would like to start a group...

There is a thriving Vasculitis Support Group in South Wales. Jenny and Vasculit...

Suzym2u

Moderator•10 years ago

Be the first to reply

Ongoing Treatment

Popped in to see my rheumy today, who is happy that the current cyclophosphamide infusion regime has me under control. Bloods good with symptoms now only...

Popped in to see my rheumy today, who is happy that the current cyclophosphamide...

Wellsie

•10 years ago

1 Reply

David Cameron's hairdresser awarded MBE

Can you believe this? I don't usually comment on things political but when I see how hard people work unpaid for charities throughout the UK, especially the...

Can you believe this? I don't usually comment on things political but when I see...

Suzym2u

Moderator•10 years ago

5 Replies

Very thirsty with an unpleasant taste in my mouth?

The last five weeks have been tricky....shingles and a series of UTIs to keep Christmas alongside my TAK. I finished the antibiotics (ciproflaxacon) on Friday,...

The last five weeks have been tricky....shingles and a series of UTIs to keep Ch...

BronteM

•11 years ago

18 Replies

Run for Vasculitis UK in the British London 10K July 2014.

Vasculitis UK have 12 remaining places available if you would like to enter this event or you know someone who would like to raise awareness of Vasculitis and...

Vasculitis UK have 12 remaining places available if you would like to enter this...

Suzym2u

Moderator•11 years ago

Be the first to reply

Complaining about an NHS trust - a result

Some of you may remember that I asked several months ago if anyone had experience of making a complaint. I don't recall getting much feedback. However, after...

Some of you may remember that I asked several months ago if anyone had experienc...

suffolkgirl

•11 years ago

6 Replies

has anyone had bad side effects with mycophenelate

at first it seemd like a miracle,then the side effects crept in,like a repeat of wegeners symptoms,by November I halved the dose,felt better for a while,in...

at first it seemd like a miracle,then the side effects crept in,like a repeat of...

gsmith

•11 years ago

6 Replies

Share in Scotland and help save lives

Improve future healthcare in Scotland Research can lead to better treatments and cures for you and your family Just sharing your details is enough to help...

Improve future healthcare in Scotland Research can lead to better treatments and...

Suzym2u

Moderator•11 years ago

Be the first to reply

If anyone would like one to one advice or just someone to chat too.

Please ring the Vasculitis UK helpline http://www.vasculitis.org.uk/helpline, All the trustees of Vasculitis UK have Vasculitis themselves and all are...

Please ring the Vasculitis UK helpline http://www.vasculitis.org.uk/helpline, A...

Suzym2u

Moderator•11 years ago

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I am waiting for chest and renal appointments at the moment BP is settling slowly down to 157 over 95 the Gp has signed me off for two weeks

I haven't actually seen my GP he did the sick note over the phone, should my GP be checking my blood pressure as well? I don't have an appointment with the...

I haven't actually seen my GP he did the sick note over the phone, should my GP ...

molliecatone

•11 years ago

3 Replies

West Country vasculitis support group lunch

The next lunch will be held at the Devon hotel, Matford, Exeter on Saturday 25 January from 12.00 noon. If you plan to attend can you let me know so I can give...

The next lunch will be held at the Devon hotel, Matford, Exeter on Saturday 25 J...

DevonLottie

•11 years ago

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Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for January 2014

How long can a vasculitis skin rash take to go away?

What to expect??

Please do not forget it is Rare Disease Day February 28th 2014

Returning to work assessment

GPA and cat allergies/sinus issues?

Long term medication?

Azathioprine

I'm feeling low. I have GPA which has affected my kidneys, heart, hearing, sinuses also have vasculitis in both eyes.

What pain and symptoms can I expect from Cutaeneous Vasculitis please?

Swindon Advertiser today :- FATHER and daughter duo, Clarry Bean and Abby Mansi are launching their new professional vocal duo act.

A&E: Some patients visit units 50 times a year

Is anyone interested in starting a support group in Wales?

Ongoing Treatment

David Cameron's hairdresser awarded MBE

Very thirsty with an unpleasant taste in my mouth?

Run for Vasculitis UK in the British London 10K July 2014.

Complaining about an NHS trust - a result

has anyone had bad side effects with mycophenelate

Share in Scotland and help save lives

If anyone would like one to one advice or just someone to chat too.

I am waiting for chest and renal appointments at the moment BP is settling slowly down to 157 over 95 the Gp has signed me off for two weeks

West Country vasculitis support group lunch

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