Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,783 members • 6,757 posts

All posts for September 2013

cyst behind the knees

Has anyone ever dealt with cyst behind the knees on the back of your leg. Feels like a sock is constantly around this part of my leg.

Has anyone ever dealt with cyst behind the knees on the back of your leg. Feels ...

dskizs

•11 years ago

2 Replies

Could someone explain what is involved with kidney and Skin biopsy. also red spot update.

Well I saw the vasculitis team last week. The red small spots are vascular so I have to see a dermatologist who will do a biopsy on some. Anyone had this and...

Well I saw the vasculitis team last week. The red small spots are vascular so I ...

CathT

•11 years ago

7 Replies

Cycolphosamide experiences please?

I am currency on a course of infusions for lupus/vasculitis. I have so many questions, & would find it really helpful to hear about other peoples experiences....

I am currency on a course of infusions for lupus/vasculitis. I have so many ques...

roobarb

•11 years ago

39 Replies

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SE London/NW Kent Vasculitis Group Meeting - Informal pub lunch

Come and join Jacqui, Karen and friends at about 11.30am on Saturday 5th October for a friendly chat and an informal lunch at a local Dartford pub - The Stage...

Come and join Jacqui, Karen and friends at about 11.30am on Saturday 5th October...

JacquiM

Volunteer•11 years ago

2 Replies

Date for your Diary for the New Year, if you have Vasculitis and live in South Wales or are able to travel to Cardiff!

This will be an informal support group meeting lunch which is being organised by Jenny on behalf of Jackie who is standing down....

This will be an informal support group meeting lunch which is being organised b...

John_Mills

Volunteer•11 years ago

3 Replies

Scottish Medicines Consortium Approve Rituximab

Vasculitis UK was the only patient organisation that made a submission to the SMC supporting the application and we are very pleased that patients in Scotland...

Vasculitis UK was the only patient organisation that made a submission to the SM...

Suzym2u

Moderator•11 years ago

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A small survey regarding transforming services in South West Yorkshire if anyone is interested in taking part.

As South West Yorkshire NHS plan to transform services they want to know what you think about their themes....

As South West Yorkshire NHS plan to transform services they want to know what yo...

Suzym2u

Moderator•11 years ago

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Has anyone had spleen involvement with their Vasculitis?

Suzym2u

Moderator•11 years ago

6 Replies

How much is Immune System "suppressed" by Steroids &/or Immuno-suppressants?

What is the comparative degree of "suppression" of an immune system when treated by the following drugs at different dosages and combinations? 1)...

What is the comparative degree of "suppression" of an immune system when treated...

JontyW

•11 years ago

1 Reply

Organ donation: Presumed consent to start in December 2015 in Wales (BBC News)

http://www.bbc.co.uk/news/uk-wales-24032031#?utm_source=twitterfeed&utm_medium=twitter

http://www.bbc.co.uk/news/uk-wales-24032031#?utm_source=twitterfeed&utm_medium=t...

Suzym2u

Moderator•11 years ago

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Anyone have high red blood count And what could it mean

Juliew123

•11 years ago

2 Replies

More than a dozen charities and organisations, including Vasculitis UK are challenging the Welsh Assembly.

Thirteen charities and organisations including Vasculitis UK have signed an open letter pressing for vital medical funding in Wales for drugs which improve...

Thirteen charities and organisations including Vasculitis UK have signed an open...

Suzym2u

Moderator•11 years ago

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amourosis fugax is it a tia.?

Ive symptoms of gca ,Im on pred have been fo 3.5 mth high doses 35mg at mo.Ive slowed right down mentally I have to think hard about simple tasks and im...

Ive symptoms of gca ,Im on pred have been fo 3.5 mth high doses 35mg at mo.Ive s...

mickt

•11 years ago

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Azathioprine, and nausea

Hi have had ten pulses of cyclophosphamide and have now started on azathioprine building up to 150mgs daily. Alls good except really bad feeling of nausea and...

Hi have had ten pulses of cyclophosphamide and have now started on azathioprine ...

cambs13

•11 years ago

16 Replies

A response to your concerns about the new HealthUnlocked

Hi everyone, After the lengthy discussion yesterday around the new HealthUnlocked, I thought I'd step in to comment on some of the bigger concerns people have...

Hi everyone, After the lengthy discussion yesterday around the new HealthUnlock...

Hidden

•11 years ago

9 Replies

Kendall Aged 3 raises funds for Vasculitis UK

In less than four weeks it will be the Great Scottish Mini Run - 6th October 2013 Super Saturday will see Kendall running with other children aged 3 to 5....

In less than four weeks it will be the Great Scottish Mini Run - 6th October 201...

Suzym2u

Moderator•11 years ago

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All Ireland Vasculitis Conference October 2013

A two day conference - the All Ireland Conference - will be held on 12th/13th October at the Royal Marine Hotel, Dun Laoghaire. This was a tremendous success...

A two day conference - the All Ireland Conference - will be held on 12th/13th Oc...

Suzym2u

Moderator•11 years ago

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Osteoporosis

Hi have temporal arteritis along with SLE ,now seem to have osteoporosis ,tho bone density scan was good in march ,end of July ended up in hosp with crushed...

Hi have temporal arteritis along with SLE ,now seem to have osteoporosis ,tho bo...

Voutton

•11 years ago

6 Replies

In 2007 I had complete renal failure, they were kick started but a problem appeared on my left leg. First a huge blister around the ankle

area. This burst in hospital as I was just walking along. Then following that a huge scab appeared almost like a cricket pad. This has now been removed but it...

area. This burst in hospital as I was just walking along. Then following that a ...

hamlet

•11 years ago

6 Replies

this site

since it changed a couple of months ago ,it seems to have gone downhill rapidly not many replies to posts anymore,and very limited people on here IS ANYBODY...

since it changed a couple of months ago ,it seems to have gone downhill rapidly ...

quinnster

•11 years ago

56 Replies

Is anyone else taking part in the study to develop classification and diagnostic criteria for primary systemic vasculitis.

CathT

•11 years ago

11 Replies

Four fundraising events for Vasculitis UK this weekend. Please give them a cheer if they are in your area.

If you are in any of these areas this weekend please take a moment to cheer some of VUK's fundraisers on. Amy and Craig are in Bridgewater Dave is in Henley...

If you are in any of these areas this weekend please take a moment to cheer some...

Suzym2u

Moderator•11 years ago

3 Replies

Goodbye Steroids!!

Don't want to bore my friends, so thought I'd tell some people who will understand my happiness! I have managed to get off my steroids, it has taken 18 months...

Don't want to bore my friends, so thought I'd tell some people who will understa...

Willow4

•11 years ago

18 Replies

Getting on my bloody nerves (literally)

Went to see the physio today; was told I have very weak legs and hips, and was shown today practically how bad it is getting. No more denial, it's not good....

Went to see the physio today; was told I have very weak legs and hips, and was s...

Wellsie

•11 years ago

2 Replies

Young Vasculitis UK closed group on face book

There has been a growing demand for a support group for the younger generation of Vasculitis sufferers so that they can talk about their experiences with...

There has been a growing demand for a support group for the younger generation o...

Suzym2u

Moderator•11 years ago

14 Replies

I have had some tough health battles in my life but this CSS thing is muurder , Any tips on coping with the breathing and pain

I have had a spine rebuilt from a head on , chrohns disease but since the breathing Issue started 1 month ago on top of the kidneys 3 years and feet ,it's...

I have had a spine rebuilt from a head on , chrohns disease but since the breat...

Skipper55

•11 years ago

14 Replies

Can anyone let me know when the North-west meeting is to be held - I presume it is at the Tickled Trout in Preston Many thanks

jeang

•11 years ago

2 Replies

Vasculitis Clinical Trials

Interesting to see how many trials involving Vasculitis patients are currently recruiting....

Interesting to see how many trials involving Vasculitis patients are currently r...

RichardE

Volunteer•11 years ago

4 Replies

Is there anyone out there in South Wales or South West England with Churg Strauss Syndrome ? If so I would love to hear from them.

bumble05

•11 years ago

7 Replies

Call for rare conditions drugs fund

Interesting article from the BBC this morning on Twitter regarding Rare Diseases in the UK. http://www.bbc.co.uk/news/health-23930267

Interesting article from the BBC this morning on Twitter regarding Rare Diseases...

John_Mills

Volunteer•11 years ago

3 Replies

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for September 2013

cyst behind the knees

Could someone explain what is involved with kidney and Skin biopsy. also red spot update.

Cycolphosamide experiences please?

SE London/NW Kent Vasculitis Group Meeting - Informal pub lunch

Date for your Diary for the New Year, if you have Vasculitis and live in South Wales or are able to travel to Cardiff!

Scottish Medicines Consortium Approve Rituximab

A small survey regarding transforming services in South West Yorkshire if anyone is interested in taking part.

Has anyone had spleen involvement with their Vasculitis?

How much is Immune System "suppressed" by Steroids &/or Immuno-suppressants?

Organ donation: Presumed consent to start in December 2015 in Wales (BBC News)

Anyone have high red blood count And what could it mean

More than a dozen charities and organisations, including Vasculitis UK are challenging the Welsh Assembly.

amourosis fugax is it a tia.?

Azathioprine, and nausea

A response to your concerns about the new HealthUnlocked

Kendall Aged 3 raises funds for Vasculitis UK

All Ireland Vasculitis Conference October 2013

Osteoporosis

In 2007 I had complete renal failure, they were kick started but a problem appeared on my left leg. First a huge blister around the ankle

this site

Is anyone else taking part in the study to develop classification and diagnostic criteria for primary systemic vasculitis.

Four fundraising events for Vasculitis UK this weekend. Please give them a cheer if they are in your area.

Goodbye Steroids!!

Getting on my bloody nerves (literally)

Young Vasculitis UK closed group on face book

I have had some tough health battles in my life but this CSS thing is muurder , Any tips on coping with the breathing and pain

Can anyone let me know when the North-west meeting is to be held - I presume it is at the Tickled Trout in Preston Many thanks

Vasculitis Clinical Trials

Is there anyone out there in South Wales or South West England with Churg Strauss Syndrome ? If so I would love to hear from them.

Call for rare conditions drugs fund

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