Is anyone else taking part in the study to develop classification and diagnostic criteria for primary systemic vasculitis.

[CathT]

[hamble99b Volunteer]

is there an explanatory link?

[CathT in reply to hamble99b]

Sorry I don't know, I was approach at my hospital appointment yesterday. It is being run in the UK by university of Oxford Dr Raashid Luqmani. Just checked this website ndorms.ox.ac.uk Looked under trials there are a few there.

[Suzym2u Moderator Vasculitis UK]

Is this the one you are taking part in Cath? ndorms.ox.ac.uk/clinicaltri...

[CathT in reply to Suzym2u]

The second one listed, development of disease assessment in systemic vasculitis.

[John_Mills Volunteer]

I think this link might explain better

research.ndorms.ox.ac.uk/pu...

[joylucy]

Yes, I am a participant in the DCVAS and PEXIVAS studies, and live in Australia

[CathT in reply to joylucy]

Hi, if you don't mind me asking what type of vasculitis do you have?

[joylucy in reply to CathT]

Hi CathT, I have microscopic polyangiitis (MPA), diagnosed in July 2011

[Suzym2u Moderator Vasculitis UK in reply to joylucy]

If you don"t mind me asking Joylucy where are you seen in Australia?

[Chris-Bromsgrove]

I also have MPA (diagnosed in 2012) and I'm a participant in DCVAS and PEXIVAS clinical trials. Quite interesting that participants in these trials are spread far and wide.

[CathT]

I was told I had unspecified vasculitis last year but now they say they are not sure as bloodwork also shows lupus! As my symptoms are all the same as vasculitis they has me to join the study.