Went to see the physio today; was told I have very weak legs and hips, and was shown today practically how bad it is getting. No more denial, it's not good.
Given that it was only 10 weeks or so ago that I walked 31 miles in a day, is it possible that such rapid weakening is being caused by axonal motor damage to muscles? I had my last NVC and EMG tests 8 weeks ago that showed the fast onset of sensory nerve loss, but limited motor damage. I am familiar with joint pain being part of vasculitis, but wondered if others had experienced significant weakening as part of disease flare, and if so, did it right itself quickly? Next Tuesday is my third chemo of the current cyclophosphamide season, so I was hoping to have seen some improvement by now. But I feel worse and I am now getting very worried about losing my mobililty...