"mystery diagnosis" HSP

[hamble99b]

an episode of "Mystery Diagnosis" entitled "rash decision" was on last night featured hsp vasculitis.

sandra.

[John_Mills Volunteer]

Which programme Sandra?

Susan

[hsp1 in reply to John_Mills]

What did they say about it please? It's so annoying so many different diagnosis. There are several types of rare auto immune. Three are very similar

[hamble99b Volunteer]

on sky it's home & health channel 240.

[John_Mills Volunteer]

Thank you

[02061949]

Pardon my ignorance folks, but what does HSP stand for? We get no news here at all and we don't have sky tv at our house.

[hamble99b Volunteer in reply to 02061949]

Henoch Schönlein Purpura

What is Henoch-Schönlein Purpura?

Henoch-Schönlein Purpura (HSP) is a systemic vasculitis which can affect the skin, joints, bowel and kidneys. If it affects the kidneys it is usually called Henoch-Schönlein Nephritis or Vasculitic IgA Nephropathy.

HSP mostly affects children, but can affect adults.

[hsp1 in reply to 02061949]

There is another organization that is a charity that advertises themselves as hsp. It is something totally different and includes the word parapalactic something or other, they are based down south. I wrote to them but didnt have any reply they advertise on one of the fundraising sites and have got alot of money coming in. I think somepeople might get confused. ours is definately classified as a auto immune rare blood disease

[02061949]

Another question from an Aussie. My daughter has had systemic Vasculitis for 5 years. There has been no "remission" just a steady increase of symptoms. Is that usual?

[hamble99b Volunteer in reply to 02061949]

can I suggest you post this as a question so that more will see it and answer.

if you go to the top right side of the home page, you will see the vascuitis logo

click on the website link.

on the top banner, click on the route map.

you can download it.

this is a marvellous source of information that may help you.

feel free to ask more questions or share.

regards,

sadra.

[hamble99b Volunteer in reply to hamble99b]

oops! spelt my own name wrong

sandra.