Hi i am Richard aged 39 living in Worthing. After a positive C-ANCA and PR3 blood test i was referred to Sussex Kidney Unit, my symptoms over recent months have been in decline. I suffer from pain and dull aches in my right kidney, constantly fatigued , sinus problems & alot of joint pain especially in shoulders, elbows, wrists and fingers.
My consultant has informed me it is type WG and i am now taking 60mg Prednisolone, 200mg Azathioprine, 4ml Nystatin and 40mg Omeprazole. I also take CoCodamol for pain relief. My consultant has also referred me to a reumotologist and planned chest x-rays.
I am feeling quite worried about what the future holds and confused as to what will happen, my Dr says it will be 18 months on medications and to expect side effects, it certainly feels frightening reducing the immune system as to how to fight infections etc. I am currently unable to work and feel my employers are not understanding the diagnosis or effect on my health. I would be very grateful for any advice or help anyone might be kind enough to give me relating to what is happening to me and where im heading!