Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,783 members • 6,757 posts

All posts for January 2013

My employer won't recognise churg-strauss as disability under Equality Act and put me on disciplinary because of absences. Any suggestions?

sdevereux

•11 years ago

7 Replies

What is your Rare Disease Experience?

http://www.vasculitis.org.uk/news/rare-disease-experience (Genetic Alliance and Rare Diseases UK)

http://www.vasculitis.org.uk/news/rare-disease-experience (Genetic Alliance and ...

John_Mills

Volunteer•11 years ago

1 Reply

What is your rare disease experience? Please complete this survey it is important. thank you...

http://www.geneticalliance.org.uk/latest-news.htm

John_Mills

Volunteer•11 years ago

4 Replies

Want to take advantage of all our features? Just log in!

Does anyone suffer from Lead Like Legs? Sometimes my legs feel so heavy it is difficult to walk about.

I have CNSV and also have degeneration in my lower back plus sciatica in my left leg but it is both legs that feel so heavy.

I have CNSV and also have degeneration in my lower back plus sciatica in my left...

LMB2

•11 years ago

8 Replies

'This brutal new system': a GP's take on Atos and work capability assessments

http://www.guardian.co.uk/commentisfree/2013/jan/04/gp-atos-work-capability-assessment

http://www.guardian.co.uk/commentisfree/2013/jan/04/gp-atos-work-capability-asse...

John_Mills

Volunteer•11 years ago

3 Replies

Need Help for a 19 year old girl

I have a friend who lives in Poland she is 19 years old at this moment she is constantly in and out of hospital. the doctors have given up on treating her. The...

I have a friend who lives in Poland she is 19 years old at this moment she is co...

kate_halas

•11 years ago

7 Replies

Does your specialist check your emotional and mental health?

I have been reading about the evidence that stress is linked to disease flares, as well as initial disease onset, in all auto immune diseases. I think I can...

I have been reading about the evidence that stress is linked to disease flares, ...

Ayla

Volunteer•11 years ago

7 Replies

This type of Vasculitis is exremely rare in Children... Article in the Northern Echo Newcastle...

Chelsea Rowley, 16, was struck down by vasculitis of the central nervous system - swollen blood vessels in the brain - in March 2011....

Chelsea Rowley, 16, was struck down by vasculitis of the central nervous system ...

John_Mills

Volunteer•11 years ago

1 Reply

Council Tax

Hi everyone, I am looking into moving out of my Mums into my first rented house (yipppeeeee, a place to call my own). I went to citizens advice and although I...

Hi everyone, I am looking into moving out of my Mums into my first rented house ...

Lucylucciano

•11 years ago

6 Replies

Applying for Benefits, Assessments and Appeals...

The telephone has been a little bit hot today regarding benefits, assessments and appeals.. Please Please make sure if you send any paper work off to ATOS...

The telephone has been a little bit hot today regarding benefits, assessments an...

John_Mills

Volunteer•11 years ago

6 Replies

Fundraising Ball in York in March supporting "Vasculitis UK" and "York Against Cancer"

Amelia Crossan is organising a Spring Ball at the recently refurbished DeGrey Rooms in York. She will be raising funds for two charities with half of the...

Amelia Crossan is organising a Spring Ball at the recently refurbished DeGrey Ro...

John_Mills

Volunteer•11 years ago

Be the first to reply

The Daily Mail today.... Overweight claimants should have their benefits cut if they do not exercise enough, councils declared yesterday

http://www.dailymail.co.uk/news/article-2256399/Fat-benefits-claimants-told-to-gym-face-having-handouts-taken-away-local-councils.html I wonder if they have...

http://www.dailymail.co.uk/news/article-2256399/Fat-benefits-claimants-told-to-g...

John_Mills

Volunteer•11 years ago

4 Replies

Hello I recently suffered a bout of Vasculitis and have been left with scars on my legs.

Anyone have any advice on how to reduce the scars? Or any make-up that will cover them while they subside?

Anyone have any advice on how to reduce the scars? Or any make-up that will cove...

Lucia2580

•11 years ago

5 Replies

NEW Vasculitis Support Group in the North East

If anyone is interested in joining or supporting the new Vasculitis Support Group in the North East of England please will you leave a comment below or private...

If anyone is interested in joining or supporting the new Vasculitis Support Grou...

John_Mills

Volunteer•11 years ago

14 Replies

If anyone is interested in joining this I thought I would share it KEEP Disability living allowance say NO to reforms

http://www.causes.com/causes/582492-keep-disability-living-allowance-say-no-to-reforms/actions/1721261?causes_ref=email&reposter=567050&template=activity_mailer

http://www.causes.com/causes/582492-keep-disability-living-allowance-say-no-to-r...

John_Mills

Volunteer•11 years ago

Be the first to reply

What is the Plan for Today?

Feeling a little guilty because you are thinking about sitting down in front of the TV and watch the first Celebrity Big Brother 2013. Well do the Groove Body...

Feeling a little guilty because you are thinking about sitting down in front of ...

Jann

•11 years ago

3 Replies

Does anyone have or has had multiple cysts in various organs?

I have cysts in my kidney, pancreas and liver. I think they are mainly simple cysts but the fact that there are a number of them bother me. It is common to...

I have cysts in my kidney, pancreas and liver. I think they are mainly simple c...

SusieMC

•11 years ago

7 Replies

Evaluation of Rituximab March 2013

The aim of the evidence is to help with the decision making process regarding whether Rituximab should be licensed by NICE for use in the treatment of...

The aim of the evidence is to help with the decision making process regarding wh...

John_Mills

Volunteer•11 years ago

19 Replies

Do you take aspirin and way

tamidi

•11 years ago

14 Replies

DNA Research

if there are two members in the family with ANCA Associated Vasculitis OR if you were diagnosed with any type of Vasculitis before you were 18 please private...

if there are two members in the family with ANCA Associated Vasculitis OR if you...

John_Mills

Volunteer•11 years ago

Be the first to reply

Travel insurance

I'm normally quite a relaxed person but want to advise people of the hassle I'm having trying to get a really straight forward claim paid on my travel...

I'm normally quite a relaxed person but want to advise people of the hassle I'm ...

annie330

•11 years ago

5 Replies

Problems with my nose/nasal septum. I've HUV.

Can i ask if anyone else has problems with their nose. Inside I always have cuts or coldsores and now it seems to be bleeding from the sides of my nasal...

Can i ask if anyone else has problems with their nose. Inside I always have cuts...

roisin

•11 years ago

8 Replies

Has anyone been diagnosed with a carcinoma of the bladder probably due to long term use of oral Cyclophosphamide?

John_Mills

Volunteer•11 years ago

2 Replies

Interesting Article in the Guardian today "Welfare War"

Maybe the government need to seperate the Chronically ill and disabled people from people who abuse the system....

Maybe the government need to seperate the Chronically ill and disabled people fr...

John_Mills

Volunteer•11 years ago

1 Reply

2013 is here!

just want to wish everyone all the best for the coming year! love, sandra.

hamble99b

Volunteer•11 years ago

3 Replies

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for January 2013

My employer won't recognise churg-strauss as disability under Equality Act and put me on disciplinary because of absences. Any suggestions?

What is your Rare Disease Experience?

What is your rare disease experience? Please complete this survey it is important. thank you...

Does anyone suffer from Lead Like Legs? Sometimes my legs feel so heavy it is difficult to walk about.

'This brutal new system': a GP's take on Atos and work capability assessments

Need Help for a 19 year old girl

Does your specialist check your emotional and mental health?

This type of Vasculitis is exremely rare in Children... Article in the Northern Echo Newcastle...

Council Tax

Applying for Benefits, Assessments and Appeals...

Fundraising Ball in York in March supporting "Vasculitis UK" and "York Against Cancer"

The Daily Mail today.... Overweight claimants should have their benefits cut if they do not exercise enough, councils declared yesterday

Hello I recently suffered a bout of Vasculitis and have been left with scars on my legs.

NEW Vasculitis Support Group in the North East

If anyone is interested in joining this I thought I would share it KEEP Disability living allowance say NO to reforms

What is the Plan for Today?

Does anyone have or has had multiple cysts in various organs?

Evaluation of Rituximab March 2013

Do you take aspirin and way

DNA Research

Travel insurance

Problems with my nose/nasal septum. I've HUV.

Has anyone been diagnosed with a carcinoma of the bladder probably due to long term use of oral Cyclophosphamide?

Interesting Article in the Guardian today "Welfare War"

2013 is here!

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