I have a friend who lives in Poland she is 19 years old at this moment she is constantly in and out of hospital. the doctors have given up on treating her. The confirmed illness is autoimmune Systemic Vasculitis. We are trying to find a doctor here in uk who maybe could have a look at her case and see if there is anything else we could do for her. At this moment she is on constant dialysis minimum 3 times a week, she has got problems with eyes ,lungs (coughing blood), for some reason which the polish doctors cant explain her skin is dies her clothes in blue colour if she takes bath the water is blue. At this moment she's been treated to Plasmapheresis which is helping only for a week. if anyone could give me a contact to someone who could be interested in looking into this case please let me know.
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