What is your rare disease experience? Please... - Vasculitis UK

Vasculitis UK

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What is your rare disease experience? Please complete this survey it is important. thank you...

John_Mills profile image
John_MillsVolunteer
4 Replies

geneticalliance.org.uk/late...

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John_Mills profile image
John_Mills
Volunteer
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4 Replies
AndrewT profile image
AndrewT

Dear John and Susan,

I have filled in the survey, as best I can, I hope it wil do some 'good' in the long term.

I would be interested to know what other people thoght of this suvey as , I'm sure, would you.

Happy New year

AndrewT

milliewin profile image
milliewin

John and Susan, I too filled in survey beat as I can? For me as usual questions little confusing especially when thinking about agreeing or disagreeing as I always find this hard to work out but seemed to cover most issues and good to be able to sum up main problems at the end? What did you think Andrew?

Sarah

buddy70 profile image
buddy70

I completed survey,didn't find it invasive at all and hope that as a w.g. sufferer my answers

,collated with other sufferers might in future give a lead to the people who are trying to find cures for all these rare ailments. Happy new year to fellow-forumites

Buddy70

.

braindamage profile image
braindamage

I agree with Buddy70 above. Hope it helps.

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