What is your Rare Disease Experience? - Vasculitis UK

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What is your Rare Disease Experience?

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John_MillsVolunteer
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vasculitis.org.uk/news/rare... (Genetic Alliance and Rare Diseases UK)

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John_Mills
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gsmith profile image
gsmith

I find it annoying when the health care proffesionals say they know about wegeners when they haven't a clue, also being unable to get an appointment with my rheumatologist when I have something important to discuss with him, like why I felt as if I was being poisond on mycophenelate

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