Posts - Vasculitis UK | HealthUnlocked

http://www.bbc.co.uk/search/news/vasculitis

If you write Vasculitis in the BBC Homepage Search Bar, Guess who pops up first !!

Ive no pulse in my right wrist, does anyone else have that symptom? if so what causes it,? ive got systemic vasculitis,

Volunteer•11 years ago

4 Replies

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Pulse

Ive no pulse in my right wrist, does anyone else have that symptom? if so what c...

kate48

•11 years ago

16 Replies

Just Diagnosed with Systemic Vasculitis

I was Diagnosed earlier this month with Systemic Vasculitis, ive been having problems since sept 2012, I suddenly got severe Raynauds, with 4 finger ulcers,...

I was Diagnosed earlier this month with Systemic Vasculitis, ive been having pro...

kate48

•11 years ago

17 Replies

The Worseshire Way Walkers.

On 29th June this year an ever growing band of intrepid walkers will set off to complete 31 mile walk in support of Vasculitis UK. The walk is known as the...

On 29th June this year an ever growing band of intrepid walkers will set off to ...

Jann

•11 years ago

3 Replies

Postponed VSG meeting for 19th January 2013

IMPORTANT NOTICE The SELondon/NWKent VSG, due to meet on 19th January, is unfortunately had to be postponed due to the bad weather forecast. I am so sorry...

IMPORTANT NOTICE The SELondon/NWKent VSG, due to meet on 19th January, is unf...

JacquiM

Volunteer•11 years ago

This is well worth listening too...but it is upsetting too... http://www.youtube.com/watch?v=9q9QfRVB6HA

Work Capability Assessment Debate today in the House of Commons 17th January 2013

This is well worth listening too...but it is upsetting too... http://www.yo...

Volunteer•11 years ago

Has anyone from Wales been referred to a hospital/Consultant in England, recently, to treat their particular type of vasculitis?

If anyone receives the BBC East Midlands News in your area you might like to watch today ... I think it is on at 1.30pm.. 6.30pm .. and 10.30pm.. it might even...

Volunteer•11 years ago

5 Replies

This is the link to the BBC EAST MIDLANDS TODAY... news programme today 17th January 2013 "Talking about Vasculitis"

If anyone receives the BBC East Midlands News in your area you might like to wat...

Vasculitis UK was one of 10 rare disease groups who completed an initial project to produce Route Maps specific to the condition(s) and problems encountered by...

Volunteer•11 years ago

16 Replies

Genetic Alliance-UK Route Map for Rare Diseases Tool Kit

Vasculitis UK was one of 10 rare disease groups who completed an initial project...

Volunteer•11 years ago

We are predominantly looking for families with more than 1 individual with ANCA Associated Vasculitis, or people whose ANCA vasculitis started below the age of...

Instructions on how to take part in the DNA Analysis Research Project... at Cambridge..... for ALL ANCA Associated Vasculitis patients

We are predominantly looking for families with more than 1 individual with ANCA ...

Was in the support group but after an ATOS medical last July I was placed in the WRAG group.

Volunteer•11 years ago

4 Replies

ESA Appeal - I've just received my appeal date. Does anyone have any experience of what will happen at the appeal?

Was in the support group but after an ATOS medical last July I was placed in the...

countrylady

•11 years ago

Ive been on methotrexate for 2 weeks now...ive started flaring up on my face (hives and swelling) can anyone tell me if this starts to die down after a while?...

methotrexate....and flare ups

Ive been on methotrexate for 2 weeks now...ive started flaring up on my face (hi...

lucindaross

•11 years ago

7 Replies

Pick Me Up Special Series Magazine 24th January 2013

The Pick Me Up Special Series magazines are produced by the makers of the weekly Pick me up magazines. They are released to coincide with the important events...

The Pick Me Up Special Series magazines are produced by the makers of the weekly...

Volunteer•11 years ago

The next informal lunch will be held on Tuesday 22nd January at 12 noon. The venue will be: The Mill on the Exe, Bonhay Road, Exeter, EX4 3AB...

West Country Vasculitis Support Group Informal Lunch January 22nd

The next informal lunch will be held on Tuesday 22nd January at 12 noon. The ven...

Volunteer•11 years ago

Hi I'm going through a reduction after a increase with my steroids, I feel extremely fed up, i get frustrated at things and people, that i wouldn't normally...

Prednisone mood swings

Hi I'm going through a reduction after a increase with my steroids, I feel extre...

Garyork

•11 years ago

8 Replies

Campath?

I was just curious to know if any of sufferers of Vasculitis have had to have Campath to keep their condition under control?

I was just curious to know if any of sufferers of Vasculitis have had to have Ca...

turtleface

•11 years ago

The Annual Oxfordshire Seminar will be held on Sunday 17th March 2013 at The Four Pillars Hotel, Abingdon, Oxford. The meeting will start at 11am, and there...

The Annual Oxfordshire Vasculitis Seminar will be held on Sunday 17th March 2013

The Annual Oxfordshire Seminar will be held on Sunday 17th March 2013 at The Fou...

Volunteer•11 years ago

As many of you may know, our new website has been operational since 1st September 2012 (just over four months). We would like to thank all our visitors and...

VASCULITIS UK WEBSITE

As many of you may know, our new website has been operational since 1st Septembe...

PatriciaAnn

•11 years ago

2 Replies

does anyone get swollen fingers and burning sensation in their hands?

I have churg strauss symdrome and recently I have started to suffer from swollen fingers and burning sensations in my hands sometimes. This is particularly...

I have churg strauss symdrome and recently I have started to suffer from swollen...

Katie18

•11 years ago

10 Replies

Black Triangle Campaign GP's and ATOS .....For your interest...

http://blacktrianglecampaign.org/2013/01/11/how-gps-can-end-the-atos-death-toll/

All 18 places have now been taken in this years British 10k run. We are now taking names for the London British 10K run for 2014. Thank you to all the people...

Volunteer•11 years ago

5 Replies

LONDON BRITISH 10K RUN JULY 2013 Fundraising for Vasculitis UK

All 18 places have now been taken in this years British 10k run. We are now taki...

Volunteer•11 years ago

John will give a presentation "Vasculitis, Past Present and Future" Both John and Jacqui will be available to answer any questions... :-)...

South East London North West Kent Vasculitis Support Group Meeting Saturday January 19th.

John will give a presentation "Vasculitis, Past Present and Future" Both John a...

http://blacktrianglecampaign.org/2013/01/10/atos-debate-in-the-house-of-commons-set-for-17th-january-2013/

Volunteer•11 years ago

10 Replies

Atos debate in the House of Commons set for 17th January 2013

http://blacktrianglecampaign.org/2013/01/10/atos-debate-in-the-house-of-commons-...

Volunteer•11 years ago

http://www.independent.co.uk/voices/comment/the-welfare-bill-a-government-of-millionaires-just-made-the-poor-poorer--and-laughed-as-they-did-it-8443619.html

Interesting Article in todays Independent Newspaper....

http://www.independent.co.uk/voices/comment/the-welfare-bill-a-government-of-mil...

Volunteer•11 years ago

Developed a few black spots; one on my right index finger, left palm and left thigh. They look like pinch marks but are not raised or painful, and the biggest...

Black spots

Developed a few black spots; one on my right index finger, left palm and left th...

Wellsie

•11 years ago

Dr Julie Williams was a speaker at the 2012 Autoimmune Focus Meeting in November 2012. Julie gave a presentation to a Symposium organised by Instrumentation...

Thank you to Dr Julie Williams Translational Scientist, Welcome Trust Clinical Research Facility, University Hospitals Birmingham

Dr Julie Williams was a speaker at the 2012 Autoimmune Focus Meeting in November...

The Trust now has further information about the forthcoming PIPs. To read the latest and link to the appropriate government website please visit:...

Volunteer•11 years ago

2 Replies

PERSONAL INDEPENDENCE PAYMENTS

The Trust now has further information about the forthcoming PIPs. To read the la...

PatriciaAnn

•11 years ago