Posts - Vasculitis UK | HealthUnlocked

Volunteer•12 years ago

The FRAX® tool has been developed by WHO to evaluate fracture risk of patients. It is based on individual patient models that integrate the risks associated...

FRAX - WHO Fracture Risk Assessment

The FRAX® tool has been developed by WHO to evaluate fracture risk of patients. ...

Volunteer•12 years ago

my brother got married today. he and his lady wife met aged 16 at six-form college and have been together ever since. they met 31 years ago! today has been...

wonderful day!

my brother got married today. he and his lady wife met aged 16 at six-form col...

Has anyone from Berkshire seen the article written by Dr Philip Lee MP in today's Daily Telegraph?

Volunteer•12 years ago

7 Replies

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Daily Telegraph today 15.09.2012

Has anyone from Berkshire seen the article written by Dr Philip Lee MP in today'...

thankfully my blocked ear is not to do with my vascultis, however it needs an mri scan to say just what exactly is wrong so another wait of up to 1 month. the...

Volunteer•12 years ago

5 Replies

my ent specialist. Got to the hospital after nearly 2 hours and just in time i met for the very first time my ent specialist

thankfully my blocked ear is not to do with my vascultis, however it needs an mr...

ken13

•12 years ago

4 Replies

The First North Yorkshire Vasculitis Support Group Meeting Sunday October 7th at 1.30pm

At Gomersal.......5 Miles from M62 Located at the very heart of West Yorkshire, Leeds is just 15 minutes away, Bradford 10 minutes, Huddersfield 10 minutes and...

At Gomersal.......5 Miles from M62 Located at the very heart of West Yorkshire, ...

Volunteer•12 years ago

Hi, I would like to know what painkiller works best. I am currently on Predisolone, Cellcept and Methotrexate. I thought I was getting better, but then I...

Painkillers? Any suggestions?

Hi, I would like to know what painkiller works best. I am currently on Predisolo...

Hanna22

•12 years ago

6 Replies

I was diagnosed with WG in January and at the same time had drop foot in both feet , still unable to walk without aids, and cannot stand

unaided, I wondered if anyone else has had the same problem.

archie2

•12 years ago

6 Replies

Best laid plans

The saying one day at a time is so true, The pain in my leg has eased thank goodness however there is a price to pay for every day of feeling good I get a dat...

The saying one day at a time is so true, The pain in my leg has eased thank good...

patsy

•12 years ago

17 Replies

Membership for Vasculitis UK ...

Just wanted to say that the membership forms from the new website have been coming in quite regularly since the new website went live :-)...

Just wanted to say that the membership forms from the new website have been comi...

Volunteer•12 years ago

whilst pushing, or being trundled in, the wheelchair around London I didn't want to keep saying "excuse me please" so I decided to use something simple, easy...

I speak International!

whilst pushing, or being trundled in, the wheelchair around London I didn't want...

knowing my limits, we did as planned and did our sightseeing from the river cruises and the odd bus. I borrowed the hotel wheelchair, which I pushed or was...

Volunteer•12 years ago

3 Replies

back from London

knowing my limits, we did as planned and did our sightseeing from the river crui...

Volunteer•12 years ago

6th & 7th October. If you are going to attend this important Conference please note that the Royal Marine Hotel rang today to say they can only hold rooms...

ALL IRELAND VASCULITIS CONFERENCE

6th & 7th October. If you are going to attend this important Conference pleas...

PatriciaAnn

•12 years ago

The next Meeting has been arranged for Tuesday 6th November (instead of October) between 2-4pm at the Royal Liverpool University Hospital. We are being...

Merseyside, Cheshire and North Wales Support Group Meeting

The next Meeting has been arranged for Tuesday 6th November (instead of October)...

SusanCh

•12 years ago

Oh the joys of vasculitis!!! you never know where the next attack will come from, I have MPA each day is a battle with my own body and try as I might to think...

Same day different attack

Oh the joys of vasculitis!!! you never know where the next attack will come from...

patsy

•12 years ago

Just wanted to ask if anyone with WG smoke as I was forced to stop when got diagnosed but unfortunately started again. I no its bad for you but will it make me...

where can i get holiday insurance for the condition "Takayasu"

mhinder

•12 years ago

5 Replies

Does anyone with WG smoke

Just wanted to ask if anyone with WG smoke as I was forced to stop when got diag...

Louisexx

•12 years ago

5 Replies

Is this a 'flare'?

Hi can anyone tell me if i'm having a 'flare'? Been on 5mg pred for approx 6 months previous symptoms sinus only just over a year ago. Lost hearing in left...

Hi can anyone tell me if i'm having a 'flare'? Been on 5mg pred for approx 6 mo...

bradders66

•12 years ago

16 Replies

North West Vasculitis Support Group Meeting

North West Vasculitis Support Group Meeting 16th September at 2 – 4:30pm Macdonald Hotel- Tickled Trout Preston New Road, Preston, PR5 0UJ Just...

North West Vasculitis Support Group Meeting 16th September at 2 – 4:30pm ...

Jann

•12 years ago

John has sent the submission of evidence to Prof Harrington yesterday on behalf of Vasculitis UK. Just wanted to thank everyone for their contribution. If...

Submission for Prof Harrington regarding Work Capability Assessment – call for evidence

John has sent the submission of evidence to Prof Harrington yesterday on behalf ...

Volunteer•12 years ago

New vasculitis awareness bear... inroductory offer £10.50 including p&p

New Vasculitis Awareness Bear

Volunteer•12 years ago

http://www.benefitsandwork.co.uk/news/latest-news/1561-4-september-newsletter

Benefits and Work Newsletter September 2012

Chemo 4 today...all was so far so good. Today my leuko count was horrible; but hey they didn't sample urine until the cyclops was underway. More taken for...

Volunteer•12 years ago

3 Replies

One step forward, one step back

Chemo 4 today...all was so far so good. Today my leuko count was horrible; but ...

Wellsie

•12 years ago

3 Replies

Yorkshire North Support Group Meeting

Just a reminder that we are holding the first Yorkshire North Support Group Meeting in October. It will be held on Sunday 7th October, 1.30-4.30pm, Gomersal...

Just a reminder that we are holding the first Yorkshire North Support Group Meet...

LynneJ

Vasculitis UK•12 years ago

The new Vasculitis UK website was quietly launched on 1st September to much acclaim from patients and senior professionals in the vasculitis world. You can...

The new Vasculitis UK website was quietly launched on 1st September

The new Vasculitis UK website was quietly launched on 1st September to much accl...

Volunteer•12 years ago

I opened my car door today and somehow managed to hit my forehead then hit it again! I don't know how it happened but it hurts. I presume my arm did its jerky...

good tip - don't do this!

I opened my car door today and somehow managed to hit my forehead then hit it ag...

I have been diagnosed with Anca vasculitis since last Christmas,had chemo, prednisalone etc... cant seem to get any benefits, been unable to work, but my wife...

Volunteer•12 years ago

16 Replies

Any Benefits available while diagnosed with Anca Vasculitis

I have been diagnosed with Anca vasculitis since last Christmas,had chemo, predn...

longbank123

•12 years ago

8 Replies

Hi , new to site, my Dad has had WG for the past 8 years with many ups and downs and finally after a long haul is in remission ,

For last year starting getting a tremour and now is having trouble walking , he now takes no pred, had 2 big brain scans nothing showing up !! anyone suffering...

For last year starting getting a tremour and now is having trouble walking , he ...

lolly47

•12 years ago

7 Replies

SE LONDON / NW KENT VASCULITIS SUPPORT GROUP

The next meeting will be held on Saturday 29th September - 9.30am to 12.30pm at the Hurst Community Centre, Bexley, Kent. Jacqui and her friends will make you...

The next meeting will be held on Saturday 29th September - 9.30am to 12.30pm at ...

PatriciaAnn

•12 years ago