Posts - Vasculitis UK | HealthUnlocked

From Monday next week for one week only, a Wilkos shop in the Barnstable area of North Devon will be having buckets at their checkouts. Collecting for...

Monday 21st May for one week only a Wilko's store in the Barnstable area of North Devon will have Vuk buckets on their checkout!!

From Monday next week for one week only, a Wilkos shop in the Barnstable area of...

Volunteer•12 years ago

Hi everyone, Just found this site and it has been a godsend, knowing I am not alone. I have been diagnosed with MPA since 2010, I am starting to really...

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New to this site.

Hi everyone, Just found this site and it has been a godsend, knowing I am not a...

tinac73

•12 years ago

7 Replies

VASCULITIS AWARENESS MONTH TEA AND CAKE AFTERNOON IN THE BRADFORD AREA ON MAY 26TH

Lynne is having a Tea and Cakes afternoon on 26th May in the Bradford Area. There will be cakes and cards for sale and also a raffle. Family and friends are...

Lynne is having a Tea and Cakes afternoon on 26th May in the Bradford Area. Ther...

Volunteer•12 years ago

I have W/G, if I have been with people who have a cold and a few days later I have flu symptoms do I have a cold or is the W/G reacting to the cold.I am on...

Cold or W/g

I have W/G, if I have been with people who have a cold and a few days later I ha...

ARFalk

•12 years ago

8 Replies

POSTING OUT "ROUTE MAP FOR VASCULITIS" (Hard Copies)

Just to let everyone know I am trying to keep up with all the requests for a hard copy of the Route Map. Because of the unexpectedly high demand we have run...

Just to let everyone know I am trying to keep up with all the requests for a har...

Volunteer•12 years ago

http://www.stamfordmercury.co.uk/news/regional-news/route-map-helps-vasculitis-patients-1-3841690

ROUTE MAP HELPS VASCULITIS PATIENTS RUTLAND AND STAMFORD MERCURY

http://www.stamfordmercury.co.uk/news/regional-news/route-map-helps-vasculitis-p...

Volunteer•12 years ago

Next year Dr Andrew McClean will hopefully be talking about his 2 year research project Fatigue with ANCA associated Vasculitis.. Andrew is still wanting...

FATIGUE and ANCA Associated Vasculitis

Next year Dr Andrew McClean will hopefully be talking about his 2 year research ...

The launch of the Route Map for Vasculitis took place at the Trust's AGM yesterday, 13th May. The Route Map is a 114 page "encyclopaedia" of all things...

Volunteer•12 years ago

2 Replies

Launch of Vasculitis UK's Route Map for Vasculitis

The launch of the Route Map for Vasculitis took place at the Trust's AGM yesterd...

PatriciaAnn

•12 years ago

The launch of the Route Map for Vasculitis took place at the Trust's AGM yesterday, 13th May. The Route Map is a 114 page "encyclopaedia" of all things...

Launch of Route Map for Vasculitis

The launch of the Route Map for Vasculitis took place at the Trust's AGM yesterd...

PatriciaAnn

•12 years ago

My name is Jamie Flanagan. This year I have ran in the Rome marathon and will be running in the Dundee and Berlin Marathon's (as well as the Speyside way...

Marathon blog Number 8

My name is Jamie Flanagan. This year I have ran in the Rome marathon and will be...

jimdrum

•12 years ago

My goodness, my daughter rang from Essex and when she started to read the blog she was crying so much I think because it was odd seeing all these comments re:...

systemic vasculitis p-anca

My goodness, my daughter rang from Essex and when she started to read the blog s...

systemic

•12 years ago

2 Replies

A Big Thank You to Dr Mike Venning and Dr Nina Brown for an excellent presentation today at the Vasculitis UK AGM

"Bringing Together... Patients, Clinicians and Researchers"

Volunteer•12 years ago

I have been in receipt of ESA contribution based since 2010. I had one medical assessment shortly after I had finished my cyclo treatment. I was put in the...

ESA

I have been in receipt of ESA contribution based since 2010. I had one medical a...

moira

•12 years ago

If any member of the Vasculitis Uk HealthUnlocked community would like to become a member of Vasculitis UK (that is if you are not already) Please send me a...

VASCULITIS UK MEMBERS AND DATA BASE

If any member of the Vasculitis Uk HealthUnlocked community would like to become...

i am a new member to health unlocked, vasculitis uk, and i would like to ask members a question, as i wonder if there is anyone else who has had a similar...

Volunteer•12 years ago

4 Replies

A new members question,on Urticarial Vasculitis.

i am a new member to health unlocked, vasculitis uk, and i would like to ask mem...

jackrussell

•12 years ago

11 Replies

rituximab and vasculitis.

this next week will be my first dose of rituximab for Anca + vasculitis. several dr's keep mentioning wegeners but still not one will confirm it. I've been...

this next week will be my first dose of rituximab for Anca + vasculitis. several...

alan-lee

•12 years ago

17 Replies

Unexplained bruising in the fingers

Can I ask does anyone else with WG suffer from intense pains in their fingers and then suddenly develop painful lumpy bruises that appear without warning ?

Can I ask does anyone else with WG suffer from intense pains in their fingers an...

Essex-jill

•12 years ago

3 Replies

Hospital worker with dangerous condition helps to raise awarenessTelegraph and Argus Bradford

Cath Seal talking about Churg Strauss Syndrome http://www.thetelegraphandargus.co.uk/news/9696635.Speaking_out_about_rare_killer_disease/

Cath Seal talking about Churg Strauss Syndrome http://www.thetelegraphandargu...

Volunteer•12 years ago

Today I saw a Physio about a thing unrelated to the MPA. Whilst I was there I thought I would ask him about my foot pain. He was very interested as he...

Peripheral Neuropathy and Exercise update

Today I saw a Physio about a thing unrelated to the MPA. Whilst I was there I t...

LynneJ

Vasculitis UK•12 years ago

4 Replies

Steroids and Osteoporosis

I have recently been diagnosed as having multiple spine fractures which is being deemed by the bone consultant as related to steriod use long term (2 years )...

I have recently been diagnosed as having multiple spine fractures which is being...

cazy-g

•12 years ago

5 Replies

Is it a good idea to take omeprazole long term?

I have been warned by my pharmacist of the dangers of taking omeprazole (stomach protector) long term. Apparently, it has been linked with the development if...

I have been warned by my pharmacist of the dangers of taking omeprazole (stomach...

Ayla

Volunteer•12 years ago

16 Replies

SELondon/NWKent Vasculitis Support Group

URGENT - It is with deep regret that the meeting of the 19th May is postponed due unforeseen circumstances. I am hoping the meeting will be rearranged a soon...

URGENT - It is with deep regret that the meeting of the 19th May is postponed du...

JacquiM

Volunteer•12 years ago

I have found this on You tube. Peripheral Neuropathy and Exercise by greatseminarsonline It is exercises to improve balance etc. and I just wondered if...

Has any one tried exercise for their numb feet?

I have found this on You tube. Peripheral Neuropathy and Exercise by greatsemi...

LynneJ

Vasculitis UK•12 years ago

8 Replies

If you feel you can support, attend or join in with any of the events for Vasculitis Awareness Month

Please follow the link to the Vasculitis Uk Forthcoming events page. :-) http://www.vasculitis-uk.org.uk/news.html

Please follow the link to the Vasculitis Uk Forthcoming events page. :-) http...

Volunteer•12 years ago

2 Replies

Congratulations to Holly and James on the safe arrival of their daughter on May 3rd. Holly and baby are now home and doing well.

Baby Robyn

Volunteer•12 years ago

My first ever blog! I was diagnosed with micro polyangiitis vasculitis in early April at the age of 56. Having now joined the support group it has made me...

Early days - my story so far

My first ever blog! I was diagnosed with micro polyangiitis vasculitis in early ...

Chris-Bromsgrove

•12 years ago

3 Replies

FUNDRAISING CHARITY BALL SATURDAY 20th OCTOBER 2012

All Aboard With Little T! (Come dressed for an evening of nautical fun!) Boarding: Saturday 20th October 2012 Tenders: 7.00pm for 7.30 cast off...

All Aboard With Little T! (Come dressed for an evening of nautical fun!) B...

Volunteer•12 years ago

The 112 page hard copy of the Route Map for Vasculitis will be available to buy from the 14th May. The cost will be £10 a copy, to include post and packing....

THE HARD COPY "ROUTE MAP FOR VASCULITIS" will be available to buy from the 14th of May 2012

The 112 page hard copy of the Route Map for Vasculitis will be available to buy ...