Raynauds : Dr diagnosed me in 1994 with... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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Raynauds

Oldbones88 profile image
5 Replies

Dr diagnosed me in 1994 with Raynauds said it’s usually a prelude to later disease like, arthritis or scleroderma I have both now. Along with numerous other diseases. Had open heart surgery in 2005. Stent put in aorta in 2010. And pretty sure my next visit to vascular surgeon in March for my PAD in legs will get more stents.

I use Heat Holder socks and gloves. Also wool socks. HeatHolders.com

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Oldbones88 profile image
Oldbones88
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OldTed60 profile image
OldTed60

Thanks for the brand of socks and gloves - I’ll look them up. Just for anyone who has primary Raynaud’s - I think the statistic for Raynaud’s becoming secondary to a systemic autoimmune diseases is about one in ten or more. So I believe your doctor may have got this wrong - although you obviously were one of us unlucky ones as it turned out. But many will just continue to have Raynaud’s I believe.

Midgebite21 profile image
Midgebite21 in reply to OldTed60

Yes your correct primary Raynauds in the general population is very common, about 5%. 90% of Raynauds is primary and is therefore not indicative of any sort of autoimmune disorder.

OldTed60 profile image
OldTed60 in reply to Midgebite21

Thanks. Yes I didn’t want to come over as abrasive but didn’t want people here who just have Raynaud’s to worry/ panic either. Incorrect info can be harmful.

But grateful to the OP too as just ordered some Heat Holder socks! They sound great!

Clangerscat profile image
Clangerscat

Hi Oldbones, sounds like you’ve had your fair share of problems. Will check out heat holders thanks for the info.

Smudge_Crawford profile image
Smudge_Crawford

Hi Oldbones, I have Reynaulds Phenomenon, diagnosed in September 2012, I also have M.S. diagnosed in 1995, at the then young age of 26, I also have E.T. (Essential Thrombocythemia) diagnosed in June 2016, so I don't know if having Reynauld's is a precursor to an autoimmune disease, because I got the autoimmune disease first, then Reynaulds, then E.T. Life's been an absolute dream, (not!), I don't know if this helps or not, sorry!

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