Digital ulcers : I have had so many... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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Digital ulcers

Belinda1960 profile image
9 Replies

I have had so many problems with the digital ulcers on my fingers since it got cold an suffer with so much pain..

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Belinda1960 profile image
Belinda1960
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9 Replies
Jacko37 profile image
Jacko37

Hi, are you on any medication for your raynaurds? You should really speak to you Rheumatologist or GP ASAP. I know that it's easier said than done these days with Covid but you don't want them to get out of control. I have Iloprost which doesn't stop them and to be honest does nothing for the raynaurds but I find that the ulcers are much much worse without it. Do you work at all? Total nightmare with the slightest change in temperature. Take care, X

Belinda1960 profile image
Belinda1960 in reply to Jacko37

Don’t really have a doctor since I have moved to another state,

Jacko37 profile image
Jacko37 in reply to Belinda1960

You really should try and find one. I don't want to worry you but if your Raynaurds is so severe that your getting ulcers you need treatment and investigations to make sure that you don't have an underlying condition, X

Belinda1960 profile image
Belinda1960

Need pain meds that work..

Belinda1960 profile image
Belinda1960

My fingers are cold 🥶

Jmrose profile image
Jmrose

I completely understand your pain and have suffered also with digital ulcers. I use far infrared gloves and socks which really help to keep my hands and feet warm. I also use triple antibiotic ointment and keep my fingers covered with bandages when I get the ulcers. It seems to help them heal a little bit faster. My doctor also prescribed a nitroglycerin cream to use around ankles and fingers where you would wear rings which helps the blood flow to extremities. Good luck and hope you find a good doctor.

Sophiebun11 profile image
Sophiebun11

Sorry for your pain, but since you don't have a Dr. there isn't a lot to do. Any reason for not having a Dr.? Even a PCP can help. I know it's hard getting into a Rheumy, I've waited a year in CA and it's not for Raynauds it's for Sclero. I have both, and Sclero caused kidney disease now.

Sanmateogirl107 profile image
Sanmateogirl107

WILD LETTUCE EXTRACT MT ROSE HERBS, EBAY HAS IT I USE FOR PAIN 10 DROPS UNDER THE TONGUE MORNING AND NIGHT YOU CAN DO 35 A DAY POOR MANS MORPHINE. LET ME KNOW IF IT WORKS FOR YOU. JULIE

Belinda1960 profile image
Belinda1960

Thanks

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