Tips on Fingertips Please

[magria]

I have been told that I have Secondary Reynauds. Do other sufferers have deatroyed finger nails, painful inflamation around the nails and yellowing, sore, numb patches on fingertips?

I would be so grateful if anyone can give me any advice on easing the pain I am in.

[Deby177]

Yes to extend were I have lost my nails peel away from the bottom and are all ridges there embarrassing to say least can't even paint them

[magria in reply to Deby177]

Thank you Derby177

[Barnwell]

Hello Magria. I've also recently been diagnosed with Scleroderma and Secondary Raynaud's and share some of your symptoms including excruciatingly painful ulcers on several fingertips, which start with soreness around the nail. I've struggled to find effective pain relief but was prescribed Amlodipine to help blood flow and one ulcer has reduced a lot since I started taking it. I keep the ulcers covered with plasters, wear warm gloves all the time (including in bed) and carry a portable hand warmer which I use as soon as I feel my fingers cooling. The warmth seems to help ease the pain a bit. It's grim. Good luck.

[LadyTrundle in reply to Barnwell]

If you look on the SRUk website and their youtube channel wearesruk there are lots of talks and demonstrations eg looking after hands and fingers. Also when I was at Royal Free yesterday the consultant mentioned manuka honey dressings and iodine dressings to help heal ulcers.

[Barnwell in reply to LadyTrundle]

Thank you LadyTrundle, that's really helpful

[magria in reply to LadyTrundle]

Thank you so much

[magria in reply to Barnwell]

Thank you for your help

[magria in reply to Barnwell]

Thank you Barnwell.

[Scooterboy63]

Hello Magria,

Regards Secondary Raynaud's I had terrible pain when first diagnosed and was put on Amlodipine ( Barnwell's reply) which has really worked for me. Alongside that I also had Iloprost infusion. These were prescribed immediately. Have you had any prescribed? everyone’s different and your consultant may prescribe other medication. If you’re not already a member joining SRUK would be a good move. It’s a brilliant organisation, great magazine, publications, helplines, meeting groups etc. You will not feel so alone. Plenty of light in the darkness, stay positive & best wishes.

[Montaza]

Have you tried Nifedipine? This can improve peripheral circulation. Also agree with other comments about handwarmers. I use the ones that last 10 hours. Put them in my gloves. With ulcers I also use manuka honey under bandages but it has to be a high UMF to be therapeutic, 15 and above. Good luck.

[magria in reply to Montaza]

Thank you very much,, I had an alergic reaction to Nifedipine - quite scarey . I will definitely try the honey