Chilblains: Any tips on how to care for... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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Chilblains

TJme profile image
TJme
5 Replies

Any tips on how to care for my chilblains ( they are chilblains not a skin issue ) this is what they look like come up on top of years if scar tissue created by the same issue . I'm taking Amlodopine Lorsatan and Venaflexin also pain killers but my hands and feet are like this despite having a warm core temp . I've tried the wax baths prescribed by prof Denton's team but they're having not effect

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TJme profile image
TJme
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5 Replies
Jacko37 profile image
Jacko37

They look really sore. Sorry, I don't have a magic cure but just wanted to say that I feel your pain. I get them every year all through the winter. Never mind what I do I just can't get rid of them, then I get the dreaded ulcers to go with them. I have Iloprost infusions which help for maybe a few weeks, steroids also work but as soon as I stop the steroids they come back again. Good luck, I hope you find something that works, Xx

K9rsqr profile image
K9rsqr

Just joined the group this week. I am having this for the first time right now on three fingers. All three fingers started with fingertip ulcers that I have been battling for months. Making me nuts. Anxious to see the responses you get.

Chilblain with Fingertip Ulcers
LadyTrundle profile image
LadyTrundle

Here's a link that Ollie at SRUK recently sent to our local (Sussex) SRUK support group. I haven't had chance to watch it yet - don't get chilblains (yet!) but hopefully it could be useful. Lots of their videos and resources are! sruk.co.uk/raynauds/chilbla...

EH27 profile image
EH27

I had a friend make an oil for me to use that has vanilla and lavender in it. When I get flare ups in the winter I rub it on the affected areas at night and it really seems to help with the associated inflammation and overall severity.

GlasgowHen profile image
GlasgowHen

This really looks like pompholyx or dyshydrotic eczema. I have raynauds as well as those exact bumps at times which were diagnosed by a dermatologist.

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