Any advice?

[chelsea_kayx]

Hey everybody! I got diagnosed Raynaud’s disease a while back now... I’ve dealt with multiple winters and times where I just end up being cold for no reason. I was just told to wrap up warm though. My mum brought me some gloves that contained silver inside as it traps the heat inside, I usually wear another pair of regular gloves on top to stay warm just incase, as I cycle when I can.

However I work in the hospitality line and this happens a fair amount due to the nature of the job. It obviously worsens in the winter or when I work more with cold items/ice. I was just wondering if there was anything else I could do, other than just “staying warm”. One of my mums friends said she had acupuncture and it helped her out a lot, I believe she said she no longer has any issues, but that was a while ago I was told... As you can see from the image my hands can get pretty bad, my feet aren’t as bad, but I guess that’s because they’re less exposed most of the time😂.

[chelsea_kayx]

The doctors also never believed me as I’m young and it’s a rare thing to happen to someone of my age😂. I started taking photos and when I showed them this, they realised that I wasn’t lying when I said I couldn’t feel my hands. I was diagnosed about 2/3 years ago so it’s been quiet some time since

[Sanmateogirl107 in reply to chelsea_kayx]

prazosin 1 mg ask your doctor. hand warmers, ebay. hope that helps aquaphor ointment is great stuff, love julie

[honeybug]

Hi chelsea_kayx 😊🌿🌸🦋

I have Raynauds Phenomenon onset age 12 in both feet and hands as opposed to my dad’s just his hands.

Now 57 years after onset it happens anywhere/anytime it pleases.

When your hands or feet do that run warm only water over them until they pink up ASAP.

The longer and more frequently they are like that the more damage is done.

It can be triggered by just being chilled not actually just cold exposure.

Wear well insulated gloves when dealing with frozen/cold items.

Keeping your torso warm by wearing a vest will help too.

When working if vests aren’t allowed you can wear thermal underwear top underneath your torso clothes.

The more exposure your body goes through the more damage to your blood vessels and capillaries. Surrounding tissues will be starved of blood flow oxygen and nutrients.

This can lead to ulceration and tissue death and gangrene.

Amputation is necessary at that worst stage.

If you’re a smoker QUIT. It advances the progression of the disease.

My dad’s hands are rarely warm and mostly purple these days. There were medication prescribed for this condition but I recently read that it was discontinued. I’m in the USA 🇺🇸 and I believe nifedipine is its name.

Please take this disease seriously.

I lost a lot of dexterity because mine has damaged my sense of touch in my hands. I rarely feel things when I try to grasp them.

I hope you will find relief soon.

It would help you if you kept a journal on your Raynauds.

Regarding:

Triggers results. dates times. symptoms duration etc. include pics to document your journey. Take this to your doctor appointments as proof of your experiences.

Best wishes for less flare ups.

Much prayers and hugs.

EJ x

[chelsea_kayx in reply to honeybug]

Thank you lovely! It’s all been okay recently. The docs diagnosed me with it, it’s just maintaining the symptoms at times xxxx

[honeybug in reply to chelsea_kayx]

😊🙏🤗💗😘🌿🌸🦋🕊😇

[Sosie]

Please speak to your doctor about medication for this. You are suffering unnecessarily. There are many meds you can try but the one that works best for me is sildenafil (25mg 3 times day). It’s been a real life changer for me, in a good way!

[chelsea_kayx in reply to Sosie]

Thank you! Will deffo ask if it flare ups again xx

[Benzman]

I have had Raynauds for as long as I can remember. Trying to play snowballs as a child, with the only gloves available then, woollen ones, was a nightmare. I have heart issues and 4 years ago I was put on nifidipine. I still get Raynauds but nowhere near as badly as before. Some years ago I bought a pair of HotRox Electronic Hand Warmers and they fit comfortably into the palm of the hand underneath gloves. I found these particularly useful when going to the supermarket.

[chelsea_kayx]

Thank you! Will deffo ask if it flare ups again xxx

[chelsea_kayx]

Thank you hun, will bring this up next time I’m in. I got some silver gloves that really help me out when it’s mild but I just put an extra pair on top when it’s colder xx

[tall-tim]

Sildenafil. Sildenafil. Sildenafil.