Spontaneous bruising (toes) - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)
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Spontaneous bruising (toes)

SadieMeg
SadieMeg

Does anyone suffer from this? In the last week I’ve had two occasions where one of my toes has just suddenly bruised for no reason. Today, I was literally walking around the supermarket and I felt a weird stab/weakness in my 4th toe on my left foot and it erupted into a bruise immediately. I hadn’t knocked it, banged it or anything. Earlier in the week it was the same toe but on my right foot. My husband thinks it could be linked to my Raynauds or Scleroderma (I have Raynaud and Scleroderma/polymyositis overlap.)

12 Replies
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There can several explanations for symptoms like these, so i hope you’ll take photos and discuss this with your doctors. In my case Rheumatology calls these “paroxysmal haematoma” ie spontaneous soft tissue bleeds that aren’t caused by contact injury/pressure of some sort. Mine are mainly due to the combination of hypermobile Ehlers Danlos Syndrome (hEDS) + various soft tissue conditions caused by my infant onset Systemic Lupus Erythematosus (SLE) eg small vessel vasculitis, sjogrens, simultaneous Raynauds&Erythromelalgia etc. I’m 64 and have been getting these most of my life - in my hands & feet mainly (also inside mouth, and on lower legs too, sometimes elsewhere).

Take care 🍀🍀🍀🍀 coco

rainbow58
rainbow58
in reply to Barnclown

hi Coco

i was interested to read your reply to Sadiemeg.I have had unexplained bruising and bleeds on my arms that appeared for no reason.my GP has prescribed an ointment that made no difference and now a cream but has not made a diagnosis .I have Raynauds and suspect I have EDS tho this has not been confirmed as gp wont refer me to a gastroenterologist or rheumatologist

Barnclown
Barnclown
in reply to rainbow58

Hope you & your doctors can figure this out....here are 2 links re the hEDS version of this:

patient.info/health/ehlers-...

nhs.uk/conditions/ehlers-da...

rainbow58
rainbow58
in reply to Barnclown

thank you.

Barnclown
Barnclown
in reply to rainbow58

EDS UK has a helpline:

ehlers-danlos.org/support/

Take care & good luck 🍀😘

Bananas5
Bananas5
in reply to rainbow58

EDS? Is that a mental health issue?

x

SadieMeg
SadieMeg
in reply to Barnclown

Thanks barnclown. That’s really interesting and helpful x

Barnclown
Barnclown
in reply to SadieMeg

You’re vvvvv welcome...am so glad if anything i come up with can be useful! 🍀😘

I get this too with my feet, sometimes I can’t work out how the bruise has appeared , every now and again my big toe becomes very tender and looks bruised and then a few days later disappears. Fortunately for me it doesn’t happen very often but it may be worth checking out for peace of mind.

Sounds like a blood vessel suddenly just burst? Heard of it but haven't experienced it myself. As Raynauds & scleroderma are vascular diseases it could well be that there is a connection. Check with your specialist.

I get this regularly my blood vessels burst sometimes if it's only a small one I only notice the bruise but mostly it's the pain as it swells and bursts the last one was in my finger it swelled until my finger was numb and then burst very painful huge bruise and it then went on to burst through out the week I also have vasculitis as well as raynauds and undifferentiated connective tissue disease

Hi there, I get exactly the same in my fingers and have posted about it. I only have raynaud's and osteoarthritis in my hands but no autoimmune conditions (although have mild chronic kidney disease which I'm sure is not related) so am not under any specialists. I've seen 2 GPs about this and one couldn't explain it, the other said it might be related to the raynaud's but wasn't sure. Both believe it's nothing to worry about but it's a pain (literally). When I get it its debilitating, painful and makes the hand it affects difficult to use. From what I've read and been told, it's just one of those things!

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