Shoulder Ultrasound: Hi, I recently... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)
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Shoulder Ultrasound

naila_007
naila_007
โ€ข13 Replies

Hi,

I recently underwent a shoulder U/S and it showed mild Supraspinatus tendinopathy and subacromial subdeltoid bursitis.

I have diffuse systemic sclerosis and taking myclophenate. Any one else suffering from anything similar - just means i cant lift my arms as far as i would like to or put them over my head. I have been doing various stretching exercises and have hydro in the next week or so. Take ibroprofen to reduce the inflammation - well i did for a week.

Just on another note - hand contracture limiting from creating a fist apart from stretching exercise is there anything else eg like a steriod injection or surgery. I have an appointment with my consultant at the end of August, so want to go with some options :)

Thanks everyone.

regards,

Naila

13 Replies
oldest โ€ข newest

Hello naila, just read your post, I have woken up with pain in my left shoulder and the ball and socket joint in left arm!!! This is becoming a recurring symptom, but this time the pain is worse. I am going to ring my GP for an appt to see whether it is bursitus, I already have this in my left hip! which I have steroid injections every 3 to 4 months. Scleroderma never fails to throw another symptom or discomfort for us to live with. As many of fellow members know, my motto is Smile and wave folks, smile and wave. So I am dammed if this latest symptom is going to stop me smiling and waving, Take care xxx

HiddenThis reply has been deleted
fairy56
fairy56
in reply to Hidden

Hi Ria, so sorry to hear you are having a rough time, but you are never alone, we care for each other on this site, so anytime you need to get things off your chest, this is the place, take care xxx

naila_007
naila_007
in reply to fairy56

Hi Fairy56,

Let me know how you get on.

My physio is going to ring me in the next week or so to suggest some exercises but they also have a gym at the hospital so may ask for their assistance in exercise.

regards,

Naila

fairy56
fairy56
in reply to naila_007

Hi naila, I had appt with GP this morning, and she gave me a steroid injection, ( they give it to me in my buttock) so hopefully this will help with the pain in my shoulder and as a bonus any other pain I am experiencing at the moment!! take care xxx

naila_007
naila_007
in reply to fairy56

Hmm i dont like needles - i dont have pain as such its more restriction - i will see what my consultant says if a steriod injection will help with movement.

thankyou.

Naila

fairy56
fairy56
in reply to naila_007

Hi, if it puts your mind at ease, I never feel the needle at all, in fact they always have to say, that"s it all done!! Please take care, and if you ever need to have a moan, which we all do from time to time this is the right place to do it, as we all know what its like. It is also a great place to get encouragement, so has hard as it is for you at the moment know that there are people that care xxxx

naila_007
naila_007
in reply to fairy56

Thank you ๐Ÿ˜Š

naila_007
naila_007
in reply to fairy56

Hi Fairy56,

Having a steroid injection in my shoulders on Friday. My rhemtology consultant is going to do it. He assured me it wonโ€™t hurt in fact it will give more movement. Apparently ur suppose to feel the effects more or less straight away. Then next week I see the physio. I am getting tired of all the hospital appointments :(

Hi naila, I was diagnosed with limited Schleroderma on 1-2-2018. The first Dr. I went to a year ago was an orthopedic surgeon because I thought I had a rotator cuff tear. MRI showed severe inflammation in both joints you stated. I had a steroid injection in each 6 weeks apart and it decreased the inflammation. Also did a high dose of prednisone for 18 days as my hips were also very sore. I also could hardly move my arm. At one point I thought it might be broke. Just be sure Dr. who does injection is well trained and knows just where to give injection. Where I live even the nuse practitioners can give them. Good luck and hang in there

naila_007
naila_007
in reply to Idarose

Thanks - Idarose I will speak the consultant about the injection as for the prednisone the antibody I have puts me at high risk of a renal crisis :( and I have read that not to take it even though some do take it. What I would give just to lift my arms up straight! Oh and make a fist. ๐Ÿ˜” still lucky though!

Idarose
Idarose
in reply to naila_007

I had a difficult time, taking off shirt, bra, brushing or fixing hair, holding up newspaper, washing hair, shaving legs, lifting my arms up for anything. (I called it my alligator arms LOL. Have to or would cry all day.) Every Dr. I went to thought I just wanted pain meds. SO FRUSTATING. Even when I told them my mom died from ALS with diagnosis at age 56. Thanks for listening. Even after a year this still feels like there is no way this is happening to me. Take care.

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