Leg won’t run !

[Emfrenette]

What could cause my legs to not want to run ? Almost feels like my legs are heavy .

[Hidden]

Sounds like fatigue? Tried d-ribose and creatine?

[Mylreaclairelee in reply to Hidden]

Can you be more specific with the drugs for fatigue. I really struggle to walk up a small rise or one flight of steps.

[Hidden in reply to Mylreaclairelee]

Hi, sorry - they are supplements for the production of energy in your cells. You can buy them (I get mine from MyProtein) creatine is super cheap, ribose is more expensive so I’d get a small bag and try it. Creatine tastes revolting so I add it to a flavoured drink. X

[Ncoff]

Yeah my legs always feel heavy like lead weights

[Mylreaclairelee]

Does it feel like you can only take really short steps

[Annie99]

That happened to me once. My legs from the knees down would just start feeling really heavy while I would just sit there. No pain, but they would feel like lead and I’d be afraid I couldn’t walk. I would have to stand up and force myself to shake it off. It lasted about three months, but then went away. My arms too would numb up, like needles and pins from the elbows to fingers. This would happen in the middle of the night. This too just went away.

[frillyhilly]

Hi. I have Primary Raynaud's. I get the same effect - my GP put me on "Water tablets" and it helps me, N xx

[Emfrenette]

This has happened to me in the past before I was diagnosed with any problems I was running for the transit bus and I felt like I was running in place the bus driver looked at me “like what took you so long ?” I felt so embarrassed my legs just weren’t moving . Then again running around trying to rush for something and I just run in one place or so it feels like . I don’t see my rheumy for atlest 2 months from now

[Hidden]

Have you seen a pulmonologist? I found out that ss is in my lungs and was put on 2 inhalers. Also just started sildenafil (viarga) for finger ulcers and my side effect is way more energy. It probably helps the lungs work more effectively.

[Emfrenette in reply to Hidden]

I have had a test done a few months ago and everything came back fine I only used to have Asthma as a kid and had an inhaler but was never serious enough to stay on it . I recently started feeling like I had mucus build up and was making feel like I was “purring” and was given turbuhaler cuz it sounded like bronchitis but it went away on it’s own it seems . I’m only at the beginning stages of all my symptoms so far the low energy , reynauds , and muscle /joint aches and pains are the main things I deal with and random bits of other symptoms that come and go wich are annoying .

[Emfrenette in reply to Hidden]

I have had a test done a few months ago and everything came back fine I only used to have Asthma as a kid and had an inhaler but was never serious enough to stay on it . I recently started feeling like I had mucus build up and was making feel like I was “purring” and was given turbuhaler cuz it sounded like bronchitis but it went away on it’s own it seems . I’m only at the beginning stages of all my symptoms so far the low energy , reynauds , and muscle /joint aches and pains are the main things I deal with and random bits of other symptoms that come and go wich are annoying .

[AJOC4]

I have systemic sclerosis and can't run. The Rheumatologist refers to it as stiffness (as opposed to inflammation in other autoimmune diseases). All my limbs are heavy and I can't lift my own body weight. Walking on the flat feels like walking up a stiff hill and I struggle with stairs. My lung test was okay, so it's just stiff joints and muscles. I'm back to walking normally after a Steroid (Kenalog) injection but this wears off after 2 months and the rheumatologist wants me to stop having them. My last steroid injection was 4 months ago and I visited my son at Durham University last week and even though he picked out the flat routes for me, I couldn't walk after day two and felt like I'd run a marathon. Back home I had to rest up for a few days.

[Emfrenette in reply to AJOC4]

That seems intense I’m sorry your suffering so much I’m just at the beginning stages of this all they diagnosed me with CREST a few months before then they guessed I had lupus now I feel I’m just a guinea pig at times not really knowing if it’s truly crest that I have . But I will see my rheumy in August so we shall see what more he has to say . My symptoms come and go the only visible signs of me being sick to others is my reynauds wich is super sensitive . Cold breeze makes my fingers and feet go numb and change to white almost 95% of the time . Meds don’t seem to help but doc is keeping on them even though . I hope you find something that helps you out more it’s unfair to not be able to move around I hope they find more help for those of us who suffer with all these auto immune disease. Take care !