Does anyone suffer from erythromelalgia. I started with raynauds a number of years ago which seems to have resolved. I am now in the process of being diagnosed for a 'connective tissue disorder' and I am suffering quite badly from erythromelalgia. Is this a symptom of scleroderma? thanks
Anyone with hot, tingling hands? - Scleroderma & Ray...
Anyone with hot, tingling hands?
I have Raynaud's (for 31 yrs) and Erythromelalgia (for 13 yrs but diagnosed for 7yrs)
Neither are connected. A lot think it is connected but it's a totally different burning with them both.
My Raynaud's resolved itself when I was pregnant and never came back until 6 weeks aftet giving birth. Apparently that's quite common. Now I've gone through the menopause I hoped the Raynaud's would go away again, but sadly it hasn't. Still I can't complain, I've had NO symptoms of menopause what so ever, not a hot flush or sweats or mood changes... I sailed through it 😊 x
I have raynauds and erythromalgia too. I thought raynauds was bad. My EM is getting worse. I’m so depressed. I live in Texas where it’s 90 and I can’t go outside, play with my kids outside. Has anything worked for you?
Venlafaxine, I started at 75mg a day and going up by 75mg a day monthly until I reached the maximum of 75mg 4 times a day.
It's the only thing that has helped me in any way at all. I'd say that my EM was around 70% better with taking them. (although now my body is so used to them they're not working as well as before. But I'd say I'm still about 60% better than without them. I've been taking them for over 4 years now )
I know I'd wrestle anyone who said I had to stop taking them, that's how much better the EM is with taking them... & some of the side effects you get from them are pretty good too 😉