Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,837 members • 5,410 posts

All posts for February 2013

Chatting to someone else

Hi, Been a few days *cough edit: A day...damn I'm so bored* since my last post, thanks for the support I appreciate how self deprecating and how 'oh...

Hi, Been a few days *cough edit: A day...damn I'm so bored* since my las...

Blue-Bunny

•11 years ago

6 Replies

anyone been prescribed Hydroxychloroquine for raynauds & scleroderma?

dewjue1

•11 years ago

10 Replies

Sensitive Fingertips

I have suffered with Raynauds for about 20 years now and recently have started suffering with very sensitive, itchy fingertips. The skin at the tips is...

I have suffered with Raynauds for about 20 years now and recently have started s...

0411tm

•11 years ago

6 Replies

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Anyone else dealing with Raynaud's in a very young child?

just wondering if anyone else is dealing with Raynauds in a child? my Daughter is 3 and just been diagnosed. Its only in her feet but she reacts severely to...

just wondering if anyone else is dealing with Raynauds in a child? my Daughter i...

rach_jl

•11 years ago

2 Replies

Living without heating...heh

Challenge Accepted. To be perfectly honest I had no real choice in the matter. I was diagnosed with Raynaud's last year...or was it the year before, I...

Challenge Accepted. To be perfectly honest I had no real choice in the m...

Blue-Bunny

•11 years ago

30 Replies

Song Funny Bones - posted this on Tuk and LUK, thought R&S might also like to share!!!

for those of you who have been told “there’s nothing wrong with you because your labs are all normal…” January 4th, 2011 · Funny Bones THE SYNTHROID...

for those of you who have been told “there’s nothing wrong with you because your...

foxglove

•11 years ago

4 Replies

nifedipine

been on this drug now for two wks, was ok at first but now feel terrible...hot sweats driving me made feel tired and the pain in me finger tips getting...

been on this drug now for two wks, was ok at first but now feel terrible...hot s...

sandycharlie

•11 years ago

12 Replies

Has anyone have Barretts Oesphagus ?

If so what sort of dietary changes have you made ? & what medication are you on ? Is there any treatment >? Thank you guys :))

If so what sort of dietary changes have you made ? & what medication are you on ...

AliW

•11 years ago

14 Replies

been told i have raynauds but nothing else or help. woke thismorning feeling really unwell hands bad and quivery all over. is this a sympton

bjglos

•11 years ago

4 Replies

Has anybody tried maximum absorption iron? (= Floradix/ Floravital)

Hello, this is my first post but I've been lurking on this site a little while now. :) I've had Raynaud's for about 8 years now (I'm 28) and every winter it...

Hello, this is my first post but I've been lurking on this site a little while n...

phenomenal

•11 years ago

7 Replies

Hi - I am now on maternity leave and feel the cold terrible. Is there any help with heating costs out there?

toftsie

•11 years ago

5 Replies

Can anybody help stop the itching?

Hi I was born with raynauds (I'm now 28) but it didn't get diagnosed until I was 14 by which I had a reasonable amount of capillary damage. I have always...

Hi I was born with raynauds (I'm now 28) but it didn't get diagnosed until I was...

Kannakei

•11 years ago

12 Replies

About to get confirmation that I am suffering from Raynauds

I am having a hard time typing this as the tips of my fingers are protesting at the pain and coldness. Tip of my nose too is starting to join in... See I...

I am having a hard time typing this as the tips of my fingers are protesting at ...

strained1

•11 years ago

11 Replies

Chillblains or Raynurs

How do I know if I have either or both of the above? can you get both if yes which is the best treatment?

How do I know if I have either or both of the above? can you get both if yes wh...

mumbles

•11 years ago

4 Replies

My mum has been diagnosed with Scleroderma.

She's had Reynaud's for years but the scleroderma was a big surprise which nearly killed her - she was taken into Eastbourne hospital not being able to breath....

She's had Reynaud's for years but the scleroderma was a big surprise which nearl...

marmitegirl

•11 years ago

3 Replies

hi, as i have only recently been diagnosed with raynauds i am still trying diff stuff to help, does folic acid tablets help? xx

sandycharlie

•11 years ago

5 Replies

Nearly had enough

Hi folks Im only 39 and I've got a family of 3 and a lovely wife. I have Raynauds and scleraderma for 3 years. The pain and time off work is really bad. I...

Hi folks Im only 39 and I've got a family of 3 and a lovely wife. I have Raynau...

stevieg

•11 years ago

42 Replies

where can I buy silver thread gloves

sinclair

•11 years ago

6 Replies

...Aging Gracefully?? :)

...finding this sight is so very helpful & comforting...however i have to admit reading about how bad this can get is ..terrifying......

...finding this sight is so very helpful & comforting...however i have to admit ...

nanadx20

•11 years ago

10 Replies

Scleroderma/Raynauds

I hv scleroderma and raynauds, was diagnosed 11 yrs bk, fortunately raynauds is the only thing showing at present, I hv been taking 30 mg of nipedine for the...

I hv scleroderma and raynauds, was diagnosed 11 yrs bk, fortunately raynauds is ...

mrsqwerty11

•11 years ago

5 Replies

Sympathectomy - URGENT HELP

Hello, I have just been told that my rheumatologist thinks I should have a sympathectomy done. This is truly a last resort for me after every tablet...

Hello, I have just been told that my rheumatologist thinks I should have a sy...

AshtonRains

•11 years ago

24 Replies

pain

i was just diagnose with raynauds i leave in panama i injure my index finfer and now they are goint to ampute it hurt sooo bad my other hand is also sweling...

i was just diagnose with raynauds i leave in panama i injure my index finfer a...

rubi

•11 years ago

4 Replies

Help for all.

Reading posts on this forum, I wonder if all posters are members of RSA and get the Hot News. Some of the questions asked are answered in depth by the experts...

Reading posts on this forum, I wonder if all posters are members of RSA and get ...

Kuhu

•11 years ago

8 Replies

Participants required for Raynaud's study

Hello my name is Danny and I am conducting a study into the effect of different temperatures on the hands of people with Raynaud's phenomenon/disease, using...

Hello my name is Danny and I am conducting a study into the effect of different ...

dannyclegg

•11 years ago

16 Replies

Participants required for Raynaud's study

Hello my name is Danny and I am conducting a study into the effect of different temperatures on the hands of people with Raynaud's phenomenon/disease, using...

Hello my name is Danny and I am conducting a study into the effect of different ...

dannyclegg

•11 years ago

11 Replies

Kelo cote scar gel helps to keep my finger ends soft

I found this by accident! It's a silicon-based gel. I was given a sample to treat a scar from an old abdominal surgery wound. In aplying it to the scar, I also...

I found this by accident! It's a silicon-based gel. I was given a sample to trea...

Coldfeet

•11 years ago

2 Replies

Does anyone out there have CREST (lcSSc) & Barretts Oesophagus ? If so can anyone know if the Barretts is due to the CREST ?

AliW

•11 years ago

5 Replies

i have just started taking nifedpine an feel better already...once on it do you continue for ever or do you have to take a break from it? x

sandycharlie

•11 years ago

17 Replies

I had an endoscopy yesterday morning ? today I feel awful - tightness in my chest and tummy pain.Has any one else suffered post procedure ?

I have CREST syndrome - they have taken a biopsy - I am also quite tearful - I went in my own & had the throat spray option so it was quite an...

I have CREST syndrome - they have taken a biopsy - I am also quite tearful - ...

AliW

•11 years ago

14 Replies

Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

All posts for February 2013

Chatting to someone else

anyone been prescribed Hydroxychloroquine for raynauds & scleroderma?

Sensitive Fingertips

Anyone else dealing with Raynaud's in a very young child?

Living without heating...heh

Song Funny Bones - posted this on Tuk and LUK, thought R&S might also like to share!!!

nifedipine

Has anyone have Barretts Oesphagus ?

been told i have raynauds but nothing else or help. woke thismorning feeling really unwell hands bad and quivery all over. is this a sympton

Has anybody tried maximum absorption iron? (= Floradix/ Floravital)

Hi - I am now on maternity leave and feel the cold terrible. Is there any help with heating costs out there?

Can anybody help stop the itching?

About to get confirmation that I am suffering from Raynauds

Chillblains or Raynurs

My mum has been diagnosed with Scleroderma.

hi, as i have only recently been diagnosed with raynauds i am still trying diff stuff to help, does folic acid tablets help? xx

Nearly had enough

where can I buy silver thread gloves

...Aging Gracefully?? :)

Scleroderma/Raynauds

Sympathectomy - URGENT HELP

pain

Help for all.

Participants required for Raynaud's study

Participants required for Raynaud's study

Kelo cote scar gel helps to keep my finger ends soft

Does anyone out there have CREST (lcSSc) & Barretts Oesophagus ? If so can anyone know if the Barretts is due to the CREST ?

i have just started taking nifedpine an feel better already...once on it do you continue for ever or do you have to take a break from it? x

I had an endoscopy yesterday morning ? today I feel awful - tightness in my chest and tummy pain.Has any one else suffered post procedure ?

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