hi, as i have only recently been diag... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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hi, as i have only recently been diagnosed with raynauds i am still trying diff stuff to help, does folic acid tablets help? xx

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sandycharlie
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Blue-Bunny profile image
Blue-Bunny

I'd check with your doctor as to whether you actually have a deficiency. It's very unlikely to help at all. Pair of Silver Gloves from the RSA charity, some LittleHotties (or similar) from Amazon (alternatives sold on the RSA site) and extra layers.

What might help you is nifedipene (ask your doctor). It helps some people but it's not very helpful for others eg me, who appreciates the numbness from the pain.

zenabb profile image
zenabb

Don't try to self medicate. It's a waste of time and emotions. Get treated properly. Do you have a rheumatologist? Ask us for specific ways to manage your Raynaud's.

sandycharlie profile image
sandycharlie

hi thanks for replies,

i am on 10mg a day of nifedipine an do find helps a bit but not that much, i have got go back to my docs in a month as only just started them so will prob have dose upped....have been on them for two wks now was not getting any side affects but have started to get hot sweats now...but will stick with them...i also use the littlehotties they ar really good but still really painful when finger tips are cold and have sores on two fingers which are taking ages to heal :(

zenabb

i have only just beeen diagnosed so my doc is trying to help me first which i am happy with he will refer me if i want him to....my main problem is coping with the pain when the finger tips get cold...nothing works :(

ceefa profile image
ceefa

Hi, i have been taking Ginko Biloba for a number of years & it seems to ease problem

Berniz profile image
Berniz

I take folic acid but it does not help the Raynaulds.

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