white feet: i have raynauds in my feet... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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white feet

welderdave12 profile image
7 Replies

i have raynauds in my feet lately inbetween my toes they seem to be white all the time my feet are cold but they still sweat everytime i see my doctor she dont seem to do anything she not put me on medication its the tingling and numbness i feel as if its traveling to my legs should i see her ask her or does any1 here have the same thanx for looking

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welderdave12 profile image
welderdave12
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7 Replies
SandraMarie profile image
SandraMarie

We all suffer loads of different and changing symptoms, you just get used to it. I spent all of last night with a cold body hugging a hot water bottle, but my hands and feet were absolutely throbbing and swollen with heat. You just have to get on with it, not a lot you can do. :( Sorry!

tezza1007z profile image
tezza1007z

If your doctors practice has several doctors then get an appointment to see another. I tried writing to my doctor with my symptom 'experiences' and that was good for his understanding. Persist, keep going back.

zenabb profile image
zenabb

Are you on any treatment for your Raynaud's? I often have white feet.

dawn1972 profile image
dawn1972

I have severe raynauds in my feet to my ankles, knees, and hands. My docs have tried many many meds including Revatio (viagra). I eventually had no effects from the Revatio after a few years. I do get arterial ulcers. One doc started me on Pletal then added plavix and aspirin and now my leg pain has decreased. For the tingling in my feet they started neurontin and now minimal tingling unless I forget to take it. I use heated gloves and insoles in my boots, shoes but honestly the last two winters the heat isn't enough and I've actually been burned and not noticed right away. I stay indoors as much as possible. I don't do well in summer either I can't take the air conditioning or even the breeze outside it induces episodes. I've had experimental treatments stellate ganglion blocks, botox in my hands, iv infusions of meds. Not much has helped besides controlling the environment I live in! I wish you luck and let us know if you have any positive or negative outcomes!

welderdave12 profile image
welderdave12

No my doc has not gave me anything so far i am goin to ask her tho

VanessaJoanne profile image
VanessaJoanne

I am taking Losartan and this week the dose was doubled to 50mg. My raynauds is very much better now. I have diffuse scleroderma so it is very important to keep the raynauds under control as it can lead to ulcers and I have met many who have lost fingers and toes.

This apparently does not happen if you have only raynauds.

VanessaJoanne profile image
VanessaJoanne

SandraMarie. I do not agree with you that there is nothing you can do to help with symptoms.

I have had many problems during the last eighteen months including breast cancer and renal crisis. If i had chosen to do nothing I would definitely be dead.

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