SRUK connection : Hi SRUKYou are an... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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SRUK connection

Castella profile image
7 Replies

Hi SRUKYou are an important organisation for us Sclerries!

Do you read the posts? Your own contributions are very out of date...

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Castella profile image
Castella
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7 Replies
Gardenlover67 profile image
Gardenlover67

Hello Castella.

I read everything I can as there’s often interesting tips and help.

L

Tiggywoos profile image
Tiggywoos in reply toGardenlover67

I think she means the moderators and I did wonder that myself ? ❤️

Tiggywoos profile image
Tiggywoos

I did wonder that too 🤔 x

Gardenlover67 profile image
Gardenlover67

I see. Thank you.

Castella profile image
Castella

Yes I did mean the moderators, so no response!

OldTed60 profile image
OldTed60 in reply toCastella

You could go to the SRUK website and contact them via the phone or email. I’ll try to find it. I’m sure they would want to know that they should have more presence here and update regularly. I think they may be relying too heavily on volunteers with SSc for this perhaps? They could increase their membership significantly by posting and commenting here as well. Lupus UK, NRAS and Vasculitis UK all have charity staff as admins on their HealthUnlocked communities I believe. Here’s the email they give out: info@sruk.co.uk

Castella profile image
Castella in reply toOldTed60

Thanks, I'll give this a try.

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