Hi SRUKYou are an important organisation for us Sclerries!
Do you read the posts? Your own contributions are very out of date...
Hi SRUKYou are an important organisation for us Sclerries!
Do you read the posts? Your own contributions are very out of date...
Hello Castella.
I read everything I can as there’s often interesting tips and help.
L
I did wonder that too 🤔 x
I see. Thank you.
Yes I did mean the moderators, so no response!
You could go to the SRUK website and contact them via the phone or email. I’ll try to find it. I’m sure they would want to know that they should have more presence here and update regularly. I think they may be relying too heavily on volunteers with SSc for this perhaps? They could increase their membership significantly by posting and commenting here as well. Lupus UK, NRAS and Vasculitis UK all have charity staff as admins on their HealthUnlocked communities I believe. Here’s the email they give out: info@sruk.co.uk