Post-ileoprost?

[Spook257]

I have reynaulds with ulcers on toes and fingers. Being investigated for underlying cause. None of the standard meds worked so had five days of ileoprost about a month back. It has not helped. I'm still getting repeated reynaulds attacks every day abd and new ulcers. Does anyone know if there are other treatments if ileoprost has not done anything? Thanks.

[Ciaran34]

I use rabeprazoke during the winter and for attacks - it opens up the blood vessels - keeping my core really warm and mitts and warm socks to wear to bed all night help. Nitroglycerin patches also work short term but do cause headaches as the blood vessels open up - see a rheumatologist. Stress and cold are my triggers.

[Spook257 in reply to Ciaran34]

Thanks. I am seeing rheumatology next week so will discuss.

[keir01]

I'm using sildenafil 3x 25mg over the course of day. But also hat and socks most of the time, including bedtime

[Spook257 in reply to keir01]

Thanks. I was on sildenfil for ages but it did nothing. But I'm a big fan of hats, gloves and bedsocks. Also discovered some hand warmers called little hotties which are amazing. Stay warm for about 8 hours and can fit in gloves.

[Coco123456789]

Are they calcinosis cutis or ulcers? I have raynauds. Calcinosis cutis. Osteoporosis and auto imune issues...I take no meds. But take supplements. Gluten free.dairyfree. have to graze lots cos when my blood sugar is low the raynauds is bad...

Love heated gloves and electric usb hot water bottle