Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for October 2013

Hello

Hi its my 73 year old mum who has this evil cruel condtion she was diagnosed about 3 years ago.At the moment shes in a care home after breaking her pelvis six...

Hi its my 73 year old mum who has this evil cruel condtion she was diagnosed abo...

wendal

•11 years ago

8 Replies

Has anybody tried nilotinib or heard anything regarding clinical trials for nilotinib and PSP? It was on Fox News in May.

LyndaEllis

•11 years ago

5 Replies

I have not been able to Gtet on the site 4 about 6 weeks since the update

I have been bereft nit bee able 2 get on the sites since been updated I have now used my iPad 4 this but my typing is still dyslexic Lol,jilll :-)

I have been bereft nit bee able 2 get on the sites since been updated I have ...

jillannf6

•11 years ago

7 Replies

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Our dad 87 is dying now. The district nurses and dr s are refusing any pain relief they say he has non we all disagree they won't listen can

You help us we are struggling because they come same time and don't see what we see. My mum the care staff and all family disagree. He has been put on...

You help us we are struggling because they come same time and don't see what we ...

Buskinjo

•11 years ago

3 Replies

Fasciculation and Muscle Wasting?

I have forearm weakness and psp. If I grab a gallon of milk it hurts my forearms. I can sense that I am losing my forearm strength. I used to be pretty...

I have forearm weakness and psp. If I grab a gallon of milk it hurts my forearm...

mcfly

•11 years ago

13 Replies

Continuing Health Care. (CHC)

Dear All, Sometimes there is a little bit of good news. We heard last week my husband has been awarded CHC and yesterday was the first day of carers coming in...

Dear All, Sometimes there is a little bit of good news. We heard last week my hu...

Peter3

•11 years ago

24 Replies

Improvement in Swallowing! Completely Unexpected.

After over a year and a half of nothing by mouth - only a JPEG tube - my husband is now able to eat and ENJOY yogurt, applesauce, custard, coffee, water, and...

After over a year and a half of nothing by mouth - only a JPEG tube - my husband...

carolinesimmons

•11 years ago

7 Replies

PSP Remission?

For at least a year my husband progressed rapidly with PSP. It seemed symptoms were popping up weekly, sometimes more often. We never knew what to expect....

For at least a year my husband progressed rapidly with PSP. It seemed symptoms w...

laroux

•11 years ago

9 Replies

Milky drinks, tea and coffee

Hubby tends to cough up most of these. He loves his tea. Does anyone have a suggestion of how to prevent the coughing? We are using thick and easy. Thanks...

Hubby tends to cough up most of these. He loves his tea. Does anyone have a su...

MaddyS

•11 years ago

9 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for October 2013

Hello

Has anybody tried nilotinib or heard anything regarding clinical trials for nilotinib and PSP? It was on Fox News in May.

I have not been able to Gtet on the site 4 about 6 weeks since the update

Our dad 87 is dying now. The district nurses and dr s are refusing any pain relief they say he has non we all disagree they won't listen can

Fasciculation and Muscle Wasting?

Continuing Health Care. (CHC)

Improvement in Swallowing! Completely Unexpected.

PSP Remission?

Milky drinks, tea and coffee

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive