neck pain and GCA/PMR: when I was diagnosed with... - PMRGCAuk

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neck pain and GCA/PMR

Mstiles profile image
6 Replies

when I was diagnosed with GCA in addition to PMR, the GCA pain was in the occipital area.

Now I’m having pain in my neck on the right side when I move my head up and down or from side to side. Worse when laying down. Ibuprofen tablets or topical cream don’t seem to help. Also worse tinnitus and autophony and fatigue.

Started weeks ago when lying down and Turing my head to the right.

Suggestions welcome on how to figure out what’s going on.

I’m in the US.

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Mstiles profile image
Mstiles
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6 Replies
PMRpro profile image
PMRproAmbassador

Does it fit with sternocleidomastoid problems? Two videos here:

google.com/search?q=sternoc...

youtube.com/watch?v=eD3Ds3G...

Mstiles profile image
Mstiles in reply toPMRpro

I looked at the first video but the second one wouldn’t load. That is the area that is causing neck pain but that whole side of my neck and head feels muffled somehow and doesn’t explain the ear and hearing issues. I’ve also had a sore scalp.

An old post of mine from several years ago came up with the same issues. It also mentioned the scoliosis I have, the right shoulder lower than the left. This was also after a lot of family stress

SnazzyD profile image
SnazzyD in reply toMstiles

SCM issues can cause all manner of head problems that mimic GCA as I found. When I’m stressed it is the first bit to go, especially on my right. Until it is sorted, pain killers don’t help particularly. When my SCM muscles are not in good shape pillow height and pressure can make or break my symptoms. Have you had a good musculoskeletal once over by a competent who deals with mechanics rather than rheumatics? I can’t say if it is GCA or not but you might need to start the detective process before symptoms become too advanced.

Mstiles profile image
Mstiles in reply toSnazzyD

Thanks Snazzy. I know I need a new mattress, maybe a contributing factor.

What type of doctor would that be who would deal with “mechanics rather than rheumatics”.

PMRpro profile image
PMRproAmbassador in reply toMstiles

Strange, they have both loaded for me - the first link takes you away from the forum with a redirect notice which you just click on.

It can affect hearing in some people and cause sore scalp as it can affect blood vessels in the area.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toPMRpro

The first one first one doesnt work for me either. Did try C& P link but still no go.

On phone st moment but will try iPad ..and let you know

edit / works on iPad!

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