Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,470 members • 38,421 posts

All posts for May 2024

8years PMR this week

hi Thought I would share my 8year journey with you all. Sorry it’s a bit long x It was the day before my visit to the Chelsea show 2016 that I was...

hi Thought I would share my 8year journey with you all. Sorry it’s a bit long...

9lives

•2 days ago

22 Replies

Newly diagnosed PMR

Hello. I’ve joined here because it is mentioned in many of the sources I haven been using trying to make sense of what I’m going through. So I’m newly...

Hello. I’ve joined here because it is mentioned in many of the sources I haven b...

NewPMR53

•2 days ago

32 Replies

Jekyll and Hide face

I have GCA (stroke in optic nerve in 2016, right eye). The right side of my face is now noticeably wrinklier than the other - am I right in supposing it...

I have GCA (stroke in optic nerve in 2016, right eye). The right side of my fa...

Hobbitses

•2 days ago

10 Replies

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Balancing symptoms and pred dosage?

Hi - MrPMR started on 20mg of Pred last Tuesday, had the typical 'spectacular' response, and went from barely walking/not able to turn over in bed, to being...

Hi - MrPMR started on 20mg of Pred last Tuesday, had the typical 'spectacular' r...

MrsPMR

•2 days ago

21 Replies

PMR diagnosis

Hi, this is the first time posting on this platform as I have just had a diagnosis of PMR after four years. (I am not complaining as I realise it can be...

Hi, this is the first time posting on this platform as I have just had a diagnos...

Hightower62

•2 days ago

14 Replies

A holiday is good as a rest…listen to your body

Just came back from two weeks in Cyprus after being diagnosed with PMR in March this year. On 17.5mg of Pred after four weeks of 20mg. Hoping to taper to 15mg...

Just came back from two weeks in Cyprus after being diagnosed with PMR in March ...

Shadowboxes

•2 days ago

4 Replies

How do you come down from the pred high?

I wrote what follows as a response to someone else mentioning the pred high but then realised it should have been a new post. So here it is again, edited and...

I wrote what follows as a response to someone else mentioning the pred high but ...

Almostaweed

•2 days ago

7 Replies

Stupid O’Clock.

No let up yesterday in upper body. But hubby did say I was walking correctly for the first time in ages. Shoulder feels a bit better at this ungodly hour so...

No let up yesterday in upper body. But hubby did say I was walking correctly fo...

TiaPasha

•2 days ago

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When PMR Goes Away

When first diagnosed with PMR and feeling like I was never going to be myself again, some friends, acquaintances and even a couple medical professionals...

When first diagnosed with PMR and feeling like I was never going to be myself ag...

fondofforest

•2 days ago

26 Replies

COVID time again

Hubby got COVID jab on Saturday and on Sunday in bed and that's strange for him ,he's a big guy 6ft 2in and a good healthy build, sister also got her COVID and...

Hubby got COVID jab on Saturday and on Sunday in bed and that's strange for him ...

Harrywogan

•2 days ago

26 Replies

Ibruphen tablets v gel

hello all well, here “up north” earlier this evening we had the most horrendous thunderstorm lasting 30 mins - and with huge hailstones -and, I kid you not,...

hello all well, here “up north” earlier this evening we had the most horrendous...

Doraflora

•3 days ago

77 Replies

Steroid Injection

Hi All, I'm feeling very confused after my last Rheumatology appointment. I first saw the Rheumatologist in February and was diagnosed Sjorgen's and possible...

Hi All, I'm feeling very confused after my last Rheumatology appointment. I firs...

Soinoi

•3 days ago

14 Replies

I know I’m having a flare-rheum disagrees

Hi Friends- I was diagnosed with GCA in April ‘23 after a five day hospitalization. My symptoms: severe headaches, teeth and jaw pain and excruciating right...

Hi Friends- I was diagnosed with GCA in April ‘23 after a five day hospitalizati...

Birdfriend

•3 days ago

11 Replies

PMR from taper or osteoarthritis

well I have posted history before so try make this short as I can, started to taper from 4 to 5 mgs pred Mar 19, after feeling tear (showed in MRI) I felt was...

well I have posted history before so try make this short as I can, started to ta...

arvine

•3 days ago

12 Replies

Proud mum.

My eldest brilliant beautiful daughter is running the Great Manchester Run today in a lead weighted vest of course, well she is part Viking. Rising money for...

My eldest brilliant beautiful daughter is running the Great Manchester Run today...

TiaPasha

•3 days ago

3 Replies

ultrasound scan

I was diagnosed with PMR in November 2023 based on typical physical symptoms and a blood test that showed high inflammation. In April, after 6 months of...

I was diagnosed with PMR in November 2023 based on typical physical symptoms and...

Palgeo

•3 days ago

2 Replies

advice please

Hi everyone, not sure if you remember but I’m still getting terrible one sided temporal migraines and blurred vision but now I’ve been diagnosed with...

Hi everyone, not sure if you remember but I’m still getting terrible one sided t...

Numptybrain

•3 days ago

21 Replies

Variable periods of bloating, constipation and normal bowel function.

Currently at 5/5.5 mg prednisolone, and tapering very slowly. I'm in my third year since PMR diagnosis having started on 15 mg.I enjoy a healthy diet with...

Currently at 5/5.5 mg prednisolone, and tapering very slowly. I'm in my third ye...

waltztherapy

•3 days ago

4 Replies

Jars.

As the usual types of jar openers no longer help I was looking at the battery operated one button switch electric jar opener. Does it work though?

As the usual types of jar openers no longer help I was looking at the battery op...

TiaPasha

•3 days ago

31 Replies

Hello sleep.

Was able to do my back exercises on the bed yesterday evening and felt relieved my pelvis was behaving. Next minute dog returned from the garden and must have...

Was able to do my back exercises on the bed yesterday evening and felt relieved ...

TiaPasha

•3 days ago

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PMR reduction using MTX as a steroid sparing drug

A couple weeks ago I posed the question if I could skip a dose of MTX (12th dose) as I was going to a family wedding in Italy and would be partaking in wine...

A couple weeks ago I posed the question if I could skip a dose of MTX (12th dose...

lkcreedon

•4 days ago

11 Replies

Injury define sick day?

A week ago I went to a BBQ and my son had bought Muskoka chairs.I never gave it a thought that the back goes in deep.I got up with sciatica and pain in lower...

A week ago I went to a BBQ and my son had bought Muskoka chairs.I never gave it...

Hunter134

•4 days ago

5 Replies

Self-care while waiting for diagnosis

Hello everyone, I recently went to my family doctor about an achey burning in my hips, shoulders and neck that is much worse in the morning, ongoing for...

Hello everyone, I recently went to my family doctor about an achey burning in m...

Bunchberry

•4 days ago

16 Replies

Peripheral neuropathy

It would appear that I have Peripheral neuropathy which can be caused by a number of things. Does anyone know if it can be a side effect of PMR?

It would appear that I have Peripheral neuropathy which can be caused by a numb...

Purpleprimate

•4 days ago

42 Replies

Rheumatologist recommendations Norwich?

Hi everyone - does anyone have any thoughts on recommendations for rheumatologists in the Norfolk area ( or East Anglia)? Just thinking about making a plan B…

Hi everyone - does anyone have any thoughts on recommendations for rheumatologis...

MrsPMR

•4 days ago

44 Replies

Feeling rough

so it's day 2 of the pred increase and instead of feeling better or the same..I feel bloody awful. jaw pain. indigestion..even with omeprazole..and fe3ling...

so it's day 2 of the pred increase and instead of feeling better or the same..I ...

Alliekat65

•4 days ago

41 Replies

When the pain goes.

It took nearly 7 hours today for that lovely feeling that I could conquer the world. At the garden centre I was on a high, hubby wanted some slippers from...

It took nearly 7 hours today for that lovely feeling that I could conquer the wo...

TiaPasha

•4 days ago

18 Replies

Groin pain

Good morning, I have been on 5mg of Pred for quite some time and have begun the Dorsetlady taper, however I am getting pain in my groin’s on waking every...

Good morning, I have been on 5mg of Pred for quite some time and have begun the ...

Wonderfullifeandmore

•4 days ago

31 Replies

weird raised big veins in feet and legs both

has anyone else had weird raised veins in legs and feet ?? i went to gp yesterday saw yet a different doctor she hadn’t read any of my notes before arrival...

has anyone else had weird raised veins in legs and feet ?? i went to gp yester...

Pol53

•4 days ago

19 Replies

COVID booster dilemma

I’ve always had the vaccinations and boosters without major problems. Now with one month to go I need to decide whether to have the current one. I’m on pred...

I’ve always had the vaccinations and boosters without major problems. Now with o...

DogAgilityObsessed

•4 days ago

10 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2024

8years PMR this week

Newly diagnosed PMR

Jekyll and Hide face

Balancing symptoms and pred dosage?

PMR diagnosis

A holiday is good as a rest…listen to your body

How do you come down from the pred high?

Stupid O’Clock.

When PMR Goes Away

COVID time again

Ibruphen tablets v gel

Steroid Injection

I know I’m having a flare-rheum disagrees

PMR from taper or osteoarthritis

Proud mum.

ultrasound scan

advice please

Variable periods of bloating, constipation and normal bowel function.

Jars.

Hello sleep.

PMR reduction using MTX as a steroid sparing drug

Injury define sick day?

Self-care while waiting for diagnosis

Peripheral neuropathy

Rheumatologist recommendations Norwich?

Feeling rough

When the pain goes.

Groin pain

weird raised big veins in feet and legs both

COVID booster dilemma

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