How do you come down from the pred high? - PMRGCAuk

PMRGCAuk

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How do you come down from the pred high?

Almostaweed profile image
7 Replies

I wrote what follows as a response to someone else mentioning the pred high but then realised it should have been a new post. So here it is again, edited and with a heading.

I seem to feel hyperactive all the time, at the moment, especially if I do exercises. Last night I went out to the local exercise park at 8pm and did mainly stretches for 30 minutes, then chatted to the barman in an empty hotel bar for about an hour, very interesting but not normal for me! Do you have any suggestions about how to come down from the high and be normal? I am on 6mg Pred, tapering by 1mg every 4 weeks, my next reduction will be to 5mg in 10 days' time. I am also on thyroxine 75mg, which has been the same for a long time, recent blood test for this normal.

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Almostaweed
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TiaPasha profile image
TiaPasha

You have an exercise park, so jealous. It sounds to me absolutely perfect way to spend an evening, but if the barman shows an unhealthy interest in the Saw films you might want to step away. I have only had a few as early days yet, but making the most of the brief time it has melted away without over doing it of course. If I am trying to watch something new on telly my concentration is zero so I just put on something easy to watch, it was Shrek the other day.

SnazzyD profile image
SnazzyD

I can’t say I had that level of hyperactivity at only 6mg, more over 15mg. Have you always been like this on Pred at every dose? Is it possible that your Thyroxine dose is more than you need now?

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Did reply to previous, but now with full context would say like SnazzyD it’s probably not just the Pred…

PMRpro profile image
PMRproAmbassador

And just to add - at 5mg, it isn't likely to be the pred. The bloods may be OK but possibly sounds more like a thyroid problem.

Almostaweed profile image
Almostaweed in reply to PMRpro

Thank you so much everyone for responding to my post re Prednisolone high - on 6mg. Yes, it could be the thyroxine that is making me so restless and talkative and giving me a fluttery heart. I might try reducing it very slightly to see what happens. Plus I think I may just have to accept not feeling very well and pacing myself until this PMR/Pred episode is over.

AtopicGuy profile image
AtopicGuy

Perhaps this symptom would come under "mood swings" in the list below:

nhs.uk/conditions/overactiv...

Almostaweed profile image
Almostaweed in reply to AtopicGuy

Thanks Atopic Guy. I am taking Thyroxine for an underactive thyroid but it seems I may be taking too much which would give me the symptoms of an overactive thyroid. So you could be right. I will experiment with taking a little less. I think it is safer to do this with thyroxine than it is with prednisolone.

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