Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,219 members•40,230 posts

All posts for March 2024

Flare but wasn't

Hello :) I have been on Prednisolone since 2013 for GCA/PMR I was down to 9mg and I had what I thought was a flare spoke to gp via phone and he said I could...

Hello :) I have been on Prednisolone since 2013 for GCA/PMR I was down to 9mg a...

suszannah

•7 months ago

17 Replies

normal blood results

Hi, this is my first post so hope you all bear with me! To go back to the beginning, in late 2021 I was eventually given a diagnosis of “it’s probably...

Hi, this is my first post so hope you all bear with me! To go back to the begin...

Kitforcats

•7 months ago

40 Replies

Bone Density

Since I last posted six months ago, I have tapered down to 2.5mg a day. The occasional mild discomfort in my arm remains - to remind me that PMR has not gone...

Since I last posted six months ago, I have tapered down to 2.5mg a day. The occa...

Glassbox

•7 months ago

4 Replies

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Tapering

Hi……I’m on 7-1/2mg I was going to keep at that for 6-8 weeks than cut to 7mg half morning half at night…..I had pain top of my head first few days on going...

Hi……I’m on 7-1/2mg I was going to keep at that for 6-8 weeks than cut to 7mg ha...

Januzzi

•7 months ago

6 Replies

Old Posts

I now see I have been responding to old posts. Sorry about that.

Maggieart

•7 months ago

4 Replies

trigger point injections

I will be having my first trigger point injections. I know very little about them. If you have had them, I would love to hear about your experience, and what...

I will be having my first trigger point injections. I know very little about the...

Linny3

•7 months ago

5 Replies

Weight loss

Recently diagnosed taking 15mg predisilone per day. .I have followed dietary advice found on the forum for around 1 week.Over the past 3 weeks I have lost 10...

Recently diagnosed taking 15mg predisilone per day. .I have followed dietary adv...

Shires123

•7 months ago

86 Replies

Headaches

I also had molar extraction last year and have since experienced a dull, hollow fullness, not ache, but feeling of inflamation in ear canal. I saw an ear, nose...

I also had molar extraction last year and have since experienced a dull, hollow ...

izzyart

•7 months ago

3 Replies

What exclusionary tests should I ask my doctor for? IL-6 inflammation tests? + other random PMR questions

I'm a 44-year old woman fairly confident I have PMR due to the symptoms I've experienced & the dramatic success of prednisone in treating them. (I put a longer...

I'm a 44-year old woman fairly confident I have PMR due to the symptoms I've exp...

MizDiana

•7 months ago

32 Replies

Chest pain

My Pred regimen after four years is down almost to 3.5gm. A few months ago I developed chest pain and after lots of tests it seems that my heart is not...

My Pred regimen after four years is down almost to 3.5gm. A few months ago I de...

ChinaWuntoo

•8 months ago

11 Replies

upper back ache

I have been suffering from muscular aches between the shoulder blades for a couple of weeks now. I seem to have a muscular knot particularly on the left. It...

I have been suffering from muscular aches between the shoulder blades for a cou...

bBarnabus

•8 months ago

14 Replies

Slow tapering

I started a PMR journal some time ago and was updating it today when I noticed this. From February to the 27th March 2023 I was dealing with flares. After...

I started a PMR journal some time ago and was updating it today when I noticed ...

Mazxstitch

•8 months ago

4 Replies

Cortisal test

I am having a cortisal test on Monday. I know I have to refrain from taking pred until after it but can I have my morning cuppa and porridge before the test?

I am having a cortisal test on Monday. I know I have to refrain from taking pred...

Bluey-1

•8 months ago

2 Replies

Stress

I now understand that stress caused my flare. Work issues and my son's divorce both hit this fall and continued through February. Thus the jump in pain and...

I now understand that stress caused my flare. Work issues and my son's divorce b...

Maggieart

•8 months ago

5 Replies

Unsure how to proceed after flare continues

I wrote awhile back about having a return of PMR symptoms after successfully (over a year and a half) tapering to 5mg and staying on that dose for two months....

I wrote awhile back about having a return of PMR symptoms after successfully (ov...

Donna5658

•8 months ago

21 Replies

Nuffield Health Joint Pain Program

Hi everyone Having read the recent post titled 'After PMR.... energy and strength ' and clicking on ruggers link to the Nuffield Health Joint Pain Program, I...

Hi everyone Having read the recent post titled 'After PMR.... energy and stren...

Kendrew

•8 months ago

68 Replies

After PMR---energy and strength

Hi everyone, I haven't posted on here for quite a long time but I'm rearing my ugly head again. Hubby ceased taking Pred in September 2022 and the...

Hi everyone, I haven't posted on here for quite a long time but I'm rearing my ...

piggylovesgolf

•8 months ago

104 Replies

5mg reduction in prednisone a day!

Recently I had another GCA scare and the doctor raised my pred from 5mg a day to 30mg. - however, when the scare was over I was told to come down 5mg a day....

Recently I had another GCA scare and the doctor raised my pred from 5mg a day to...

Saintmalo

•8 months ago

11 Replies

Tired weak hips when walking - is it still Pmr

Hi, I'm feeling despondent as it seems that I can walk less and less and I don't know what's wrong.I've been on 1mg, trying to get off for over a year. I have...

Hi, I'm feeling despondent as it seems that I can walk less and less and I don't...

Blossom20

•8 months ago

12 Replies

Headaches!

Hi everyone.....I'm started my PMR journey middle of January so have only been on Prednisolone for 6 weeks... I started on 20mg and now on 10mg I did up dosage...

Hi everyone.....I'm started my PMR journey middle of January so have only been o...

Tescohednesford

•8 months ago

22 Replies

Tooth pulled, then dizzy

After a molar tooth was pulled I started getting headaches and two weeks plus I still have them. And now I am dizzy. I am six years into PMR on 6 mg per day...

After a molar tooth was pulled I started getting headaches and two weeks plus I...

Neck680

•8 months ago

11 Replies

prescribed Prednisalone. 15 mg but really worried by potential side effects. Would really appreciate advice, reassurance etc.

3 months history of increasing body aches, particularly shoulders. Hard to stand up. Had a hospital appointment pending, they were good and after usual tests...

3 months history of increasing body aches, particularly shoulders. Hard to stan...

Scaredofpred

•8 months ago

47 Replies

SAVED POSTS

Quick question. When I save another friend's post (not mine or my replies), where do I find it later? Thanks in advance.

Quick question. When I save another friend's post (not mine or my replies), whe...

Missus835

•8 months ago

21 Replies

Methatrexate/hydroxychloroquine

Hilooking for advice please. Two weeks ago I was put on 20mg Methatrexate for Sjorgens syndrome/PMR but really had a bad reaction. Spoke to the pharmacist and...

Hilooking for advice please. Two weeks ago I was put on 20mg Methatrexate for Sj...

Den73

•8 months ago

18 Replies

Blueberry keto cake

This is one of the low carb cakes that Fran posted last week. It is surprisingly good! https://girleatsworld.co.uk/keto-cake/

This is one of the low carb cakes that Fran posted last week. It is surprisingly...

Sharitone

•8 months ago

5 Replies

Any others besides me 55 and younger?

I was “finally” diagnosed with PMR (2 yr journey) at 54 yrs old. I just turned 55 and know this is unusual to contract at younger age. I’m wondering how many...

I was “finally” diagnosed with PMR (2 yr journey) at 54 yrs old. I just turned 5...

Kberly

•8 months ago

14 Replies

Pred timing

Hello again lovely people, I'm seeking clarification.... in my ( sometimes questionable) memory, it is best to take pred, with food, at around 6.00 am, to be...

Hello again lovely people, I'm seeking clarification.... in my ( sometimes quest...

Ann1A

•8 months ago

9 Replies

hair loss during treatment

morning folks , Just read various posts about hair loss , so on that theme … Wondering if anyone out there has a recommendation for particular shampoos whilst...

morning folks , Just read various posts about hair loss , so on that theme … Wo...

Pastamama

•8 months ago

32 Replies

Hello

Hello. I think I’m about three years roughly into my PMR journey and what a journey it’s been. Throughout most of this time, I’ve been unable to take Pred...

Hello. I think I’m about three years roughly into my PMR journey and what a jo...

Bramble2000

•8 months ago

26 Replies

Schedule

After a couple of years at 4.5 mg, the pain came back. I finally relented and went to my rheumatologist. This has been my schedule: 7 days at 15 mg (felt...

After a couple of years at 4.5 mg, the pain came back. I finally relented and we...

Maggieart

•8 months ago

7 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for March 2024

Flare but wasn't

normal blood results

Bone Density

Tapering

Old Posts

trigger point injections

Weight loss

Headaches

What exclusionary tests should I ask my doctor for? IL-6 inflammation tests? + other random PMR questions

Chest pain

upper back ache

Slow tapering

Cortisal test

Stress

Unsure how to proceed after flare continues

Nuffield Health Joint Pain Program

After PMR---energy and strength

5mg reduction in prednisone a day!

Tired weak hips when walking - is it still Pmr

Headaches!

Tooth pulled, then dizzy

prescribed Prednisalone. 15 mg but really worried by potential side effects. Would really appreciate advice, reassurance etc.

SAVED POSTS

Methatrexate/hydroxychloroquine

Blueberry keto cake

Any others besides me 55 and younger?

Pred timing

hair loss during treatment

Hello

Schedule

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Pinned Posts

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