night sweats

[scooby96]

does anyone with polymyalgia experience night sweats? Im not on steroids at the moment

[Rebsy]

I had night sweats, malaise and low grade fever before my Pmr diagnosis - common symptoms and very annoying . I still got them for a while after being on prednisolone. I haven’t had them for a while so I presume my Pmr is under control?? My consultant always asks if I am experiencing night sweats but I’ve never asked why! Maybe it means the Pmr is active and inflammation high? ( currently on 8mg pred and methotrexate)

[scooby96 in reply to Rebsy]

Hi thanks for the reply, I gather from your experience they can be associated. Im back for blood tests on Monday although GP not keen for me to be back on Prednisone : (

[DorsetLady PMRGCAuk volunteer in reply to Rebsy]

Maybe it means the Pmr is active and inflammation high?

Yes - and many say it happens when they flare. But night sweats can be a sign of many things… your consultant seems more concerned than many others on here. 😊

[piglette]

I started getting sweats pretty soon after starting steroids but they stopped when I was on 10mg.

[DorsetLady PMRGCAuk volunteer]

Sweats are listed as a symptom - some get it more seriously than others. Many on here also say for them say it’s a sign of a flare.

[PMRpro Ambassador]

Yes - I had night sweats long before pred. They are more common with GCA but do happen with PMR as well.

But as already mentioned, they CAN be a symptom of many things, Some nasty. So they do need keeping an eye on and notice taken of any other seemingly random symptoms.

[Everett19]

Have night sweats virtually every night. Wake up drenched. Generally do not feel the cold and do get sweaty during the day sometimes for no obvious reason. Had full MOT of tests and there doesn't appear to be any underlying reason thankfully.

[Daffodilia]

I had night sweats before started prednisolone

[Pixix]

sweats were a symptom before diagnosis for me. Water pouring out like a tap turned on! Use to walk round with a towel round my shoulders! Then night sweats since I was on pred. Now the day time sweats are the first warning of a flareup for me…but we are all different!

[Miacaro45]

I had night sweats while being on major amounts of Prednisone. It made up for the night sweats that I never had during menopause.

[Broseley]

When I was at the peak of symptoms of GCA and PMR before diagnosis and pred, I actually felt cold in bed. Very unusual for me, as I'm usually too hot!

[PMRpro Ambassador in reply to Broseley]

I alternated!

[Missus835]

I am currently experiencing soaking night sweats. I don't feel hot and the room is cold. Everything is soaked. Been on Pred 2 years. I'm now at 12 mg. after rhemy has me on a fast taper. I had sweats at the beginning, but they stopped, only to return now with sore upper arms, shoulders, neck, shakiness, rubbery legs. I believe I could be flaring or because of a huge weight loss, possibly GCA. Got fobbed off by the Rheumatolgy Nursing Line. Going to have a long talk with GP asap.

[krillemy]

Yes - I get I had sweats and low grade fever when not on Pred, and before treamtment. have to get up and change everything....

[AtopicGuy]

Roughly once a month or two (I'm male, BTW). Some times I could literally wring out my pyjamas. They don't correlate with my other symptoms, so I assume my body is using heat to fight off a minor infection.

[Cubanurse49]

I am also off steroids, on Actemra, and have night sweats.

[tangocharlie]

I think there can be many reasons for night sweats so I'd make a note of when they happen so if thigs get worse you can tell your doctors. Docs would much rather hear soemthing like 'I've been having a few sweats a wee'k than for someone to say 'I sometimes wake up in a sweat'. One thing life has taught me as I've got older is keep notes when I comes to medical thngs and symptoms, it all goes down in the diary in case a pattern emerges. It also helps when the doctor says how long has it been happening and I can look back

[Chiqui1950]

Dear Scooby96, I had night sweats for quite a while--- but they did not affect my day or my taper---- they seem to be gone now---- I am glad---