Welcome to our new members - March 2024

[Fran_Benson]

Hello and welcome to all our new forum members.

We hope you've had a chance to look around and find answers to your questions. Here's a quick guide to get you up and running and a couple of key housekeeping rules to help you and the rest of the community.

1. Fill out your profile - let us know whether you have PMR or GCA (or both), how long you've been diagnosed, what gender you are, what country you're based in - these are the basics, do tell us any other relevant details. (And message to the longer standing members - if you haven't filled out your profile or it's out of date, please fill it in or update it now - thank you.) If you’re not sure what to put in your profile, please take a look at Mrs Nails’ healthunlocked.com/user/Mrs... and Dorset Lady’s healthunlocked.com/user/Dor...

2. Got a question? Before you post, check out the FAQs. You'll often find the question you want to ask has already been asked and there will be lots of replies to browse through. It's in the pinned post section or you can find it here healthunlocked.com/pmrgcauk...

3. Remember that we are not doctors and that no advice or information you read here should replace the advice given to you by your own clinician. If you are worried about your symptoms, do consult your doctor.

4. Read our guidelines so you know the rules. In short, show respect to your fellow members, no spamming (promoting products or services), if you post details of treatment etc please provide links to the research. No political posts and no covid related posts unless they are to do with PMR or GCA. If you are concerned about someone's post or reply, simply use the report function beneath the post. Here is a link to our guidelines in full:

healthunlocked.com/pmrgcauk...

5. Finally, this forum is one of the many services that we, PMRGCAuk, provide to support people with PMR and GCA. Please consider joining the charity to help support us or make a donation.

pmrgca.org.uk/how-to-help/b...

pmrgca.org.uk/how-to-help/d...

Thank you

The team at PMRGCAuk

[Dresdenplate]

how do I fill in my profile?

[DorsetLady PMRGCAuk volunteer in reply to Dresdenplate]

See this -

healthunlocked.com/pmrgcauk...

[Dresdenplate in reply to DorsetLady]

Thank you. I have now written my profile

[DorsetLady PMRGCAuk volunteer in reply to Dresdenplate]

That’s very helpful, thank you.

Had you contacted as at the beginning we could have given advice on tapering, time to take Adcal, bloodshot eyes etc. As for cramps, try magnesium - I found spray or cream better than supplements - they can act a bit like a laxative. See this post-

healthunlocked.com/pmrgcauk...

If you haven’t read this, please do… and also have a browse through the FAQs…

healthunlocked.com/pmrgcauk...

[Dresdenplate in reply to DorsetLady]

Thank you so much. I would like to print this information so please can you send it to me as a word document or PDF , in your own time!

[DorsetLady PMRGCAuk volunteer in reply to Dresdenplate]

Will do later today - but I need your email address [via Chat not on open forum] … if you have a problem, I’ll contact you..

[Dresdenplate in reply to DorsetLady]

I’ve tried to see where to send you a private message on chat as you suggested. I thought it was private if you just replied to you.

Please can you help me again?

[DorsetLady PMRGCAuk volunteer in reply to Dresdenplate]

Chat is private .Just tap my picture - it takes you to my profile - and then select Chat… new page - and away you go..