Food diary....... : HI everyone....I'm planning to... - PMRGCAuk

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Food diary.......

Tescohednesford profile image
73 Replies

HI everyone....I'm planning to do a food diary as I've read on here that the correct food could help....but because I'm on steroids 15mg a day.... would it make any difference as the steroids are doing their job and keeping the pain at bay Any tips for crippling insomnia.....

I went to bed at 11pm finished off a David Baldacci novel till 2.30.....syill looking at the clock at 5am.

Fingers crossed... someone out there has a couple of answers...

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Tescohednesford profile image
Tescohednesford
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DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Sleep -

Have a look at this link - plus you’ll also see reflated posts -

healthunlocked.com/pmrgcauk...

A food diary is good - and what do you mean “correct food” - main recommendation is to cut out carbs.

Tescohednesford profile image
Tescohednesford in reply to DorsetLady

Hi Dorset Lady...I already don't eat white bread....well I try not to eat bread or potato at all .....Plenty of veg and meat and fish...

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply to Tescohednesford

Okay… well you are already on the way..

PMRpro profile image
PMRproAmbassador in reply to Tescohednesford

Unfortunately bread is bread is carb - colour is immaterial! All root veg are dodgy ...

PMRpro profile image
PMRproAmbassador

The steroids are combatting inflammation - but if there is a food intolerance that is not that likely to be affected by diet. Allergy possibly - but they are different things.

There are a lot of claims across the internet about foods affecting PMR and other disorders but there are no catch-all foods to avoid. Different people have problems with different foods so a food diary with dose and symptoms listed makes more sense. But eliminating whole food groups such as gluten or nightshade vegetables is taking a sledgehammer to crack a nut.

Tescohednesford profile image
Tescohednesford in reply to PMRpro

Thank you lovely...

Tescohednesford profile image
Tescohednesford in reply to PMRpro

Well I never had a problem before I had this PMR.....I do suffer from eczema and hay fever...also asthmatic but all very well under control..

PMRpro profile image
PMRproAmbassador in reply to Tescohednesford

Didn't say it wasn't PMR causing a problem - several of us developed allergies, mine was to the structure of starch in wheat for example. It was thought to be part of the autoimmune part of PMR. I reacted to wheat starch - not gluten, in the UK Juvela gluten-free products were also made from a gluten-free wheat starch and I reacted to it. But could eat spelt, kamut, barley and rye. If I'd assumed it was gluten my diet would be more boring. What I'm saying is that everyone is different - in the case of nightshade veggies, you might not be able to eat aubergines but tomatoes are fine, or the other way round. Only you can identify what doesn't agree with you. At higher doses of pred you may not notice but it reappears as you reduce the dose. Now I am on Actemra I can eat everything again without a problem.

piglette profile image
piglette

I became a nutrition nerd when I got diagnosed with PMR. I use My Net Diary mynetdiary.com which is free for the basic version apart from calories it tells you the amount of vitamins etc you have missed out on. It is also useful in planning your menus and shopping list I find.

Tescohednesford profile image
Tescohednesford in reply to piglette

Thank you lovely....how did you work out what you needed?....was there somewhere that explained what we need daily with suffering with PMR?

SnazzyD profile image
SnazzyD in reply to Tescohednesford

The main vitamins to think about when on Pred are vitamin D (supplements usually needed) and vitamin K2 (not just K) to help with absorption of calcium and getting it to the bones that need help with Pred. Until you get to low doses you need to keep up potassium ( food not pills) because Pred depletes it whilst it bumps up sodium and for that you lower salt. I had to be gluten free before so I took a vitamin B supplement. You need decent amount of protein because Pred makes you lose muscle. Lowering carbs a lot is about the Pred making your blood sugar spike up so you need to not add more glucose forming foods. This avoids weight gain and hopefully diabetes too. To keep my weight down I had to cut out all bread, pasta, rice, potato and flours. We are all different in how much we need to cut and the higher your dose of Pred the more strict you need to be. I didn’t worry about fats but made sure I ate lean meat and had mostly olive oil or butter.

piglette profile image
piglette in reply to Tescohednesford

I always cook from scratch and in general do not snack. I tried to reduce simple carbs in my diet and I had been told gluten gave you a moonface, so I tried to drop gluten too. I am very against the idea of making things look like something else, when they are not. There are so many dishes pretending to be based on meat which are not. I think one should show off the ingredients not pretend they are something else. I do read an awful lot of books on nutrition. I do not agree with some of what they say though. The trouble is a healthy diet changes, based on recent research, such as the anti egg attitude in the last century.

HeronNS profile image
HeronNS

I cut out most carbs, not root vegetables as my problem was I'd become too thin when not diagnosed, but virtually all grains, except small helpings of brown rice and the very occasional bowl of rolled oats. I was shocked to realize how much wheat I'd been eating! I do think it made me feel a bit better generally as I switched from a high carb breakfast to a high protein one, and have continued that for almost nine years. I eat more bread, grain or potatoes, but not nearly as much as I used to, and as we discovered we actually like pasta made from rice we continue to use that. It was probably halfway through my now 9-yr journey on pred that I reintroduced these carbs as pred dose was very low and I was doing well. But to this day if I have too much wheat I feel bloated and burp a lot! So I can have pizza on a given day, but if I also eat cake or cookies or scones (this can happen at the home of one of my sons) I'm uncomfortable afterwards. I have tended to run somewhat high blood sugar, although it seems to be at a stable level, not increasing, so that is another thing to bear in mind - pred-induced diabetes, which restricting carbs really can help avoid.

musicalJ profile image
musicalJ in reply to HeronNS

I keep experimenting with breakfast to try and make it higher in protein and lower in carbohydrate. The most successful thing I've found to replace some of the carbohydrate is steamed fish plus green beans, but I don't want this every day so have it twice a week. What sort of things do you have for a high protein breakfast?

HeronNS profile image
HeronNS in reply to musicalJ

Fruit (banana usually) with plain yoghurt, recently Greek yoghurt which I really only learned to like last summer, and two scrambled eggs (scrambled with salt and about tbsp of milk and cooked with olive oil in a well-conditioned cast iron frying pan). I used to have an orange and 1/3 c. pumpkin seeds (high in protein and good iron source) instead of the banana and yoghurt but when I had a gum graft last summer couldn't manage either the acidic food or the seeds. I like this better, and now that my mouth is back to normal have my pumpkin seeds and citrus at lunchtime. Have never missed my former bowl of cereal! Also, of course, a mug of tea with milk. Can't imagine preparing a fish meal for breakfast, but sounds nice for supper. 😋

PMRpro profile image
PMRproAmbassador in reply to HeronNS

Nothing nicer than smoked haddock and a poached egg. Unless maybe scrambled egg with smoked salmon ...

HeronNS profile image
HeronNS in reply to PMRpro

For many years I used to make a scrambled eggs with shrimp (and green onions and a drop of sherry) dish on Christmas morning. Cookbook claimed it was a Chinese recipe, but I don't know, delicious neverthless. Used to spend ages seeking out shrimp caught more or less locally (New Brunswick), not coming from a destroyed mangrove forest far away.

musicalJ profile image
musicalJ in reply to HeronNS

Thanks to HeronNS and Tescohednesford for your suggestions regarding protein. I have been having eggs for breakfast, but had not thought of having 2 - I tend to add some cottage cheese to bulk up the protein. It had never occurred to me to combine sardines with egg, although I eat both.

Tescohednesford profile image
Tescohednesford in reply to musicalJ

I had that for lunch.... really lovely...

Tescohednesford profile image
Tescohednesford in reply to musicalJ

I don't eat any breakfast....But lunch I will have boiled egg with sardines (tinned in oil) and a salad.

An orange in the afternoon then chicken with vegetables... Selection of dark green cabbage,lake, broccoli,cauli carrots...then I have handful of almonds as a snack...

I try to drink 2/3 litres of water a day and I drink 3 cups of coffee a day!!

I don't eat beef but will have pork and eat mackerel couple times a week..

Polygolfer profile image
Polygolfer

The steroids you take are powerful drugs that will make you feel better but the drugs are not resolving or ‘curing’ the cause for your immune malfunction. They just buy you time, and in many cases that is what your body needs, in other cases it does not resolve the underlining issues. Whether your immune problems originate in the gut or not is anyone’s guess. But eating healthily by avoiding ultra processed foods (interminable number of books, articles, research papers, Tim Spector etc. available for those interested), being sensible with alcohol, exercising within what your body can take, will not harm you. But it will take months, maybe years, to recover and gut micro biome that has been mistreated for years and years, so don’t expect instant an instant response. Drugs give you that, living and eating healthily is for long term well being. I had trouble with my sleep (and many other downsides) with steroids, so as you start reducing your dose, things may start improving. Good luck!

Tescohednesford profile image
Tescohednesford in reply to Polygolfer

My PMR happened because of Trauma...I fell and damaged tendons in shoulder and fractured my hand....

8 weeks later I slipped and fractured my ankle...when I recovered I decided to do some chair exercises and damaged my hip....that was enough apparently for my body to say ..that's enough!

Also I have been under quite a lot of stress and it all took its toll....

HeronNS profile image
HeronNS in reply to Tescohednesford

Apparently my PMR asserted itself after I had a fracture, plus a lot of stress. But it took about 14 months to get a doctor competent enough (at one glance I think) to diagnose it! Don't think the fracture was actually a fragility fracture, but it was certainly enough to make me pay serious attention once I was finally on pred. Must be thankful for small mercies!

Tescohednesford profile image
Tescohednesford in reply to HeronNS

The first Dr I saw....gave me a series of exercises.....When I looked at him with disbelief and an incredulous stare....I said "what do you think this is"

He responded....no my dear what do you think it is..

PMR! The girdling of pain in hips, groin shoulders and neck...

The Dr jumped on his pc..and said oh let's do emergency blood work....

If I hadn't have been so angry and in so much pain...I'd have probably crawled away and carried on until I collapsed...

HeronNS profile image
HeronNS in reply to Tescohednesford

My doctor who had replaced my newly retired GP (he left literally a few days before I broke my leg and became a more interesting patient) just kept prescribing heavy duty painkillers, which I wouldn't take because I was already into checking everything on the internet! I think she thought I was just a hypochondriac old woman. Thankfully she left.

These days i confess to looking back on the early years with pred with some nostalgia because I felt so well then, other aging conditions hadn't started rearing their ugly heads! It's very hard work being old, never mind trying to do things while old! 😂

Tescohednesford profile image
Tescohednesford in reply to HeronNS

Oh bless you lovely...I've never felt old (71 this May) until I developed this PMR..

Very active....

Now I feel so blasted lethargic all the time....

HeronNS profile image
HeronNS in reply to Tescohednesford

I'd just turned 68 when finally diagnosed and with pred I regained all my energy, still felt young. But I'll be 77 this year and in the last few years have managed to collect a few more health issues, notably a "tired" heart. Still waiting to see a cardiologist (about 16 months since referral made) and to do a stress test, but an echocardiogram late 2022 showed not just aortic regurgitation but apparently all areas of the heart not quite up to scratch! I don't think there's anything that can be done about that but I'd like to know more about where I actually stand. Kind of hope the heart takes me out before something else nastier comes along, but not in a hurry. Would like to live long enough for my very young grandchildren to remember me. I definitely feel old now, and sometimes think it would almost be easy to just slip away, a very strange sensation....

As for feeling lethargic, that is often something which occurs at various dose levels, which will vary depending on the individual's own response to pred. When I was on 4 mg I felt like I was walking through water, just felt like my legs were so heavy! The "deathly fatigue" stage. But that passes eventually. It's probably the adrenals resisting waking up.

Trulyscrumpious profile image
Trulyscrumpious in reply to Tescohednesford

That’s interesting because l have always suspected that l got PMR, from the trauma of an extremely painful hip replacement, which went wrong. That was 8 years ago and l still have mobility problems.

HeronNS profile image
HeronNS in reply to Trulyscrumpious

PMRpro has said that something like a fracture can trigger PMR. Last straw on top of other stresses I guess. I hadn't realized how soon after the fracture symptoms had developed which were serious enough I had a cervical spine x-ray only a couple of months after the fracture - just discovered a copy of the report. Thought it had been much later.

Tescohednesford profile image
Tescohednesford in reply to Trulyscrumpious

My hip is still painful....The physio wondered if I had some arthritis....

So I'm going to ask the Dr if he will send me for x-ray or ultrasound....

If it is my hip then problem is never going to go ......just keep recurring.

HeronNS profile image
HeronNS in reply to Tescohednesford

If they can determine what is the most likely cause of the ongoing pain maybe a physiotherapist would be able to help you. Good luck! 🍀

Tescohednesford profile image
Tescohednesford in reply to HeronNS

I'm seeing a physio...that came about from my original fall where I fractured my hand and damaged tendons in my shoulder...He was the one who told me that original fall (trip up a step) sober btw.. 😂

Probably started up the body reacting ...I haven't seen the Dr F2F yet until this week...

Paulagcl profile image
Paulagcl

I try to follow an anti-inflammatory diet as much as I can. At the very least I imagine it might support the medication and not work against it. Main recommendation is cutting down on carbs, red meat, processed foods, sugar, saturated fat and instead eating a lot of vegetables, Omega 3 foods and olive oil and so forth (like the Mediterranean diet). There are a lot of internet articles about that kind of diet, and the website for one med I'm on, Kevzara, recommends it, so that for me validates it.

HeronNS profile image
HeronNS in reply to Paulagcl

My cousin sent me a memoir, Bella Figura, in which the author, who has moved to Italy, starts consuming four tablespoons of olive oil every day. Interestingly, she'd been a bit heavy, and by eating the Mediterranean way she lost weight and her spotty skin cleared up.

random901 profile image
random901

Hi Tescohednesford! My diet is hampered by my inability to digest high fibre (insoluble) foods such as wholegrain, sweetcorn and greens such as kale. Nevertheless, I find that baking with gluten-free flour, pasta, couscous etc, and eating sourdough bread, really helps. If I give up carbs entirely my already-depleted energy becomes non-existent!

HeronNS profile image
HeronNS in reply to random901

I think sourdough does seem more digestible, as are some of the ancient grains like spelt. Even though I think farmers have resisted introducing GM wheat per se, over the years the wheat we eat today has become much harder on our system.

sewinggranny profile image
sewinggranny

Hi Tescohednesford, I sympathise with the insomnia. I'm reading till 1 or 2am most nights then sleep for about 4 hours, I'm currently on 5.5 mgs of prednisolone. I've tried the usual things like limiting screen time, not eating late at night and having a regular night time routine. The only tip I can suggest is using a lavender pillow spray, which helps with relaxation.

I've got a face to face appointment with the GP at the end of the month to discuss the insomnia, I don't want to take sleeping tablets, I'm trying to reduce all the medication not add something else .

Tescohednesford profile image
Tescohednesford in reply to sewinggranny

Hi lovely....just an update...Dr has now decided he's tapering my Pred to quickly...so l have to drop it by 1mg ...it's been dropping by 10mg. And now he's given my omeprazol for my reflux.He's given my sleeping tabs for 3wks and then take it from there.

I'm happiest with the sleeping tablets as i don't think i can go on....my eyes are on my cheeks....

Hope you get on with your Dr and he's as helpful as mine...

Animalover65 profile image
Animalover65

Hi, I think small regular meals are helpful. I also found bulgar wheat ( in not over large portions) a good substitute for potatoes. Fermented foods like plain yogart are good. I also substituted sauces and gravy granules for Miso. We are all slightly different, I think I have always been sensitive to changes in blood sugar levels and find even after stopping pred for 3 months I still need to be careful about what and how I eat. Have also substituted milk chocolate for organic dark chocolate with ginger - feel better on it but its not such fun!😊

PMRpro profile image
PMRproAmbassador in reply to Animalover65

But why would you substitute wheat for potatoes?

Animalover65 profile image
Animalover65 in reply to PMRpro

In various places I researched diet I am sure Bulgar wheat was recommeded as less likely to spike blood sugars. Cant think of the word something quotient

PMRpro profile image
PMRproAmbassador in reply to Animalover65

It probably doesn't, it is made from whole wheat. But it is still carbohydrate and in the context of a low carb diet, it is still a problem. Do you mean glycaemic index? That just means it takes longer to digest and absorb so the glucose gets into the blood much more slowly and over a long time rather than as a sudden spike. But the same sort of amount altogether gets through.

Animalover65 profile image
Animalover65 in reply to PMRpro

Yes glycaemic index that's the one! 😊 I think I am quite sensitive to sugar spikes so had some blood tests recently and waiting to get results. I had a quick look at prediabetes and diet and I think it was suggested that some carbs are OK but need to be limited.

Animalover65 profile image
Animalover65 in reply to PMRpro

The prediabetes recommendation was about sticking to a limit of a certain number of slices of wholemeal bread- but I realise that does not apply to those who cannot eat wholemeal bread.

PMRpro profile image
PMRproAmbassador in reply to Animalover65

That is really old advice which has been superceded by acknowledgement that if the problem is caused by carbohydrate, then you need to reduce the amount of carbohydrate in the patient's diet. Carbs are carbs - whether they are released slowly or quickly. In the context of carbs and pred, cutting any carbs is important.

Animalover65 profile image
Animalover65 in reply to PMRpro

OK thank you, I will have a close look at this. I am not on Pred any longer but something seems to need adjusting.

bussell profile image
bussell

Picking up on your point about insomnia. I felt better about it once I decided not to worry but just to catch up with a snooze whenever I felt I could. Have been known to drop off while doing my online grocery order! As the dose went down my sleep improved. More energy, more exercise, more tired, more sleep! Be patient, good luck!

Gimme profile image
Gimme

I follow what I would term a loosely anti inflammatory diet. Plenty of oily fish and green leafy veg, only use olive oil, no seed oils, no ultra processed foods, no processed meats, no foods that contain added sugar, limit white starchy carbs and saturated fats, and don't overdo it on wine (one of my vices). I also try to include some specific foods that are said to be anti-inflammatory, such as walnuts, tomatoes etc. Though limiting the fats and carbs is more to do with weight control and not wanting to get diabetes. I don't make myself miserable over it, because I think it is also important to be happy, so I have occasional treats, and if I really want to eat something, then I do. You are much more likely to stick to something that doesn't leave you with a sense of deprivation.

As has been pointed out already, I am not convinced that diet makes a huge difference to the PMR, unless you have a specific intolerance, though I do think that avoiding processed foods is a good move. However, I do think that it is important to eat a healthy and varied diet; PMR is a nasty illness and being on pred is no picnic (if you will excuse the pun), so getting all the nutrients that you need to help your body be as healthy is possible can only be a good thing. Others have already mentioned the importance of Vitamin D and calcium, which I take, and I also take a B complex supplement, as I do no eat grains.

That said, I have a fairly acute reaction if I lapse on the sugar or salty high carb snacks like Doritos and crisps (my other vice). I feel terrible the next day and my aches and pains come back. I am also wheat intolerant and possibly an undiagnosed celiac. Wheat caused PMR like symptoms, long before my PMR diagnosis, and I have followed a gluten free diet for almost 20 years now. I really know if I accidentally eat wheat and I even knew when they changed my brand of pred to one containing a tiny amount of wheat starch. But those things are just me, and may not be the same for someone else.

I would encourage anyone who suspects that foods have a part to play in a chronic illness, to keep a food diary. Though I am like pmrpro, I am very suspicious of any diets that recommend cutting out whole food groups and if you are looking at anti inflammatory diets, be aware that some of the recommendations are positively cranky and have no basis in actual science. For most people, I would advise eating for good health, and focus on balance and variety. Everything in moderation.

Freshairfiend profile image
Freshairfiend

hi Tescohednesford,

I have enough material on diet and insomnia to keep you awake all night!

Here are my highlights. I’ll DM you a resource list recently compiled for our local group…:

Diet : MichealMosleys Blood sugar diet, I lost three stone six years ago and have kept it off just by sticking to my maintenance diet. I’ve had to be more careful since PMR diagnosis in November, as I can’t exercise as much. A slice of spelt and rye sourdough twice this week, has helped me gain a pound or so, but I can lose that easily with care.

thebloodsugardiet.com/how-i...

For insomnia, so many ideas, you have to find what works for you. I recently spent a week moving furniture in the night whilst decluttering. I got sciatica, which virtually went after two weeks, but I probably made symptoms worse by not resting patiently. The house looks and feels much better though! I now rest in bed, occasionally getting up for hot drink and I listen to lots of meditations for rest, relaxation, patience etc… I am sleeping better now on slightly reduced preds and getting very tired during the day. I lie down in the day but don’t take a nap now, unless I just drop off, a I did yesterday during an online mediation course! Some sleep researchers have found that rest is as good as sleep.

Michael Mosley also has a wonderful series on radio 4 called Just one Thing. There is a special on inflammation and one on sleep. Really good stuff for PMR people. Includes diet and inflammation research and sleep research. He’s also got one on kindness and that reduces inflammation markers too!:

bbc.co.uk/programmes/p09by3yy

Other ideas discussed at our local group include the Zoe app, expensive but monitors sugar spikes, exercise etc. a friend uses it to discover the best food combinations to avoid spikes.

Also meditation, which helps with general well-being, but also with comfort eating. You’ll see in the blood sugar diet that MM ephahsises diet, exercise and meditation. The inflammation special has research about moving around once an hour to lower inflammatory markers, so just by going to the loo every hour can help, especially if exercise is a no no at present.

Told you there was a lot!

All the best.

Tescohednesford profile image
Tescohednesford in reply to Freshairfiend

Hi lovely ...I'm a fan of Michael Moseley and have his books on 5:2, intermittent fasting and recipes... So on a daily basis was aiming for very low carb....I have never had any reaction to food or any intolerance....

It was just something I thought...if I keep a diary would it help?

Then if I'm taking Pred would I notice as the meds should keep any pain at a low...

My hubby says I over think things...

But I just like to know...

Then when I read all these answers I realise no one is ever the same.

Thank you for taking the time...I will go thru your msg again and read the off site mgs....

PMRpro profile image
PMRproAmbassador in reply to Tescohednesford

"if I'm taking Pred would I notice as the meds should keep any pain at a low"

If the dietary approach helps - you may be able to get to a lower dose or taper more easily. It isn;t just something to be measured by pain levels.

Freshairfiend profile image
Freshairfiend

why not keep a diary? It’ll keep you occupied and you may notice some correlations. I keep a note of my symptoms every day. I’ve linked them to overdoing it ( which includes standing up for too long in the kitchen) and time of dosage.

My partner is fed up of me talking about PMR, so was very glad when the local group started!

Perhaps your hubby is saying you overthink too much, because he doesn’t want you to keep talking about it.?! If you agree with him, then Meditations will help with letting go, I find, as I can get obsessive.

Glad you like MM, or St Michael as he’s sometimes called in this house!

All the best.

Ps partner likes him, fortunately, as he lost weight on the diet with me and keeps to the maintenance diet with me, except for the odd baked potato and a beer virtually every night….! He can do loads more exercise than me, so keeps his weight down, but has put on about half a stone over the six years.

Wizards profile image
Wizards

Hi there Many people have given great info on food so I'll talk sleep.

I too became an insomniac and to be truthful my sleep prior was not the best.

My GP put me on the strongest sleeping pill going and it helped and fortunately I live in Canada so it's supplemented with thc&cbd. Between the 2 I can get 6 hrs up to 7. Each alone 3 hrs.

We're all different so definitely speak with your Dr.

As for food, from day one I clamped down and I was one of the unlucky ones that gained no matter what. 9 years later I started loosing it when I got to lower doses and then off.

Best of luck. You found a great site.

sewingdays profile image
sewingdays

Hi Tescohednesford. I can’t comment on diet but have you tried a weighted blanket for the insomnia? My daughter bought me a 9kg one when I was first diagnosed with pmr and couldn’t sleep but I find it too heavy but I have used it a few times when I am still awake in the small hours and have fallen asleep quite quickly after putting it over myself. I am 67 & weight 12 stone - sorry I don’t know that in kgs - so maybe a lighter one would have been better for me. Anyway just a suggestion as like you I know what it’s like to not be able to sleep. Good luck & best wishes.

Tescohednesford profile image
Tescohednesford in reply to sewingdays

HI ...I only weight 9st...So I will look at a weighted blanket but after what you have said I will look at a lighter one...

Thank you.

VOTSODsurvivor profile image
VOTSODsurvivor

Just a quick note of what has been helping me. I switched to a modified keto diet that limits net carbs but does not eliminate them. It is fine to eat fats and proteins, but it wasn't until I started tracking my food with cronometer (cronometer.com) that my eyes were really opened. I've been able to monitor my sodium and sugar and as a result I am completely off all my diabetes meds and stay in normal BG ranges consistently. My blood pressure has drastically normalized whereas before I could rarely get normal reading even with lots of meds. And, to my delight, I've lost 27 pounds since Christmas. My advice is to get a quality food tracker and use it meticulously. Then make the changes to your diet that best achieve your goals.

Tescohednesford profile image
Tescohednesford in reply to VOTSODsurvivor

Thank you....I had never heard of Cronometer but I will check it out...

Seekingasolution profile image
Seekingasolution

I changed my diet to mainly plant based which I believe helped me reduce my reliance on steroids when I was at about 5 mgs a day. I have re introduced a bit of fish and occasional chicken as I wondered how wise it was to totally eliminate an entire food group and because it made it tricky when invited to friends houses. I’ve really enjoyed experimenting with vegan food and it has made me feel very much different. I feel happy and healthier. The final 1 mg per day I managed to drop after going back on HRT. But I have developed an intolerance to sugar on an empty stomach. Too big a dollop of honey or marmalade can make me feel fluey within 20 minutes. So now brunch is Greek yoghurt, walnuts and a small amount of honey or smoked salmon and avocado or fruit. I think it’s funny how we now have all these sensitivities. How things have changed since my childhood.

Catseyes235 profile image
Catseyes235

I go with the flow …trying hard to go to sleep is on a hiding to nothing. Maybe find a less interesting book to read in bed. I used to use The Pschology. of Thinking which I never got too far with. Now my go to is BBC. ISounds. I’m interested in natural history/gardening so listen to the longest one I can find. Or else I have a CD player already loaded with and birds of moorlands and rivers. It’s over an hour and I rarely get to the end!

Latest questionnaire I had for Bio Bank research asked how long I slept which included naps and snoozes! So my total sleep is fine thanks!

Yes occasionally I don’t sleep until 5 - usually if I have to get up for something - but not going to get stressed about it and feel I’m some sort of failure! Good luck…

tangocharlie profile image
tangocharlie

I kept a food diary for years. Got an A5 diary, split each page to 2 columns. on the left wrote everything I ate and on the other side wrote down any reactions. But I was looking for things that triggered my allergies, and found it is was things high in histamines. What is your objective, what is it you want to achieve? to keep carbs low? Eat 30 plants a week? My geenral rule for healthy eating is to have >50g of protein a day, ideally 80-100, and < 50g of carbs a day, ideally nearer to 20g. Avoid sugar and starchy carbs, the 5 beige blighters, bread, rice, pasta, potatoes and sugar. easiest books to read up on are Michael Mosleys's like hte Blood sugar diet, IMO. I also did the Zoe project and have written posts abut it, how the steroids affect blood sugars so what to eat and when to keep weight down. let us know how you get on

Tescohednesford profile image
Tescohednesford in reply to tangocharlie

I will keep doing what I am....so low carb however I'm dropping red meat....massive meat eater.Chicken now my main meat..

The food diary wasn't about weight, because I have only just been diagnosed with PMR...I read on here the food could be a trigger so just thought I would give it a try..... nothing to lose except pain n stiffness....

tangocharlie profile image
tangocharlie in reply to Tescohednesford

I notice I feel rubbsh if I have sugar, especial if it's in the form of bottles of wine. I once did a really strict healthy food eating stint for a few eeks aand felt great, if only I could find the willpower to do it again.

Tescohednesford profile image
Tescohednesford in reply to tangocharlie

Thank goodness I drink GnT...But joking apart I think jotting down every I have .....you never know it may just show something....

If not I've lost nothing.

I tend to intermittent fasting and since I've had this try to leave at least 18hrs between eating...

My son told me this was optimum as at that level your body eliminates (crap) his word from your body....

Watch this space....

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply to tangocharlie

I notice I feel rubbsh if I have sugar, especial if it's in the form of bottles of wine.

Perhaps it’s the bottles -plural! 😊

Tescohednesford profile image
Tescohednesford in reply to DorsetLady

Well at 1am this morning....I was tucking into brandy and diet coke...And that was definitely plural .

😂 😂 😂

PMRpro profile image
PMRproAmbassador in reply to Tescohednesford

Does that class as bingeing ... 😮

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply to PMRpro

No, but it might be bingeing 😳

Tescohednesford profile image
Tescohednesford in reply to DorsetLady

Well technically.....It's oh my.......just give me a break !!

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply to Tescohednesford

🤣😂

Tescohednesford profile image
Tescohednesford in reply to PMRpro

Hahaha

HeronNS profile image
HeronNS

Don't think anyone mentioned this possible sleep aid. I've been a lifelong intermittent insomniac. Found out quite by accident that a calcium supplement taken with a small snack (a little plain yoghurt maybe) about half an hour, more or less, before bedtime helps me get to sleep and stay asleep. Others have mentioned the same effect from magnesium. My calcium supplement has never been carbonate however, only citrate or hydroxyapatite which are easier on the digestion.

Tescohednesford profile image
Tescohednesford in reply to HeronNS

Oh wow...I will try this.I have been taking calcium but with my lunch or dinner.

Thank you for that tip..

HeronNS profile image
HeronNS in reply to Tescohednesford

I take it twice a day and when I learned not to have it with breakfast (and pred) I switched to lunch and moved the supper dose to bedtime. I think each of my doses is something like 300 mg. Definitely need a little snack with it though; often have just a big tablespoon of plain yoghurt.

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