Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,922 members • 39,411 posts

All posts for December 2023

rheumatology appointment

So I had a rheumatology appointment on Saturday at my local hospital. He is a lovely man but obviously not that informed about PMR. He insisted that if your...

So I had a rheumatology appointment on Saturday at my local hospital. He is a lo...

kentish61

•9 months ago

3 Replies

confused

I’ve managed to reduce to 2mg with 1 mg on alternate days. I haven’t felt particularly tired. Occasionally weepy, wobbly Does this mean my adrenal glands...

I’ve managed to reduce to 2mg with 1 mg on alternate days. I haven’t felt partic...

Ana-16

•9 months ago

19 Replies

New here

I was diagnosed PMR just over 5 weeks ago and put on Pred 15mg. Now am 10 days tapered to 12.5. I can't work out whether the last couple of days or so of pain...

I was diagnosed PMR just over 5 weeks ago and put on Pred 15mg. Now am 10 days ...

Dinahmite

•9 months ago

18 Replies

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ALMOST OFF PREDNISOLONE

Just thought I’d share my story with all you lovely people out there. I was diagnosed with GCA in March 2019 and started the long journey of taking...

Just thought I’d share my story with all you lovely people out there. I was diag...

Bird-67

•9 months ago

41 Replies

Magnesium

Hi.just a question.i was just wondering if I can take magnesium,while taking lefluomide.suppose to take 2 tablets a day.thanks.

Hi.just a question.i was just wondering if I can take magnesium,while taking lef...

Flosy

•9 months ago

1 Reply

Hair loss while tapering Prednisone

Hi. Yet another issue. My hair has started falling out in clumps. I am devastated. I had some loss when I was on Pred at different times over the last 5 years...

Hi. Yet another issue. My hair has started falling out in clumps. I am devastate...

bluegirl7

•9 months ago

8 Replies

I'm curious. Did anyone else in the States participate in the Pillar Advocates Study about GCA?

I did and I found it fascinating and helpful. The primary purpose was regarding support: what support you needed most, where you found it, the importance of...

I did and I found it fascinating and helpful. The primary purpose was regarding...

Grammy80

•9 months ago

8 Replies

signs of adrenals waking up?

i just wanted to know.. if any of you noticed any signs whenyour adrenals finally started waking up? Did you still feel exhausted in the adternoons? Just...

i just wanted to know.. if any of you noticed any signs whenyour adrenals finall...

Saffron2022

•9 months ago

9 Replies

New GCA treatment

Three years since I read everything about PMR and now revisiting everything. Scary. 48 hours since treatment started (60mg) and headaches almost gone and...

Three years since I read everything about PMR and now revisiting everything. Sca...

DogAgilityObsessed

•9 months ago

11 Replies

2 years Pred free

I haven’t posted on the forum for quite some time but I do receive posts and notifications which I read. I’ve noticed that there are quite a number of new...

I haven’t posted on the forum for quite some time but I do receive posts and no...

Liby57

•9 months ago

29 Replies

Regular Check-ups - What should be tested?

Hello All I was diagnnksosed with PMR in June 2022. I have paid for a couple of private Rheumy appointments but am still waiting for my first NHS appointment...

Hello All I was diagnnksosed with PMR in June 2022. I have paid for a couple of...

FleetRose

•9 months ago

10 Replies

A flare or something else

I was diagnosed with PMR in August 2023, and was put on 20 mg prednisone. I've tapered down to 7.5 mg now. A week ago, I snagged my right little toe on a...

I was diagnosed with PMR in August 2023, and was put on 20 mg prednisone. I've t...

MNgirl49

•9 months ago

11 Replies

NHS Rheumatology Appointment

Update on my trials and tribulations regarding a diagnosis for my bilateral shoulder and hip pain...... Still haven't had any treatment or been given any...

Update on my trials and tribulations regarding a diagnosis for my bilateral shou...

Paulx222

•9 months ago

59 Replies

CGA - tapering from 20Mg after 4 weeks.

Hi Warriors. I was diagnosed with CGA end of July 2023. Have tapered down from 60Mg to 20mg. Have been on 20 mg for 4 weeks. I think a very slow taper would...

Hi Warriors. I was diagnosed with CGA end of July 2023. Have tapered down from ...

Groda

•9 months ago

15 Replies

methotrexate

Hi there has anyone tried methotrexate for pmr I have had 4 fare ups in the last 14 months on prednisone as they’re clearly not working for me. My...

Hi there has anyone tried methotrexate for pmr I have had 4 fare ups in the last...

Netball12345

•9 months ago

34 Replies

steroid blue card or new emergency card?

I asked my gp about carrying a steroid card and she’d never issued one before. I’m going to the pharmacy to ask, but wondered if people have views on carrying...

I asked my gp about carrying a steroid card and she’d never issued one before. I...

Freshairfiend

•9 months ago

36 Replies

Smart move or dumb move?

I have finished with PMR (or it has finished with me...probably a year ago although I get the shoulder twinge but who knows what that is. I was meeting some...

I have finished with PMR (or it has finished with me...probably a year ago altho...

whitefishbay

•9 months ago

14 Replies

Tapering Help

As per my previous posts was prescribed Pred in April 22. All symptoms pointed to PMR apart from bloods being on borderline. Reduced gradually to 12 three...

As per my previous posts was prescribed Pred in April 22. All symptoms pointed t...

craighead72

•9 months ago

5 Replies

Severe Upper Inner Thigh Pain

I got out of bed on Thursday morning and once I started walking, my left inner upper thigh - not quite in the groin - began to ache. It continued off and on...

I got out of bed on Thursday morning and once I started walking, my left inner u...

Burroughs123

•9 months ago

5 Replies

Reducing prednisolone with Methotrexate- what happens after?

I am on 7 mg pred for PMR and it just about controls my symptoms though I get quite stiff in my hips and neck. I reduced to 5 mg in early 2022 having met my...

I am on 7 mg pred for PMR and it just about controls my symptoms though I get q...

Smithie49

•9 months ago

6 Replies

Not sure what's gone wrong??

I'm curious to know why I'm experiencing some rather unusual symptoms 22 months in with p.m.r.Recently I have tapered very slowly down to 1mg of prednisone,...

I'm curious to know why I'm experiencing some rather unusual symptoms 22 months ...

Brooklyn747

•9 months ago

11 Replies

update on blood results

Good morning everyone - so referring back to last weeks post my blood tests came back showing raised Neutrophil count 10.2 and my C-reactive protein up at 12 -...

Good morning everyone - so referring back to last weeks post my blood tests came...

Sungolfer

•9 months ago

4 Replies

Finding a new Rhemy in York

I am moving from Guernsey to York next April... House is sold and the move is on... A move that takes us closer to some of our children and grandchildren so...

I am moving from Guernsey to York next April... House is sold and the move is on...

Mamamia21

•9 months ago

21 Replies

Optic nerve narrowing

Hi everyone, I've had PMR & GCA for 16 months. Currently on 15mg prednisone. Stopped Actemra 2 months ago. My eyesight in my left eye has been changing...

Hi everyone, I've had PMR & GCA for 16 months. Currently on 15mg prednisone. S...

potterylady

•9 months ago

22 Replies

I need a new direction!

Greetings, hope everyone had a peaceful Saturday! I am coming up to the end of my 7th year since being diagnosed with GCA. My good Rheumatologist retired 3...

Greetings, hope everyone had a peaceful Saturday! I am coming up to the end of ...

fmkkm

•9 months ago

16 Replies

Brain dead

I’m worried how bad my cognitive function has become under steroids and that it may get worse with struggling adrenal glands as I drop below 10mg. Rational...

I’m worried how bad my cognitive function has become under steroids and that it ...

Body_bonkers

•9 months ago

37 Replies

Pmr or just a sore back?

Been at this for 7 years, a few on 3mg pred, up to 6 last October after my covid vaccine as I was climbing stairs on hands and knees. Started reducing again...

Been at this for 7 years, a few on 3mg pred, up to 6 last October after my covid...

ponai

•9 months ago

3 Replies

flu shot

I got the flu shot a month ago and I can barely move my arm it’s so painful

Joanecindy

•9 months ago

7 Replies

Some concerning information about supplements for rheumatic pain with hidden ingredients

I'm posting this because it addresses something that has been discussed before - patients believing they have found a miracle supplement that is "steroid-free"...

I'm posting this because it addresses something that has been discussed before -...

PMRpro

Ambassador•9 months ago

82 Replies

Losing my hair

Thank you all so much for your posts. Lots of useful info and humour. Loved the Dolly Parton story. I am very grateful to have found people on the same...

Thank you all so much for your posts. Lots of useful info and humour. Loved the ...

bookbear68

•9 months ago

4 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for December 2023

rheumatology appointment

confused

New here

ALMOST OFF PREDNISOLONE

Magnesium

Hair loss while tapering Prednisone

I'm curious. Did anyone else in the States participate in the Pillar Advocates Study about GCA?

signs of adrenals waking up?

New GCA treatment

2 years Pred free

Regular Check-ups - What should be tested?

A flare or something else

NHS Rheumatology Appointment

CGA - tapering from 20Mg after 4 weeks.

methotrexate

steroid blue card or new emergency card?

Smart move or dumb move?

Tapering Help

Severe Upper Inner Thigh Pain

Reducing prednisolone with Methotrexate- what happens after?

Not sure what's gone wrong??

update on blood results

Finding a new Rhemy in York

Optic nerve narrowing

I need a new direction!

Brain dead

Pmr or just a sore back?

flu shot

Some concerning information about supplements for rheumatic pain with hidden ingredients

Losing my hair

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