Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,219 members•40,230 posts

All posts for October 2023

Splitting the dose by a few hours

Hi everyone, This is my second post today. For some reason I am having an uncomfortable stimulant/anxiety reaction each morning when I take my dose. (I am...

Hi everyone, This is my second post today. For some reason I am having an unco...

sferios

•1 year ago

7 Replies

Tapering once you get to 6-7 mg

Hi everyone, I have some specific questions about what to look for when you start tapering below 6.5 mg. I've been alternating 6mg and 7 mg every other day...

Hi everyone, I have some specific questions about what to look for when you sta...

sferios

•1 year ago

48 Replies

shingrix vaccine

Contacted my GP surgery to request my vaccine. The receptionist was adamant I was not eligible. Saying I would get it next year when I am 70. I explained the...

Contacted my GP surgery to request my vaccine. The receptionist was adamant I wa...

DBE46

•1 year ago

30 Replies

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Reducing dose of steroids

After reading posts of anxiety etc. when reducing the dose of steroids I am worried. This is my first day of 12.5 after weeks of 15 mg does anyone have no...

After reading posts of anxiety etc. when reducing the dose of steroids I am worr...

Bulliedog

•1 year ago

9 Replies

Zolendronic Acid Infusions

I know this treatment is for osteoporosis and not PMR but I’ve been offered this treatment as I’m over 65 and I’m on the cusp of being osteopenic and my bone...

I know this treatment is for osteoporosis and not PMR but I’ve been offered this...

Janet57

•1 year ago

9 Replies

PMR for 10 years

I was diagnosed with PMR in Oct 2013. Instant pain relief from pred… and the journey began. I have tapered down to 2 mg numerous times, but always end up...

I was diagnosed with PMR in Oct 2013. Instant pain relief from pred… and the j...

Purplecrow

•1 year ago

10 Replies

Methotrexate not Pred

After a few appointments with Rheumatologist who was adamant I did not have PMR, he agreed to a CT scan with contrast. The result was likely PMR or large...

After a few appointments with Rheumatologist who was adamant I did not have PMR,...

Sl0th

•1 year ago

11 Replies

Use by Dates and Prednisolone

I have a prescription of unopened 1mg gastro-resistant Prednisolone tablets. They've been kept in a cool, dry place but the expiry date is Oct 23. There...

I have a prescription of unopened 1mg gastro-resistant Prednisolone tablets. The...

Kendrew

•1 year ago

25 Replies

Anxiety while tapering

I've been doing a DS taper since April, from 5 and now down to 4mg. I have noticed every time I start a new taper I experience anxiety which comes on about...

I've been doing a DS taper since April, from 5 and now down to 4mg. I have notic...

christi48

•1 year ago

16 Replies

Stopped Actemra, new questions

Hi community, I decided to stop Actemra after 1 year so I am not on so many drugs. I was concerned about the risk of infections, diverticulitis, etc. I...

Hi community, I decided to stop Actemra after 1 year so I am not on so many dr...

potterylady

•1 year ago

29 Replies

Prednisone reduction

After reading so many stories and experiences by people trying to reduce, I feel alittle confused. I started reducing at 25 by 2.5 mg every 2 weeks and my...

After reading so many stories and experiences by people trying to reduce, I feel...

Seal49

•1 year ago

14 Replies

cortisol

hi all , I just had my bloods done and the cortisol is slightly reduced at 239 and she is changing my steroids to hydrocortisone 10mg in the morning 5mg at...

hi all , I just had my bloods done and the cortisol is slightly reduced at 239 a...

Rottsuzi

•1 year ago

21 Replies

Does GCA ever go away or just into remission?

hi. I have GCA but off prednisone since end of June. No flares since. Is GCA gone or once you have it you always have it and I've just been lucky to have no...

hi. I have GCA but off prednisone since end of June. No flares since. Is GCA gon...

Cobalt2sister

•1 year ago

15 Replies

Prednisolone stopped

This is an epic day; my first day with NO PREDNISOLONE after a 5 year journey with PMR. I feel quite nervous and wonder what the next few months will be like....

This is an epic day; my first day with NO PREDNISOLONE after a 5 year journey wi...

Sueloucam

•1 year ago

25 Replies

confused

I’m currently tapering very slowly 1mg every 4 weeks from 20mg. On 18, due to reduce to 17mg next week. I’ve had one thing after another, infections, food...

I’m currently tapering very slowly 1mg every 4 weeks from 20mg. On 18, due to re...

Scarysit

•1 year ago

6 Replies

pain in temple, worried about GCA

Pmr since 2020. 4-5 mgs at present. I have had pain in my head over 3 weeks. Notably on one side over my temple. Headaches are bad but do respond to...

Pmr since 2020. 4-5 mgs at present. I have had pain in my head over 3 weeks. No...

Predderman2020

•1 year ago

7 Replies

Vaccine tomorrow COVID and Flu .

Just wondering,if you do have a reaction to COVID jab, how long does it take before you know you not going to flare, think IAM over thinking xx

Just wondering,if you do have a reaction to COVID jab, how long does it take bef...

Harrywogan

•1 year ago

8 Replies

unexplained lower abdomen infection, increase Prednisone?

I’ve had a sore tender lower abdomen, temperature, shivers since Thursday teatime, which resulted in a trip to A&E (England). Admitted due to high CRP (267...

I’ve had a sore tender lower abdomen, temperature, shivers since Thursday teatim...

AliD23

•1 year ago

11 Replies

Adjusting pred during a stressful week

I don’t often post in the forum, but I always read the daily email and check out any threads that look relevant to me. I just wanted to share my recent...

I don’t often post in the forum, but I always read the daily email and check out...

calibriel

•1 year ago

8 Replies

nausea and fatigue

I have reduced Prednisolone over the last year from 12.5 to 3.5 I am now feeling very tired and nauseous I have been reading about adrenal insufficiency and...

I have reduced Prednisolone over the last year from 12.5 to 3.5 I am now feeli...

Harry8388

•1 year ago

23 Replies

finding FAQ’s

I cannot navigate to FAQ. my sight has become blurred over a couple of days, worse today. No other symptoms. I need to research this!

I cannot navigate to FAQ. my sight has become blurred over a couple of days, wor...

Thiago1396

•1 year ago

10 Replies

My pred experience scares me.

I really need some help understanding what's going on in my body. In late April I had been at 25 mg for a while with mild PMR-like symptoms. Then, one day...

I really need some help understanding what's going on in my body. In late Apri...

sferios

•1 year ago

42 Replies

Dry eyes

Hi helpful warriors I am on 35 mg of pred for next 2 weeks, then tapering to 30. Does pred cause dry eyes? ( did have cataract removal surgery in June of...

Hi helpful warriors I am on 35 mg of pred for next 2 weeks, then tapering to 30...

Groda

•1 year ago

11 Replies

turmeric

Sorry, having trawled through previous posts I didn’t find one on this subject - hence my question . Since posting previous posts on the topic popped up ....

Sorry, having trawled through previous posts I didn’t find one on this subject ...

Booge_15

•1 year ago

1 Reply

Turmeric

I wondered what the thoughts are on taking Turmeric. I had PMR which started in my late 60’s not long after retiring from nursing. I gleaned most of my help...

I wondered what the thoughts are on taking Turmeric. I had PMR which started in ...

Booge_15

•1 year ago

4 Replies

Groin pain

Hi Please can anyone tell me if groin pain is a part of PMR symptoms ? I’ve been getting it and mobility is difficult. Regards Lesley

Hi Please can anyone tell me if groin pain is a part of PMR symptoms ? I’ve ...

TedTheMaineCoon

•1 year ago

15 Replies

depression and itching!!!

woke up in the night itching.. cream helped! But woke up eventually feeling really depressed. Am reluctant to start on another drug.. antidepressant? Am On 3...

woke up in the night itching.. cream helped! But woke up eventually feeling real...

Bedwell

•1 year ago

24 Replies

Sick day rules

What are the sick day rules? I haven't been sick yet but among other things, my doctor hasn't mentioned what to do in this case.

What are the sick day rules? I haven't been sick yet but among other things, my...

Paulagcl

•1 year ago

4 Replies

Tapering

I have been on prednisolone since April 2022 starting at 20mg. Currently on 11mg a day. Have various side effects including weight gain swollen ankles skin...

I have been on prednisolone since April 2022 starting at 20mg. Currently on 11mg...

craighead72

•1 year ago

13 Replies

Possible GCA?

Hi, I’m at my local ER, because for the past 3 or 4 days I have had a chronic headache, severe neck ache and significant fatigue. In addition, my left...

Hi, I’m at my local ER, because for the past 3 or 4 days I have had a chronic h...

Lenore58

•1 year ago

18 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for October 2023

Splitting the dose by a few hours

Tapering once you get to 6-7 mg

shingrix vaccine

Reducing dose of steroids

Zolendronic Acid Infusions

PMR for 10 years

Methotrexate not Pred

Use by Dates and Prednisolone

Anxiety while tapering

Stopped Actemra, new questions

Prednisone reduction

cortisol

Does GCA ever go away or just into remission?

Prednisolone stopped

confused

pain in temple, worried about GCA

Vaccine tomorrow COVID and Flu .

unexplained lower abdomen infection, increase Prednisone?

Adjusting pred during a stressful week

nausea and fatigue

finding FAQ’s

My pred experience scares me.

Dry eyes

turmeric

Turmeric

Groin pain

depression and itching!!!

Sick day rules

Tapering

Possible GCA?

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