confused: I’m currently tapering very slowly 1mg... - PMRGCAuk

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confused

Scarysit profile image
6 Replies

I’m currently tapering very slowly 1mg every 4 weeks from 20mg. On 18, due to reduce to 17mg next week.

I’ve had one thing after another, infections, food poisoning , feel like I have no reserves, running on empty.

Due for revue with GP, is this normal?

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Scarysit profile image
Scarysit
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6 Replies
SnazzyD profile image
SnazzyD

You had Covid a couple of months ago, so it is quite possibly normal. When I got it last year with my husband, we both came down with everything as if our immune system wasn’t doing much. It took 7 months for me to feel anything like normal. I have heard from others directly that they too had no reserves for weeks to months. I have read a number of pieces on the way Covid can knock the immune system for six. You are also on a decent amount of Pred, so that isn’t going to help some aspects of it. On the IndieSage briefing on YouTube it said the numbers of long Covid are not going down even with so called mild Covid. It’s worth going to the GP and it might be useful to have some routine bloods done but don’t be surprised if they just blame Covid. I hope you start to feel better soon.

Scarysit profile image
Scarysit in reply to SnazzyD

Thankyou , I will mention to GP. As you say it may well be covid and Pred combined.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Because your immune system is suppressed by the Pred then infections are very likely….but as SnazzyD has said could be that Covid hangover, whether that be Long Covid or not, is accounting for the ‘running on empty’ feelings.

Scarysit profile image
Scarysit in reply to DorsetLady

Thankyou! Just seems an uphill battle at present.

PMRpro profile image
PMRproAmbassador

Not normal - but in the wake of Covid, to be expected perhaps. Even when Covid is apparently mild - the virus was present in your body and did some damage. How much and what it is impossible to say - except for what you experience. People can feel the effects of viral infections for a long time.

And since I'm not sure you can blame food-poisoning on pred or Covid, that will also have played a role. I had it as a young very fit 21 year old. The effects were gone overnight - I couldn't stand and go to work for a week, and even then was very wobbly and wiped out for longer.

Scarysit profile image
Scarysit in reply to PMRpro

Thankyou, I guess it’s going to be a long slow return to anything like normal, whatever that is!

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