Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,470 members • 38,423 posts

All posts for August 2023

Relapse of GCA and GP reaction.

Rheumatologist signed me back to GP in June, after 3 years, and now believe a relapse of GCA has occurred.. very tender right temple with more numbness than...

Rheumatologist signed me back to GP in June, after 3 years, and now believe a re...

Arnhem

•9 months ago

13 Replies

accidently took only one 1mg pill prednisone yesterday am, felt good all day

This am made sure I took 3mg. I am thinking of trying to alternate at 2 and 3 mg daily now in a few days. I am a tiny bit stiffer feeling this am than usual....

This am made sure I took 3mg. I am thinking of trying to alternate at 2 and 3 mg...

sdowney717

•9 months ago

6 Replies

Wrong pred dose

I’ve been back on 15mg/day for the past two weeks with two to go after a relapse earlier this year. I shall then, hopefully start to taper. Yesterday I took...

I’ve been back on 15mg/day for the past two weeks with two to go after a relapse...

Mervetheswerve

•9 months ago

8 Replies

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travel sickness

I wonder if anyone on here can help. I’m on a Prednisolone reduction programme currently down to 6mg,5mg,5mg,6mg and so forth plus 20mg daily of Omeprazole...

I wonder if anyone on here can help. I’m on a Prednisolone reduction programme ...

Earthangel59

•9 months ago

46 Replies

Unusual bruise on eyelid

Hi allI'm currently on a maintenance dose of 5ng of pred and doing ok no flares and no pain and stiffness. I woke up this morning to find I have a large bruise...

Hi allI'm currently on a maintenance dose of 5ng of pred and doing ok no flares ...

Chriss66

•9 months ago

11 Replies

5 years pred, now osteoporosis,

Hello, I have been taking pred for 5 years now. Down to 2 and a half and doing ok, but just received dexascan results. They indicate significant bone loss...

Hello, I have been taking pred for 5 years now. Down to 2 and a half and doing o...

Chopin002

•9 months ago

9 Replies

Unusual Sleep Cycle and Pred Timing

Hi, and thank you in advance for any advice, and sorry this is so long. I have read that prednisone is best taken with breakfast in the morning - something...

Hi, and thank you in advance for any advice, and sorry this is so long. I have...

msdale

•9 months ago

45 Replies

How painful can PMR get ?

Hi I’ve recently been tapered off steroids . As I was coming off them , the pain gradually returned . I haven’t had any steroids for 2 weeks & im in agony !...

Hi I’ve recently been tapered off steroids . As I was coming off them , the pa...

TedTheMaineCoon

•9 months ago

21 Replies

Enteric coated Prednisolone

Hi all, A quick question please. I am currently down to 1.5mg pred & I spoke with my GP about reducing the dose of Lanzoprazole to 15mg & eventually coming...

Hi all, A quick question please. I am currently down to 1.5mg pred & I spoke w...

Lyndaki

•9 months ago

19 Replies

Omeprazole query

My GP prescribed Omeprazole when I first had pred as I had had a few issues pre PMR with acid reflux. I have no acid reflux at all now. I have found out...

My GP prescribed Omeprazole when I first had pred as I had had a few issues pre ...

Lclmlbls

•9 months ago

30 Replies

Reflux and Omeprazole

After being in recession from PMR/GCA for 7 months but still battling with Acid reflux, with the local surgery only interested in upping or lowering my...

After being in recession from PMR/GCA for 7 months but still battling with Acid...

67Blue

•9 months ago

8 Replies

Cataracts on both eyes, age or Pred or both?

PMR diagnosed beginning May 2023, on 20mg pred, tapering to 15 currently and 12.5 from 1st September in planned. An eye test earlier this month for possible...

PMR diagnosed beginning May 2023, on 20mg pred, tapering to 15 currently and 12...

Thiago1396

•9 months ago

9 Replies

PMR symptoms trumps all other indicators

Following a comprehensive discussion with my GP re my PMR, in which I used advice provided on this forum, I was delighted to obtain considerable understanding...

Following a comprehensive discussion with my GP re my PMR, in which I used advic...

Thiago1396

•9 months ago

8 Replies

Prednisone tapering

I've been tapering off prednisone which initially was 30 mg daily by 1 mg every 3 days on dr's and rheumatologist advice. (Was diagnosed with PMR then changed...

I've been tapering off prednisone which initially was 30 mg daily by 1 mg every ...

Monkey321

•9 months ago

7 Replies

PMR cataract surgery

what has your experience been having pmr and getting cataract surgery?

Hidden

•9 months ago

7 Replies

GCA now TIA, irregular heartbeat

Early August I was diagnosed with a ‘left front ischaemic stroke secondary to new atrial fibrillation…heartbeat irregularly irregular’. It was quite scary as I...

Early August I was diagnosed with a ‘left front ischaemic stroke secondary to ne...

Bluey-1

•9 months ago

30 Replies

Long term use of PPI and increased risk of dementia

In this context , long term is more than 4 years. Here’s the link:...

Exflex

•9 months ago

5 Replies

pains in head

Petros-1931

•9 months ago

14 Replies

methotraxate and adrenal insufficiency

Just a quick question. Does Methotrexate have any effect on the adrenals. I just saw my rheumatologist who suggested I could drop from 8 to 5 mgs pred...

Just a quick question. Does Methotrexate have any effect on the adrenals. I just...

bBarnabus

•9 months ago

11 Replies

Another update !

Just heard I have an appointment for my hip to be done .29th September !!!Fingers crossed .Thanks for all you kind replies to my previous post.Best wishes...

Just heard I have an appointment for my hip to be done .29th September !!!Finger...

Viv54

•9 months ago

24 Replies

fatigue and nausea

I tapered from 6 1/2 to 6mg just over 2 weeks ago. For the last 3 days I have had extreme fatigue and nausea that comes and goes. I also have an upset stomach...

I tapered from 6 1/2 to 6mg just over 2 weeks ago. For the last 3 days I have h...

Meggs01

•9 months ago

56 Replies

Rash from pred withdrawal?

I'm currently suffering from a rash that looks like strawberry allergy, little red bumps all over my body, but not having strawberries has had no effect. tried...

I'm currently suffering from a rash that looks like strawberry allergy, little r...

Pris80

•9 months ago

7 Replies

Pref reduced

I have had my prescription reduced from 50 to 40mg in just two weeks and find it wearing off early. I presume it is because it is to early?

I have had my prescription reduced from 50 to 40mg in just two weeks and find it...

Doublef

•9 months ago

6 Replies

Recent carpal tunnel, trochanter bursitis, and maybe shoulder bursitis

I've had PMR/GCA for 5 years, and I'm currently at 3 mg prednisone. I haven't had any PMR/GCA symptoms for over a year (one PMR flare in 2022 and one GCA...

I've had PMR/GCA for 5 years, and I'm currently at 3 mg prednisone. I haven't h...

Viola1

•9 months ago

13 Replies

Alternating between 3 and 4 mg pred now

I was at 5 for a few weeks, now doing another drop. Not noticing any unusual additional pains. Doing 3 and 4 for a week and things are good. Still have the...

I was at 5 for a few weeks, now doing another drop. Not noticing any unusual add...

sdowney717

•9 months ago

5 Replies

ACV, Gummies and other supplements debunked

The podcast in the Guardian to day is pretty interesting and worth a listen. Apple cider vinegar in all its form is very "in" so a world expert tells you about...

The podcast in the Guardian to day is pretty interesting and worth a listen. App...

PMRpro

Ambassador•9 months ago

22 Replies

Tapering

Might be a silly question, so apologies if it is, when slowly reducing prednisolone,are the adrenals being asked “to join the party” and if they aren’t, is...

Might be a silly question, so apologies if it is, when slowly reducing predniso...

Nanatoo

•9 months ago

12 Replies

Anyone been prescribed cyclophosphamide as a steroid sparer?

My friends father has had a terrible time. Had a PET CT and they never got back to him. A month later had blood clots in one leg and ruptured aortic aneurysm....

My friends father has had a terrible time. Had a PET CT and they never got back...

Sophiestree

•9 months ago

38 Replies

Leflunomide and peripheral neuropathy

I believe my peripheral neuropathy may be caused by leflunomide. The bumf in the packet says it is a common side effect. Neither the rheumatologist, the...

I believe my peripheral neuropathy may be caused by leflunomide. The bumf in th...

Steal

•9 months ago

3 Replies

Prednisolone and Surgery

Hi, I have been taking steroids now for at least 6 years. I am currently taking 20mg daily. I have read several articles on this site regarding the need for...

Hi, I have been taking steroids now for at least 6 years. I am currently taking ...

maxxgarry

•9 months ago

13 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2023

Relapse of GCA and GP reaction.

accidently took only one 1mg pill prednisone yesterday am, felt good all day

Wrong pred dose

travel sickness

Unusual bruise on eyelid

5 years pred, now osteoporosis,

Unusual Sleep Cycle and Pred Timing

How painful can PMR get ?

Enteric coated Prednisolone

Omeprazole query

Reflux and Omeprazole

Cataracts on both eyes, age or Pred or both?

PMR symptoms trumps all other indicators

Prednisone tapering

PMR cataract surgery

GCA now TIA, irregular heartbeat

Long term use of PPI and increased risk of dementia

pains in head

methotraxate and adrenal insufficiency

Another update !

fatigue and nausea

Rash from pred withdrawal?

Pref reduced

Recent carpal tunnel, trochanter bursitis, and maybe shoulder bursitis

Alternating between 3 and 4 mg pred now

ACV, Gummies and other supplements debunked

Tapering

Anyone been prescribed cyclophosphamide as a steroid sparer?

Leflunomide and peripheral neuropathy

Prednisolone and Surgery

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