Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,219 members•40,234 posts

All posts for August 2023

Just an update .

I was due to have my hip replacement on 17th August, got to the hospital saw all the relevant people. A Dr came to put an arrow on my leg and asked me how long...

I was due to have my hip replacement on 17th August, got to the hospital saw all...

Viv54

•1 year ago

30 Replies

Insects crawling on my skin?

Yesterday I dropped my pred dose from 3mg to 2.5mg. I felt OK, but I couldn't sleep last night due to persistent feeling just like an insect was crawling...

Yesterday I dropped my pred dose from 3mg to 2.5mg. I felt OK, but I couldn't sl...

Broseley

•1 year ago

72 Replies

Breathlessness when walking up slight gradients/stairs

Further to my previous post about breathlessness, I finally had an audience with the Pope, masquerading as my GP (my he's aged a lot since the last time I saw...

Further to my previous post about breathlessness, I finally had an audience with...

Flivoless

•1 year ago

13 Replies

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Steroid withrawal symptoms

Hi All . Onging steroid reduction here at very slow pace. Im taking 5mgms 5days a week , 4mgms 2 days . Any extra stress makes things difficult . My symptoms...

Hi All . Onging steroid reduction here at very slow pace. Im taking 5mgms 5days ...

Rosekid

•1 year ago

11 Replies

Buzzing in head

Hi I'm 73 years old and have been on preds for 2 years and finally down to 10 mg, the buzzing in my head is really driving me crazy and my hands are always...

Hi I'm 73 years old and have been on preds for 2 years and finally down to 10 mg...

Petertaffy

•1 year ago

14 Replies

Fed up with the PMR pain!

Hello, I've had PMR for about 2.5 years. And apart from the beginning, when the Doctor put me on 15mg of Prednisolone, I've had (varying degrees of) pain every...

Hello, I've had PMR for about 2.5 years. And apart from the beginning, when the ...

Hidden

•1 year ago

28 Replies

Feeling leaden

I often feel since I was diagnosed with PMR that my legs are like lead and it is extremely hard to move. (Different to just feeling stiff.). I know others...

I often feel since I was diagnosed with PMR that my legs are like lead and it is...

Daniella7

•1 year ago

24 Replies

Tapering advice

I had a call from gp earlier today telling me to stay on 8mg pred as she has not received reply from rheumatologist. I increased pred 12 days ago due to...

I had a call from gp earlier today telling me to stay on 8mg pred as she has not...

Lynlea

•1 year ago

6 Replies

Excessive Sweating

Hi, I’m currently on 8mg, after six weeks, thinking of trying 7.5. Problem is, I’m sweating, mostly my face and neck, and am really exhausted. The skin on...

Hi, I’m currently on 8mg, after six weeks, thinking of trying 7.5. Problem is,...

Carathedog

•1 year ago

17 Replies

GCA relapse?

I finally tapered off steroids April 2023 after 18 months. Over the last few weeks my headaches have returned daily- bilateral temples. My head just feels...

I finally tapered off steroids April 2023 after 18 months. Over the last few we...

Jsaoughs

•1 year ago

15 Replies

Metoject pens with Methotrexate

I have had 17.5mg of Methotrexate injected into my thigh once weekly with a Metoject Pen since January this year. Virtually ALL have had a problem with the...

I have had 17.5mg of Methotrexate injected into my thigh once weekly with a Meto...

Alvern

•1 year ago

5 Replies

gca/pmr

further to recent chat. Have had blood tests & result from rheumatology is that my CRP is 1 so absolutely no signs of gca or PMR any different. I am now on 7...

further to recent chat. Have had blood tests & result from rheumatology is that...

CavalierKC3

•1 year ago

11 Replies

Night sweats etc.

I am tapering down from 30mg pred since April 2022 and I am now down to 3mg (4mg alternate days). I am finding I am having a lot of night sweats. Has anyone...

I am tapering down from 30mg pred since April 2022 and I am now down to 3mg (4mg...

Washingup

•1 year ago

38 Replies

Membership of PMRGCAuk

This isn’t a request for advice but I was reading jinasc’s History of PMRGCAuk and wondered how many of the people posting requests for advice on here have...

This isn’t a request for advice but I was reading jinasc’s History of PMRGCAuk a...

Mfaepink1973

•1 year ago

39 Replies

Timing of Pred

Hello everyone, I’m looking for some advice on the timing for taking my Pred. I’m currently on 1mg and take it at 2am, in the hope that it’s at it lowest level...

Hello everyone, I’m looking for some advice on the timing for taking my Pred. I’...

PipandDots

•1 year ago

5 Replies

Benefits of honey?

I’ve had PMR since the start of this year. I’ve taken the unusual route of declining medication (except ibuprofen/paracetamol) to date - not easy! One...

I’ve had PMR since the start of this year. I’ve taken the unusual route of decl...

Billrower

•1 year ago

59 Replies

Costochondritis

I had a bad cough with a chest infection (in my opinion). The third time this year. On previous 2 occasions, I was given 30mg pred per day for 5 days and an...

I had a bad cough with a chest infection (in my opinion). The third time this ye...

Q-owl

•1 year ago

13 Replies

covid 19 antiviral meds

just tested positive Covid 19, not sure whether to take antiviral meds this time. Last covid infection I did take and shortly after recovery from Infection was...

just tested positive Covid 19, not sure whether to take antiviral meds this time...

Scarysit

•1 year ago

22 Replies

Stopping pred

I have stopped taking pred for a week now. No pain or stiffness so far. How long does it take for it to leave the body. What might I expect to happen ....

I have stopped taking pred for a week now. No pain or stiffness so far. How lo...

Bee2222

•1 year ago

7 Replies

How many steps should you take every day?

Some one "liking" a reply I made a few months ago reminded me that I recently learned something interesting about the number of steps we are advised to take...

Some one "liking" a reply I made a few months ago reminded me that I recently le...

HeronNS

•1 year ago

78 Replies

tapering advice, yet again!

I am down to 1mg and feeling fine and have now decided to have a go at the dead slow nearly stop plan. I have written it all out in my diary, day by day....

I am down to 1mg and feeling fine and have now decided to have a go at the dead ...

Gossiplady

•1 year ago

16 Replies

Diffuser - Anyone got one, are they worth the trouble?

My OH saw this article and said he thinks I need to get one as may help my brain fog, which drives him mad when I can’t bring the correct word to mind and use...

My OH saw this article and said he thinks I need to get one as may help my brain...

Baner

•1 year ago

16 Replies

low cortisol help please

Hi everyone I had a cortisol test recently and it measured 28, according to my rheumatologist it should be between 133-540approx. She is sending me for a...

Hi everyone I had a cortisol test recently and it measured 28, according to my ...

Hidden

•1 year ago

12 Replies

Staying on 5mg indefinitely.....

Forgive me if I've brought this up before but after my rheumatologist advised me that there are little or no side effects when on 7.5mg prednisolone providing...

Forgive me if I've brought this up before but after my rheumatologist advised me...

Pr0jection

•1 year ago

32 Replies

GCA symptoms normal CRP

I have arrived at a place I never thought I would - 1mg Pred reduced from 60mg in early 2020 when I was diagnosed with GCA. It’s taken me a long time to reduce...

I have arrived at a place I never thought I would - 1mg Pred reduced from 60mg i...

Phoenix51

•1 year ago

13 Replies

tapering issues

Recently tapered down from 5.5 to 5 of prednisone, seemed to go alright but about 3 weeks on 5 mg I started to see low moods,upset stomach,severe...

Recently tapered down from 5.5 to 5 of prednisone, seemed to go alright but abou...

Amilee

•1 year ago

15 Replies

Resentment over ruling

I have just been reading crochetgirl65 comments about resentment having PMR and can totally identify with this - it is one of my biggest problems, although I...

I have just been reading crochetgirl65 comments about resentment having PMR and ...

UnicornDancer

•1 year ago

22 Replies

What I wish the doctors knew about PMR/GCA ...

An opportunity has arisen for suggestions to be used for short articles/videos on a rheumatology website that provides information for rheumatologists, mainly...

An opportunity has arisen for suggestions to be used for short articles/videos o...

PMRpro

Ambassador•1 year ago

62 Replies

Weight gain and Pred

Hi I was diagnosed with PMR and possible GCA 2 years ago. Up to this point I led an extremely active life ; traveling , walking, swimming and caring for my...

Hi I was diagnosed with PMR and possible GCA 2 years ago. Up to this point I l...

Belfastman

•1 year ago

14 Replies

Pain till afternoon

I’ve been on Prednisone for five weeks, the last two weeks 15 mg. I’m probably at 70 % better. But still have the same symptoms, just less? When I take my dose...

I’ve been on Prednisone for five weeks, the last two weeks 15 mg. I’m probably a...

3dogsheidi

•1 year ago

10 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2023

Just an update .

Insects crawling on my skin?

Breathlessness when walking up slight gradients/stairs

Steroid withrawal symptoms

Buzzing in head

Fed up with the PMR pain!

Feeling leaden

Tapering advice

Excessive Sweating

GCA relapse?

Metoject pens with Methotrexate

gca/pmr

Night sweats etc.

Membership of PMRGCAuk

Timing of Pred

Benefits of honey?

Costochondritis

covid 19 antiviral meds

Stopping pred

How many steps should you take every day?

tapering advice, yet again!

Diffuser - Anyone got one, are they worth the trouble?

low cortisol help please

Staying on 5mg indefinitely.....

GCA symptoms normal CRP

tapering issues

Resentment over ruling

What I wish the doctors knew about PMR/GCA ...

Weight gain and Pred

Pain till afternoon

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