Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for August 2023

Been Stupid follow-up

Hi, just to recap I had been on 8mg Prednisolone for about 5 to 6 weeks and thought I was having a flare after pushing friend around garden in a wheelchair so...

Hi, just to recap I had been on 8mg Prednisolone for about 5 to 6 weeks and thou...

Pusph

•8 months ago

8 Replies

Adrenal Tumor and Troublesome Prednisone Tapering

I was diagnosed with GCA Feb.2018 My relationship with prednisone has been rocky and unpleasant-Like most of you. I am currently tapering again; 4.25/4.0 I...

I was diagnosed with GCA Feb.2018 My relationship with prednisone has been rock...

Blurry62

•8 months ago

15 Replies

could I have your opinion on this

I have been reducing steadily down to 2.5 using DL method with out any problems, then started reducing to 2 mg , (Monday 2 mg rest of the week 2.5 then 2 mg...

I have been reducing steadily down to 2.5 using DL method with out any problems,...

Lacelady

•8 months ago

29 Replies

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Link between dry eyes and throat and PMRGCA? Any ideas?

This is my first post, so it’s a bit long-winded, as I’ve included some context and background. Context: •About 20 years ago, when I was in my mid-50s, I...

This is my first post, so it’s a bit long-winded, as I’ve included some context ...

allofaquandry

•8 months ago

11 Replies

alternate days pred

I’ve been recommended to possibly try this once I get below a certain level - I think as a way to encourage adrenals to wake up. I think I read somewhere on...

I’ve been recommended to possibly try this once I get below a certain level - I ...

CarnationLily

•8 months ago

37 Replies

Still got pain at 20mg pred

Hello everyone I hope you are all having a restful bank holiday. Can I call on your wise advice? I was diagnosed in July with PMR. Started a 15mg dose. Then...

Hello everyone I hope you are all having a restful bank holiday. Can I call on...

Rosiecavapoo

•8 months ago

23 Replies

Red.spots under skin

This past couple of days these red under the skin spots of various shapes have arrived on my legs. Any ideas as to what they are? Not sore. Not itchy

This past couple of days these red under the skin spots of various shapes have a...

MamaBeagle

•8 months ago

24 Replies

what next!

I am currently on 4mg and struggling while waiting for a referral to an endocrinologist I am also on the waiting list for a reverse shoulder replacement for...

I am currently on 4mg and struggling while waiting for a referral to an endocri...

AnniesRyder5

•8 months ago

11 Replies

Pred and painkillers

Hi all Can you tell me what painkillers are safe to take with Pred. Is ibuprofen and aspirin off limits and if so what do you suggest for general aches and...

Hi all Can you tell me what painkillers are safe to take with Pred. Is ibuprofe...

Fredddie

•8 months ago

11 Replies

GCA head ache ?

Been tapering down to 5mg steroids with a bit of ups and down in the dose . This evening I’ve developed a sore scalp from top of my head to behind my ear and...

Been tapering down to 5mg steroids with a bit of ups and down in the dose . Thi...

Flrchrs

•8 months ago

16 Replies

Does higher elevations enhance PMR symptoms?

Every time I visit my son in Colorado at a 5-6k feet elevation I seem to have difficulty after a couple days. On prednisone (5mg) I feel 5/10 lower extremity...

Every time I visit my son in Colorado at a 5-6k feet elevation I seem to have di...

SMH4CRNA

•8 months ago

9 Replies

Update flares won't stop

I wrote a couple of weeks ago re. down to 1.5 mgs fr 2 and flared due to extreme stress, illness and death. Went back to 2, no help, went to 7, worked for...

I wrote a couple of weeks ago re. down to 1.5 mgs fr 2 and flared due to extre...

bonmaine

•8 months ago

6 Replies

Itching

woke at midnight itching all over. Head face everywhere. Assumed allergic reaction but diff to see what from. Sausage at lunchtime? New nail varnish with...

woke at midnight itching all over. Head face everywhere. Assumed allergic reacti...

Bedwell

•8 months ago

5 Replies

Pain in Neck

I am 2 ½ years into PMR, diagnosed November 2020. I have been suffering with serve neck pain since Saturday early morning, 2am making it nearly impossible to...

I am 2 ½ years into PMR, diagnosed November 2020. I have been suffering with s...

Orangecakes

•8 months ago

21 Replies

Steroids and Beta Blockers

Not sure if anyone can help with this question but having had a recent heart attack I have been prescribed amongst other drugs a Beta Blocker called...

Not sure if anyone can help with this question but having had a recent heart att...

jaycee444

•8 months ago

13 Replies

Stopping pred

Well here I am again 2weeks without pred and my shoulders are hurting. Do I go back to it or carry on. I am very tempted to take 5mg today to see if it...

Well here I am again 2weeks without pred and my shoulders are hurting. Do I g...

Bee2222

•8 months ago

9 Replies

Small vessel disease relagionship to GCA and PMR

After numerous tests over the last couple of months, including pet scan and mri I have now been diagnosed with Cerebral small vessel disease. My symptoms are...

After numerous tests over the last couple of months, including pet scan and mri ...

shazstep

•8 months ago

6 Replies

Any help greatly accepted

I am now down to 7mg of Prednisolone from 50 last august. One of my main problems is fluttering in chest, heart seems to be beating irregularly & it...

I am now down to 7mg of Prednisolone from 50 last august. One of my main probl...

CavalierKC3

•8 months ago

19 Replies

Polymialgia

Hi all after 4 years relatively free of PMR it’s back with a vengeance, the only difference now is I’m taking blood pressure medication as it’s increased in...

Hi all after 4 years relatively free of PMR it’s back with a vengeance, the onl...

MableCharlie

•9 months ago

13 Replies

Mollycat

I was diagnosed with PMR in July 2019. Started on 20 mg prednisone and began the long tapering. One flare went up to 5 mg and then tapered all the way down to...

I was diagnosed with PMR in July 2019. Started on 20 mg prednisone and began the...

RSG0345

•9 months ago

5 Replies

travel dosage question

I am traveling to Portugal next month from the west coast of Canada. We will be up for about 24 hrs on 3 flights and a 9 hour time change. I am on 3.5 mg of...

I am traveling to Portugal next month from the west coast of Canada. We will be ...

Skier321

•9 months ago

4 Replies

Is this Adrenal Insufficiency ???

Hello wise people , Looking for your thoughts please , I see my Rheumatologist in 3 days and I think he may want to change my current 5 mg Prednisolone or...

Hello wise people , Looking for your thoughts please , I see my Rheumatologist ...

5goFlotilla

•9 months ago

39 Replies

Tapering - have I got it wrong?

Hi. I am a new member and this is my first post. Diagnosed with PMR in March 2023, started on 15mg of pred on 31st March. It worked like a dream and within 48...

Hi. I am a new member and this is my first post. Diagnosed with PMR in March 202...

EnyaBlue

•9 months ago

62 Replies

Traveling time zones

Hi- I travel frequently to the USA to support the care of my mother who is 99. There is a 5 hour difference. NY is 5 hours behind GMT. Any recommendations...

Hi- I travel frequently to the USA to support the care of my mother who is 99. T...

Belfastman

•9 months ago

8 Replies

Guidance reqd to taper off Omeprazole

I’m taking 20mg Omeprazole each day and I’m approaching 4yrs. (I’m currently taking 0.5mg Pred, and plan shortly to taper to 0.25mg, then similarly to 0mg)....

I’m taking 20mg Omeprazole each day and I’m approaching 4yrs. (I’m currently ta...

Exflex

•9 months ago

20 Replies

Been stupid!

Hi, I was doing alright on 8mg pred and went to visit a friend in a nursing home last Saturday. I ended up pushing her around the garden in her wheelchair...

Hi, I was doing alright on 8mg pred and went to visit a friend in a nursing hom...

Pusph

•9 months ago

6 Replies

Advice on interpreting test result and deciding on action

I have been on 4.5 mgs for a month. As I was getting some stiffness, I asked my GP for CRP test. Some of the stiffnesss may be due to musculoskeletal issues...

I have been on 4.5 mgs for a month. As I was getting some stiffness, I asked my...

Hidcote

•9 months ago

8 Replies

Newbie looking for reassurance

Hi everyone, I was diagnosed with PMR in June (2023) - phone appointment with GP who was really on the ball, then bloods: ESR and CRP (13 June) 62 and 34...

Hi everyone, I was diagnosed with PMR in June (2023) - phone appointment with G...

Curious101

•9 months ago

8 Replies

Minor “illnesses” recovery time?

Hi fellow sufferers First of all a big thank you to all who contribute to this forum. I don’t know anyone with PMR - and most of my GPs (with 1 exception)...

Hi fellow sufferers First of all a big thank you to all who contribute to this ...

Mandyq

•9 months ago

18 Replies

New Member

HI everyone. I have another scan next month, and I am not looking forward to what it will say. I found out in 2018 I have osteopenia. My doctor believes I...

HI everyone. I have another scan next month, and I am not looking forward to wh...

numbercruncherak

•9 months ago

3 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2023

Been Stupid follow-up

Adrenal Tumor and Troublesome Prednisone Tapering

could I have your opinion on this

Link between dry eyes and throat and PMRGCA? Any ideas?

alternate days pred

Still got pain at 20mg pred

Red.spots under skin

what next!

Pred and painkillers

GCA head ache ?

Does higher elevations enhance PMR symptoms?

Update flares won't stop

Itching

Pain in Neck

Steroids and Beta Blockers

Stopping pred

Small vessel disease relagionship to GCA and PMR

Any help greatly accepted

Polymialgia

Mollycat

travel dosage question

Is this Adrenal Insufficiency ???

Tapering - have I got it wrong?

Traveling time zones

Guidance reqd to taper off Omeprazole

Been stupid!

Advice on interpreting test result and deciding on action

Newbie looking for reassurance

Minor “illnesses” recovery time?

New Member

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