Voice changes: Never a dull moment in my so called... - PMRGCAuk

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Voice changes

EdithWales profile image
26 Replies

Never a dull moment in my so called journey. After the drama with the thyroid I managed a quick breast lump and had a biopsy that fortunately was just a harmless fibroadenoma. Saw the Endocrinologist about the thyroid and he took more blood and I mentioned I had problems with my voice. It’s weaker and goes croaky from time to time. He said it wasn’t the thyroid and referred me to an ENT consultant in a couple of weeks. I know that GERD is sometimes a culprit so I am hoping it’s that.

My PMR had faded into the background, I was referred to the Endocrinologist originally by the Rheumatologist in an attempt to see if I could get down below 5mgs of Prednisolone but now I have something else to contend with. 🥂

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EdithWales profile image
EdithWales
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26 Replies
PMRpro profile image
PMRproAmbassador

Never rains ...

What did the rheumy think the endo would/could do if you couldn't get below 5mg? Was it PMR-type or adrenal-type problems - not that you can always tell the difference ...

Temoral profile image
Temoral in reply toPMRpro

The eternal problem of not being able to tell the difference....

PMRpro profile image
PMRproAmbassador in reply toTemoral

Indeed!!!!

EdithWales profile image
EdithWales in reply toPMRpro

And now I have gout!! My body must be running out of parts to annoy me and more importantly stop me going shopping today. Interestingly, other than the aching big toe I am fine 🥂

PMRpro profile image
PMRproAmbassador in reply toEdithWales

Hmm - and did the doc suggest those clinking glasses might have anything to do with it?

Stills profile image
Stills in reply toEdithWales

I Reduced alcohol intake by 75% during covid ….. gout gone.

EdithWales profile image
EdithWales in reply toStills

The frustration with this I used to drink regularly but since being diagnosed with AF I have cut it right down and then the gout appears.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toEdithWales

Delayed reaction -or body objecting to less alcohol 🤣😂…

hope it soon improves..

on a more serious note -maybe thyroid related -

creakyjoints.org/living-wit....

EdithWales profile image
EdithWales in reply toDorsetLady

Thank you. That is very interesting. I was surprised to learn about the purines, red meat I knew about but not shell fish , oily fish and beer. All the things I love 🥂

PMRpro profile image
PMRproAmbassador in reply toEdithWales

Huh - OH got gout, never eaten shell or oily fish in his life, and hadn't drunk beer for years at the last attack.

Stills profile image
Stills in reply toPMRpro

I eat oily fish as veggie 3 times a week, I thought it good for joints ?

PMRpro profile image
PMRproAmbassador in reply toStills

Best source of omegas - I'm not convinced about gout ...

EdithWales profile image
EdithWales in reply toStills

I thought so as well. How does that fit with a recommended Mediterranean diet I wonder.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toEdithWales

All the things I love.. absolutely typical… ☹️

EdithWales profile image
EdithWales in reply toDorsetLady

That creaky joints is a very useful booklet, my son in law is a fellow sufferer, I will print it out for him 🥂

PMRpro profile image
PMRproAmbassador in reply toEdithWales

Creaky in general has really good articles and info.

EdithWales profile image
EdithWales in reply toPMRpro

I have signed up for them 🥂

Stills profile image
Stills in reply toDorsetLady

Thyroid… that’s interesting as my self diagnosis via the banned Google of my new symptoms is thyroid issue, most likely hashi given Stills and other AI stuff

PMRpro profile image
PMRproAmbassador in reply toStills

My daughter has Hashi's - started LDN and her antibodies are back to normal and she feels a lot better. Says it is worth the money ...

Stills profile image
Stills in reply toDorsetLady

Good download thank you

Stills profile image
Stills in reply toEdithWales

I share your frustration ! Locum GP said THE C WORD to me in February (tests ongoing) so I abstained for 4 months. Everyone says you feel better sleep better etc without alcohol but I’m still waiting to feel better, apart from my toe of course 🍷

EdithWales profile image
EdithWales in reply toStills

I so sympathise, I gave it up for months and it made no difference. I am sure it has contributed to my depression 🥂

EdithWales profile image
EdithWales

you know very well I am on rations. 175 in 2 units, carefully measured and never a drop split. It is torture 🥂

PMRpro profile image
PMRproAmbassador in reply toEdithWales

:)

Darkchocolate1 profile image
Darkchocolate1

I have similar issue as you. Thyroid nodule biopsy was negative. My voice is difficult and strangled sounding. That started about 15 years ago diagnosed as spasmodic dysphonia. They say it is not related to the nodule. I had Botox injections into my vocal cords for 9 years until the last one made it impossible to swallow without choking for 6 weeks. Stopped Botox then and voice has worsened over the years since. But I can speak just difficult. I wonder if voice is auto immune related or prednisone related? Many other side effects are showing up after 2 and a half years on prednisone for PMR.

EdithWales profile image
EdithWales in reply toDarkchocolate1

Thank you. I have been on Prednisolone for 9 years. It will be interesting to see what the ENT man says 🥂

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