Voice changes

[EdithWales]

Never a dull moment in my so called journey. After the drama with the thyroid I managed a quick breast lump and had a biopsy that fortunately was just a harmless fibroadenoma. Saw the Endocrinologist about the thyroid and he took more blood and I mentioned I had problems with my voice. It’s weaker and goes croaky from time to time. He said it wasn’t the thyroid and referred me to an ENT consultant in a couple of weeks. I know that GERD is sometimes a culprit so I am hoping it’s that.

My PMR had faded into the background, I was referred to the Endocrinologist originally by the Rheumatologist in an attempt to see if I could get down below 5mgs of Prednisolone but now I have something else to contend with. 🥂

[PMRpro Ambassador]

Never rains ...

What did the rheumy think the endo would/could do if you couldn't get below 5mg? Was it PMR-type or adrenal-type problems - not that you can always tell the difference ...

[Temoral in reply to PMRpro]

The eternal problem of not being able to tell the difference....

[PMRpro Ambassador in reply to Temoral]

Indeed!!!!

[EdithWales in reply to PMRpro]

And now I have gout!! My body must be running out of parts to annoy me and more importantly stop me going shopping today. Interestingly, other than the aching big toe I am fine 🥂

[PMRpro Ambassador in reply to EdithWales]

Hmm - and did the doc suggest those clinking glasses might have anything to do with it?

[Stills in reply to EdithWales]

I Reduced alcohol intake by 75% during covid ….. gout gone.

[EdithWales in reply to Stills]

The frustration with this I used to drink regularly but since being diagnosed with AF I have cut it right down and then the gout appears.

[DorsetLady PMRGCAuk volunteer in reply to EdithWales]

Delayed reaction -or body objecting to less alcohol 🤣😂…

hope it soon improves..

on a more serious note -maybe thyroid related -

creakyjoints.org/living-wit....

[EdithWales in reply to DorsetLady]

Thank you. That is very interesting. I was surprised to learn about the purines, red meat I knew about but not shell fish , oily fish and beer. All the things I love 🥂

[PMRpro Ambassador in reply to EdithWales]

Huh - OH got gout, never eaten shell or oily fish in his life, and hadn't drunk beer for years at the last attack.

[Stills in reply to PMRpro]

I eat oily fish as veggie 3 times a week, I thought it good for joints ?

[PMRpro Ambassador in reply to Stills]

Best source of omegas - I'm not convinced about gout ...

[EdithWales in reply to Stills]

I thought so as well. How does that fit with a recommended Mediterranean diet I wonder.

[DorsetLady PMRGCAuk volunteer in reply to EdithWales]

All the things I love.. absolutely typical… ☹️

[EdithWales in reply to DorsetLady]

That creaky joints is a very useful booklet, my son in law is a fellow sufferer, I will print it out for him 🥂

[PMRpro Ambassador in reply to EdithWales]

Creaky in general has really good articles and info.

[EdithWales in reply to PMRpro]

I have signed up for them 🥂

[Stills in reply to DorsetLady]

Thyroid… that’s interesting as my self diagnosis via the banned Google of my new symptoms is thyroid issue, most likely hashi given Stills and other AI stuff

[PMRpro Ambassador in reply to Stills]

My daughter has Hashi's - started LDN and her antibodies are back to normal and she feels a lot better. Says it is worth the money ...

[Stills in reply to DorsetLady]

Good download thank you

[Stills in reply to EdithWales]

I share your frustration ! Locum GP said THE C WORD to me in February (tests ongoing) so I abstained for 4 months. Everyone says you feel better sleep better etc without alcohol but I’m still waiting to feel better, apart from my toe of course 🍷

[EdithWales in reply to Stills]

I so sympathise, I gave it up for months and it made no difference. I am sure it has contributed to my depression 🥂

[EdithWales]

you know very well I am on rations. 175 in 2 units, carefully measured and never a drop split. It is torture 🥂

[PMRpro Ambassador in reply to EdithWales]

[Darkchocolate1]

I have similar issue as you. Thyroid nodule biopsy was negative. My voice is difficult and strangled sounding. That started about 15 years ago diagnosed as spasmodic dysphonia. They say it is not related to the nodule. I had Botox injections into my vocal cords for 9 years until the last one made it impossible to swallow without choking for 6 weeks. Stopped Botox then and voice has worsened over the years since. But I can speak just difficult. I wonder if voice is auto immune related or prednisone related? Many other side effects are showing up after 2 and a half years on prednisone for PMR.

[EdithWales in reply to Darkchocolate1]

Thank you. I have been on Prednisolone for 9 years. It will be interesting to see what the ENT man says 🥂