sailormo

[Sailormo]

Hi I have pmr trying to reduce my prednisalone from 20mg down to 16mg I've been up and down for afew years, I'm using mycophenolate to help me reduce but I've just had a knee replacement and have lots of aches in my neck shoulders, and thighs.Im feeling a bit depressed do you think the aches will get better.

[PMRpro Ambassador]

Mycophenolate doesn't have much of a reputation in the reduction of pred in PMR. Are you trying to reduce from 20 to 16 in a single step? Skimming through your past posts you seem to have struggled with tapering all along - has your rheumy ever considered that this may not be PMR at all? Although there seems to be a version that lasts longer and it is harder to get to doses under about 12-14mg - there are several of us on the forum.

It is difficult to say much without more info. But one thing we do notice is that if you get into a yoyo pattern of reducing, flaring and going higher again, it becomes increasingly difficult to reduce as time goes on.

Please don't use your user name as a title for a post - the title should be something indicating what your question or problem is and then Related Posts will show up which often increases the info you get. Your name will appear automatically.

[Nosmell]

How difficult to have a knee replacement to cope with too. I didn’t know there was some other drug to help with reducing Preds. I have MS and notice that when I drop a little too low, my legs are even more stupid. I do hope you can find a balance which will control your pain - it’s not easy, is it? x