I was diagnosed by my rheumatologist in December 2022 with a fairly aggressive tapering schedule that I had to abandon at 6 mg. When she diagnosed me, she did say that she felt I was too young for PMR but that my symptoms were classic PMR. I am 58. I was reluctant to go on prednisone but couldn’t take the pain. I started at 10 mg. After the first tablet, I felt 95% better! She wanted me to taper 2.5 mg a week. I went to 7.5 mg and after that every taper caused pain. I was at 6 mg until last week waking up in some pain which dissipated during the day.
I had a follow up appointment with a locum that is covering for my doctor for maternity leave. He started the appointment off with an inquisition as to why I thought I had PMR and that I was too young for it, and that prednisone is evil.
I was gob smacked! I asked him if it wasn’t PMR if he had any other ideas. I have a neuromuscular disease as well but the neurologist has insisted that the pain that I’m experiencing is not due to that. In the end, the doctor agreed to treat me as if I had PMR. He put me on a different taper schedule starting at 8 mg for two weeks then 7 mg for two weeks and then slowing after that to 1 mg down once a month. We’ll see how that goes. One of the things he mentioned was that injection of prednisone into the effect of joints would be better than oral prednisone. Considering I’m incredibly needle phobic, that would definitely not be better for my mental health! I can’t find a lot of compelling research on PubMed about injection for PMR.
I’m in Canada. We have a major crisis with GPs and haven’t had one regularly for the last four years.