Hi , I am fed up ! I’m caught between 2 rheumatologists who dispute I have or even had PMR and tell me to just get off the pred and the GP who says you must have it because pred works ! Anyway I’m currently on 2.5 mg having tapered from 3 ( very slowly over c 6 weeks each time ) but the pain is back in the shoulders and today I found out CRP was 26 ( previously 16 on 1/2/23 when was on 3mg .
The GP might call me but I go on an active holiday on Sunday so interested in thoughts on what to do with the dose to knock it in the head quickly but not take me back too far .
sorry to moan but I’m sick of this after 2.5 yrs and having almost got to zero a year ago and had to do back to 15mg with a CRP of 43 .
All advice welcome 🙏
Written by
Sydney0503
To view profiles and participate in discussions please or .
Standard flare due to overshooting the dose you need: add 5mg to the dose at which you flared for up to 7-10 days and drop straight back to the last dose where you were fine. If you catch it quickly you won;t need to go back to 15 and you probably didn't last year either.
And stick with your GP who is bright enough not to care what the label is - you have a pred-responsive inflammatory condition with PMR symptoms.
How active is this holiday? Please be mindful that you have a chronic illness and the Pred only mops up the inflammation produced every day. It doesn't stop the inflammatory chemicals being produced. Your history is similar to mine and i hear your frustration and disappointment. Enjoy the holiday, the break will be a tonic but don't over work your muscles.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
