kenzara

[carolpatriarco01]

I’ve just been prescribed kenzara for my PMR

Has anyone tried this to wean off prednisone?

Or heard anything about it?

[piglette]

Kevzara was FDA approved last month I believe to treat polymyalgia rheumatica after corticosteroids have been used and did not work well or when a slow decrease in the dose of corticosteroids cannot be tolerated. In UK other DMARDS such as Methotrexate would normally be used initially.

[carolpatriarco01 in reply to piglette]

thank you for your response piglette

[PMRpro Ambassador]

As piglette says, it has only been approved for a month or so in the USA and not at all in the UK , No-one on the forum has told us they were on it during the clinical trials.

It is an IL-6 inhibitor, much like tocilizumab, and I am on tocilizumab for PMR, It had allowed me to get from nearly 20mg this time last year to 8mg. I had been down to 6mg but that was too low and I had to clear out a flare.

[carolpatriarco01 in reply to PMRpro]

thank you for your response PMRpro

[carolpatriarco01]

thanks for your help heron 🥰

[PMR2011]

Let us know how you get on with it. I am a long termer. Have been on Actemra for almost 4 years now. Would like to know there are other options to try if for some reason I have to stop Actemra which has worked very well for me.