Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,925 members • 39,411 posts

All posts for February 2023

Feeling miserable

I was on 80mg in 2020 and am down to 13 mg ( slow taper method). I have been managing until yesterday when I was in extreme pain in my neck, shoulders , arms...

I was on 80mg in 2020 and am down to 13 mg ( slow taper method). I have been ma...

Miacaro45

•2 years ago

3 Replies

GCA flare, a lesson learnt

Yesterday I started to write about the past but I’ve woken up this morning feeling more positive, so I I’m going to start again. It’s a bit long so I apologise...

Yesterday I started to write about the past but I’ve woken up this morning feeli...

Whatawonderfullife

•2 years ago

12 Replies

Inner ear problem

Since starting Prednisolone in March 2022 my hearing has worsened, particularly my right ear. I keep my ears clean so wax is not the problem. I initially...

Since starting Prednisolone in March 2022 my hearing has worsened, particularly...

Golf-1

•2 years ago

26 Replies

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Omeprazole - or Lansoprazole

I’ve been taking 20 mg of Omeprazole daily ever since I was diagnosed with PMR almost 3 years ago. However: when I collected my last repeat prescription I see...

I’ve been taking 20 mg of Omeprazole daily ever since I was diagnosed with PMR a...

Doraflora

•2 years ago

26 Replies

updating latest try at decreasing pred

Everything is going pretty good. This time last year I was at 18mg daily. Today I start 11 & 10&1/2 mg using slow method. I am so happy this appears to be...

Everything is going pretty good. This time last year I was at 18mg daily. Today ...

Linny3

•2 years ago

10 Replies

UK based people

Hi folks, only recently joined the group and I'm reading in a lot of the posts that people have been referred to a specialist/consultant. Is this the norm? I...

Hi folks, only recently joined the group and I'm reading in a lot of the posts t...

Lottieandlola

•2 years ago

10 Replies

I think I Might Have PMRGCA. Worried

I'm being treated for Inflammatory Arthritis which I've had since 1997. Successfully on Biologics for many years until a move up country meant I was in limbo...

I'm being treated for Inflammatory Arthritis which I've had since 1997. Successf...

priss58

•2 years ago

9 Replies

PREDNISONE TAPERING WITH ACTEMRA

This is my second time with GCA- I tapered prednisone slowly over the last 5 years without Actemra. My TAB was negative, but was treated for GCA/PMR. Last...

This is my second time with GCA- I tapered prednisone slowly over the last 5 yea...

Pamk1949

•2 years ago

35 Replies

Alternative to Prednisone

Pain in my shoulder was originally diagnosed as rotator cuff, but after some weeks when pain spread to other shoulder, hips and buttocks, a friend who is a...

Pain in my shoulder was originally diagnosed as rotator cuff, but after some wee...

JAC1947

•2 years ago

8 Replies

pmr and now shingles

hi- I’m on day 6 of aciclovir for shingles. I cannot believe how bad I feel. The electric shock like pains up the side of my head 😱. And the general aches....

hi- I’m on day 6 of aciclovir for shingles. I cannot believe how bad I feel. The...

Fiddlemum

•2 years ago

25 Replies

ITV Morning program idea question

Most mornings ITV Breakfast highlight a medical condition and have their doctor experts talk about it. I've not yet seen one about PMR GCA . Has anyone? if...

Most mornings ITV Breakfast highlight a medical condition and have their doctor ...

Bennijax

•2 years ago

21 Replies

PMR/GCA or not

I went to Kings College hospital last week for a long delayed appointment with a Rheumy. To be told straightaway that I don't have PMR/GCA and that I should...

I went to Kings College hospital last week for a long delayed appointment with a...

softekcom

•2 years ago

15 Replies

Low Diastolic Blood Pressure and Prednisone Reduction

Hello Everyone I'm not 'here' often these days as I seemed to reach some kind of plateau after about 6 years - after sitting on about 10mg of Pred for the...

Hello Everyone I'm not 'here' often these days as I seemed to reach some kind o...

Rimmy

•2 years ago

18 Replies

steroid reduction

Hi all, I am new to this, diagnosed December with GCA, biopsy clear although had been on 30mg prednisone for 10 days have been diagnosed on symptoms, temple...

Hi all, I am new to this, diagnosed December with GCA, biopsy clear although had...

Mumdadlove

•2 years ago

13 Replies

Help to find PMR Rheumatologist in Essex

I would like to find a Rheumy who understands PMR near Havering outer London/Essex as my GP had decided my PMR is better as my blood tests are normal and...

I would like to find a Rheumy who understands PMR near Havering outer London/E...

Joanbill13

•2 years ago

30 Replies

new,partner,doctor,phone,chat

yesterday,rang,me.Your,platelets,are,high.Isuggest,you,see,a,blood,specialist.i,say,doesn‘t,the,steroid,,make,high,platelets?Yes,but,you,could,have,lots,of,othe

yesterday,rang,me.Your,platelets,are,high.Isuggest,you,see,a,blood,specialist.i,...

Gossiplady

•2 years ago

11 Replies

cortisol test results

what cortisol test results have members had that either got them an atch test or an endocrinologist referral??

what cortisol test results have members had that either got them an atch test or...

Devoid

•2 years ago

8 Replies

otc cold meds with prednisolone?

I’ve come down with the mother of all colds, there were several people at work dropping like flies over the last week or so. Just asking if I can take otc...

I’ve come down with the mother of all colds, there were several people at work d...

Cfmad298601

•2 years ago

9 Replies

Prednisone forever?

Hi Everyone, It's been a while since I've posted. My hubby is almost at 1 year on Pred for PMR. As soon as he tapers, his shoulder pain comes back. He is...

Hi Everyone, It's been a while since I've posted. My hubby is almost at 1 year...

Popsca

•2 years ago

39 Replies

At long last….

At long last, I have a carer coming in once a day to help me. Having been bedbound pretty much for the last year, I’ve lost so much muscle I can’t do allot...

At long last, I have a carer coming in once a day to help me. Having been bedb...

Bramble2000

•2 years ago

11 Replies

Awful pain

Sorry to trouble you all but am in a lot of pain in my knee,radiating down to my foot and pain outside thigh- am due arthroscopy on 3rd as have several...

Sorry to trouble you all but am in a lot of pain in my knee,radiating down to my...

bakingD

•2 years ago

6 Replies

Splitting tablets

I'd like some advice, please, on splitting tablets. Firstly though, how can I be reassured that the Pred I take is not coated? I think they are non-coated...

I'd like some advice, please, on splitting tablets. Firstly though, how can I...

tempusfugi

•2 years ago

48 Replies

Has anyone been diagnosed for PMR under 50 that didn't have inflammatory markers in their bloods?

I was diagnosed with Fibromyalgia by Rheumatology late last September after the usual tick boxes had been ticked It started with waking one night with numbness...

I was diagnosed with Fibromyalgia by Rheumatology late last September after the ...

Northernnugget

•2 years ago

52 Replies

An address to donate to the charity

I am looking for an address to post a donation to the PMRGCAuk charity. I donate to charities using my CAF cheque book, which deals with the tax refunds. Many...

I am looking for an address to post a donation to the PMRGCAuk charity. I donate...

YogaJM

•2 years ago

15 Replies

Temperature and inflammation

I developed PMR around 18 months ago, and have been on prednisolone for 14 months. Like others, I would like to taper down and get off the steroids as soon as...

I developed PMR around 18 months ago, and have been on prednisolone for 14 month...

PRL1957

•2 years ago

23 Replies

Prescribed Diamox, on pred, not feeling good

Hi. I’m currently stable for PMR on 8mg. I have macula odeama in one eye, the last ozurdex injection was in December. Check up on Thursday showed no odeama and...

Hi. I’m currently stable for PMR on 8mg. I have macula odeama in one eye, the la...

Nippersmum

•2 years ago

3 Replies

PMR flare or not

I would love PMR pro to give me some advise on my previous question.

Toenti

•2 years ago

3 Replies

PMR flare or not.

hi every one, I am at the moment in Barcelona. I’ve had a bad stomach upset which has mostly cleared up. But because I was laid up in bed for a couple of days,...

hi every one, I am at the moment in Barcelona. I’ve had a bad stomach upset whic...

Toenti

•2 years ago

8 Replies

Prednisone and Diabetes ...

Has anyone become diabetic from taking prednisone? I am on a low dose, alternating between 5mg and 2.5mg . My recent blood work indicated that I am now pre...

Has anyone become diabetic from taking prednisone? I am on a low dose, alternat...

PMRconcerns

•2 years ago

51 Replies

Recent pain

hello all, I’ve been on 20mgs of Prednisolone since 13th Jan and was due to taper down by 5mgs according to my rheumatologist but I know that’s too big a drop...

hello all, I’ve been on 20mgs of Prednisolone since 13th Jan and was due to tape...

kentish61

•2 years ago

11 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for February 2023

Feeling miserable

GCA flare, a lesson learnt

Inner ear problem

Omeprazole - or Lansoprazole

updating latest try at decreasing pred

UK based people

I think I Might Have PMRGCA. Worried

PREDNISONE TAPERING WITH ACTEMRA

Alternative to Prednisone

pmr and now shingles

ITV Morning program idea question

PMR/GCA or not

Low Diastolic Blood Pressure and Prednisone Reduction

steroid reduction

Help to find PMR Rheumatologist in Essex

new,partner,doctor,phone,chat

cortisol test results

otc cold meds with prednisolone?

Prednisone forever?

At long last….

Awful pain

Splitting tablets

Has anyone been diagnosed for PMR under 50 that didn't have inflammatory markers in their bloods?

An address to donate to the charity

Temperature and inflammation

Prescribed Diamox, on pred, not feeling good

PMR flare or not

PMR flare or not.

Prednisone and Diabetes ...

Recent pain

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