Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,925 members • 39,411 posts

All posts for February 2023

foot spasms

six to seven years suffering from pmr and gca currently on 10 mgs Prednisolone. I have been suffering for some time with foot spasms about every 30 seconds...

six to seven years suffering from pmr and gca currently on 10 mgs Prednisolone. ...

astley123

•2 years ago

6 Replies

GCA SYMPTOMS RETURN AFTER REDUCING PRED 60 TO 55 MG

On Wednesday reduced the Pred to 55 mg. Rheumie had said reduce to 50 mg. as GCA biopsy and tests were not difinitive. Over the last 2 days both the pain along...

On Wednesday reduced the Pred to 55 mg. Rheumie had said reduce to 50 mg. as GCA...

Missus835

•2 years ago

16 Replies

Prednisolone is a serious med. Don't vary the dose without professional advice from a Doctor.

See a doctor first whatever you do.

Hidden

•2 years ago

23 Replies

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Is there any hope for anyone?

I've spent a long time reading posts - which, I must say is pretty depressing. Is there any hope that life will be worth living ever again? It seems that no...

I've spent a long time reading posts - which, I must say is pretty depressing. ...

Lclmlbls

•2 years ago

183 Replies

pain in shoulders and legs

I was on Prednisolone from October 2021 until a week ago. Reducing dose, 1 mg a day for the last month. For 2 months I have had very painful shoulders and...

I was on Prednisolone from October 2021 until a week ago. Reducing dose, 1 mg a...

Calypsocat

•2 years ago

16 Replies

cold all the time

hi all, I just wanted to know if anyone is finding it difficult to keep warm in the house, I am almost 72 and wear thermal vests and jumpers but still seem to...

hi all, I just wanted to know if anyone is finding it difficult to keep warm in ...

Margaret1951

•2 years ago

57 Replies

”CONFUSED” UPDATE

Well, I increased my Pred to 9 mg for 5 days but didn’t go straight back to my previous dose (4.5mg) but went to 6mg. So far the flu-type symptoms have gone...

Well, I increased my Pred to 9 mg for 5 days but didn’t go straight back to my p...

Janann25

•2 years ago

8 Replies

Post leflunomide update

After upping prednisone to 15 mg my blood work came back with normal CRP but elevated ESR 36 The extreme shoulder pain was diagnosed via ultrasound to be...

After upping prednisone to 15 mg my blood work came back with normal CRP but ele...

Alebeau

•2 years ago

7 Replies

Physiotherapy?

Hi, I had a care needs assessment this morning because I’m very disabled with PMR/Ankylosing Spondylitis and degenerative disc disease and I don’t have any...

Hi, I had a care needs assessment this morning because I’m very disabled with PM...

Bramble2000

•2 years ago

9 Replies

Adrenal response to cytokine release, I’m confused

So the subject has been discussed here recently about when is best to take the daily dose of pred when tapering down through the adrenal gland recovery period...

So the subject has been discussed here recently about when is best to take the d...

Zebedee44

•2 years ago

5 Replies

Tapering Prednisolone

Tapered down to 1mg or less after about a year and then stopped 2 weeks ago. Pain has returned to shoulders so I need to start Pred again. Do I go back up to...

Tapered down to 1mg or less after about a year and then stopped 2 weeks ago. Pai...

CL2023

•2 years ago

10 Replies

Tingly lower legs! Why? I’m on 4.5mg Prednisolone and feel ready to taper again but I’m concerned about the leg discomfort.

Diagnosed last May and started on 15mg. Tapered easily to 3.5mg by December then early Jan I got the flu and had my first flare. I went up by 1mg and am still...

Diagnosed last May and started on 15mg. Tapered easily to 3.5mg by December the...

PipandDots

•2 years ago

20 Replies

Sharp pain below right breast under ribs. PMR? Steroids?

Anybody with PMR have sharp intermittent pain under rib cage under right breast? I am worried about what it might be. On steroids, bp meds, statin. ..two...

Anybody with PMR have sharp intermittent pain under rib cage under right breast?...

Merryfield

•2 years ago

24 Replies

Vision reduction for hours

I have slowly reduced to 4mg for two weeks when for a few hours the distance vision in my right eye was out of focus. Mid distance and reading was not...

I have slowly reduced to 4mg for two weeks when for a few hours the distance vis...

TheGreatPretender

•2 years ago

9 Replies

ROD HUGHES advice to me

I have taken the recommendation from several of you to have a private consultation with Professor Hughes. I am no longer under the NHS care of any...

I have taken the recommendation from several of you to have a private consultati...

Bennijax

•2 years ago

10 Replies

Reduction complete.

Hello everyone, well I have completed my reduction regime , finished 11 days ago. I finished after a week of 1 mg but I am having terrible stomach...

Hello everyone, well I have completed my reduction regime , finished 11 days ago...

tiggersue

•2 years ago

64 Replies

GCA OR TMJ?

Well after going through all the GCA tests, including biopsy which shows a 3 cm piece of the temporal artery with no extra wear and tear, it would seem that...

Well after going through all the GCA tests, including biopsy which shows a 3 cm ...

Missus835

•2 years ago

22 Replies

Symptoms of PMR?

GM Everyone! I’ve been a member here for a few years, and I’ve had PMR. At one time I was on 90 mgs of prednisone. My CRP was 82! It took me 2 yrs to wean...

GM Everyone! I’ve been a member here for a few years, and I’ve had PMR. At one...

nymima01

•2 years ago

34 Replies

Advice Please.

Hi everyone. I have just been diagnosed with my second bout of PMR after having Shingles. I had been Pred free for two years after having PMR for seven years....

Hi everyone. I have just been diagnosed with my second bout of PMR after having ...

Attic

•2 years ago

20 Replies

GCA Flare-again

Hi everyone. I won't repeat what you can read in my profile as my GCA symptoms are more unusual, but not out of the ordinary. Most recently I had reduced my...

Hi everyone. I won't repeat what you can read in my profile as my GCA symptoms ...

Preacherball

•2 years ago

12 Replies

Latest rheumy appointment

I had my rheumy appointment today. Long story short, surprise surprise he wants me off the pred ASAP and said I'm taking too long staying on each dose for 6...

I had my rheumy appointment today. Long story short, surprise surprise he wants ...

Broseley

•2 years ago

23 Replies

Any other vegans with PMR on here ?

I’ve had this disease for 12 years now but finally, finally, it’s abating. I’ve tried tapering many times slowly but it has always flared in the past. This...

I’ve had this disease for 12 years now but finally, finally, it’s abating. I’ve...

Seekingasolution

•2 years ago

25 Replies

About auto-immune flares.

This video is new to me, it may not be to others. I think it's helpful. https://youtu.be/xglCRFUS9Ro

This video is new to me, it may not be to others. I think it's helpful. https:/...

IdasMum

•2 years ago

9 Replies

?????? Help!!!

Hi all, I was diagnosed with polymyalgia 8 years ago (aged 46), given pred, put 3 stone on in 6 weeks, taken off pred and nothing mentioned since. I didn't...

Hi all, I was diagnosed with polymyalgia 8 years ago (aged 46), given pred, put ...

Ellie135

•2 years ago

5 Replies

Ibuprofen and steroids.

I would like to thank everyone very much for their response and useful advice about my question about Ibuprofen and my nerve pain. Thank goodness for this...

I would like to thank everyone very much for their response and useful advice ab...

Washingup

•2 years ago

1 Reply

Pain in feet

Do any of you get pain in your feet? I've just got it in the left side of my right foot. Pretty sure I haven't stepped on a large stone as I wear thick boots....

Do any of you get pain in your feet? I've just got it in the left side of my rig...

Caulkhead63

•2 years ago

54 Replies

Quick Question

Once I again I'm consulting the oracle, and thank god for this site!I have been lowering Pred on the slow taper plan. Down to one day old dose which was 5 mm,...

Once I again I'm consulting the oracle, and thank god for this site!I have been ...

Southmead

•2 years ago

12 Replies

tapering with alternate dose and extreme fatigue

Since January first have been alternating between 7.5 mg one day and then the next 5 mg. Before this I was steadily on 7.5. Since the alternating I am beyond...

Since January first have been alternating between 7.5 mg one day and then the ne...

Bambi1234567

•2 years ago

21 Replies

Advice please on raising prednisone

hi. Haven't been in touch for long while but I read here every day. Reminder I'm 74 yr old diagnosed march '22 with GCA started on 80 mg prednisone now down to...

hi. Haven't been in touch for long while but I read here every day. Reminder I'm...

Cobalt2sister

•2 years ago

3 Replies

Controlling PMR with diet

Does anyone have info on trying to control PMR with diet? I am newly diagnosed but before taking the decision to use steroids (which freaks me out after...

Does anyone have info on trying to control PMR with diet? I am newly diagnosed b...

Lclmlbls

•2 years ago

53 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for February 2023

foot spasms

GCA SYMPTOMS RETURN AFTER REDUCING PRED 60 TO 55 MG

Prednisolone is a serious med. Don't vary the dose without professional advice from a Doctor.

Is there any hope for anyone?

pain in shoulders and legs

cold all the time

”CONFUSED” UPDATE

Post leflunomide update

Physiotherapy?

Adrenal response to cytokine release, I’m confused

Tapering Prednisolone

Tingly lower legs! Why? I’m on 4.5mg Prednisolone and feel ready to taper again but I’m concerned about the leg discomfort.

Sharp pain below right breast under ribs. PMR? Steroids?

Vision reduction for hours

ROD HUGHES advice to me

Reduction complete.

GCA OR TMJ?

Symptoms of PMR?

Advice Please.

GCA Flare-again

Latest rheumy appointment

Any other vegans with PMR on here ?

About auto-immune flares.

?????? Help!!!

Ibuprofen and steroids.

Pain in feet

Quick Question

tapering with alternate dose and extreme fatigue

Advice please on raising prednisone

Controlling PMR with diet

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