Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,925 members • 39,411 posts

All posts for February 2023

Day 1 of Pred

I finally accepted I need pred after dithering around trying to convince myself I could get through this with anti inflammatory diet etc etc. Doctor was...

I finally accepted I need pred after dithering around trying to convince myself ...

Lclmlbls

•2 years ago

19 Replies

Prednisolone experience

Prednisolone experience, thanks for request. It's nearly a year since my PMR diagnosis and starter treatment of 15 mg of prednisolone for three weeks. There...

Prednisolone experience, thanks for request. It's nearly a year since my PMR dia...

waltztherapy

•2 years ago

20 Replies

Reducing Pred after increase for suspect GCA.....communication problems.

Diagnosed PMR last April and titrated steadily down to 7mg Pred and happy with my progress. Then I experienced increased migraine type headaches with visual...

Diagnosed PMR last April and titrated steadily down to 7mg Pred and happy with m...

Ryeland

•2 years ago

7 Replies

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Percussive massage gun

I know this isn't specific to PMR/GCA, but I thought some of you may have had some experience with these things. I've had considerable pain in my lower back...

I know this isn't specific to PMR/GCA, but I thought some of you may have had so...

winfong

•2 years ago

6 Replies

Traveling and PMR

I would love to hear how those who are traveling handled long-distance, hours-long (>5hours) flights. Thank you...

I would love to hear how those who are traveling handled long-distance, hours-lo...

christi48

•2 years ago

24 Replies

Sorry Tapering question 🫣

Hi all I’m wondering what everyone feels like when they taper…. My starting dose was 15mgs Gp has tried to reduce to 12.5 after 4 weeks but I was too sore so...

Hi all I’m wondering what everyone feels like when they taper…. My starting do...

Mercat

•2 years ago

10 Replies

Calcium and Vitamin D

I have vitamin D deficiency. The calcium + Vit D tablets prescribed by GP either upset my stomach (dissolvable) or non dissolvable ( chewable ! ) aggravate my...

I have vitamin D deficiency. The calcium + Vit D tablets prescribed by GP eithe...

Ullswater

•2 years ago

43 Replies

Relief of Myofascial pain at last.

Good afternoon. With my recent increase of steroids (December) the #Myofascial pain in my right shoulder blade had reared it's ugly head (I think it had...

Good afternoon. With my recent increase of steroids (December) the #Myofascial ...

IdasMum

•2 years ago

5 Replies

Side Effects of Corticosteroids

I found this site very useful as a summary of potential side effects of corticosteroids such as Pred which most of us are on during our PMR journey....

I found this site very useful as a summary of potential side effects of corticos...

craighead72

•2 years ago

7 Replies

Abbreviations

Am I the only one who doesn't understand all the abbreviations used on here? Latest one is DOMS - meaning please? Is there something like an abbreviations...

Am I the only one who doesn't understand all the abbreviations used on here? Lat...

Pusph

•2 years ago

5 Replies

Actemra IV?

Has anybody ever had an Actemra IV to help with their PMR?

A77bruin

•2 years ago

20 Replies

Energy and motivation hasn't really returned after Pred

Hi friends, I'm down to one mg Pred after diagnosed with PMR back in Aug 21. We killed that with 50 mgs initial dose and now I'm down at one mg per day. I...

Hi friends, I'm down to one mg Pred after diagnosed with PMR back in Aug 21. We...

Hidden

•2 years ago

17 Replies

PMR without steroids?

Hubby (55) was just diagnosed with PMR that we suspect he's had for about two years. He'd like to try and work through it without taking prednisone since every...

Hubby (55) was just diagnosed with PMR that we suspect he's had for about two ye...

Hidden

•2 years ago

24 Replies

Purpose of taking prednisone at 2 am

I have read where it mentions taking prednisone in the early hours like 2am. Can someone explain the purpose of this? I am currently tapering down at 1 mg per...

I have read where it mentions taking prednisone in the early hours like 2am. Can...

PBfs

•2 years ago

12 Replies

Norovirus and AA.

I've just got over norovirus, caught from my aunt's care home. I'm due to take my AA on Thursday morning, but I'm wondering whether I should give it a miss.Any...

I've just got over norovirus, caught from my aunt's care home. I'm due to take m...

Broseley

•2 years ago

7 Replies

Is this Pred withdrawal

Previously I mentioned last year about April/May time that I had an MRI scan of my head and neck, which showed wear and tear at the top of my spine. I had had...

Previously I mentioned last year about April/May time that I had an MRI scan of ...

Purplegloss

•2 years ago

19 Replies

synacthen test result

I have been advised I have mild adrenal insufficiency and there is no reason for concern. Via a letter my rheumatologist “told me off” for increasing my pred...

I have been advised I have mild adrenal insufficiency and there is no reason for...

Rosina1871

•2 years ago

19 Replies

Supplement for hair loss

My hairdresser noticed before I did that my hair is thinning. Seems it's a common side effect of Prednisolone. I bought some folic tablets and after taking...

My hairdresser noticed before I did that my hair is thinning. Seems it's a comm...

Hercules307

•2 years ago

21 Replies

A glass of wine??

Whilst all info PMR and steroids state avoid alcohol, I am no lush but do love my six o’clock tipple. Since being diagnosed I have completely gone off red...

Whilst all info PMR and steroids state avoid alcohol, I am no lush but do love ...

JAC1947

•2 years ago

18 Replies

Insomnia- solutions?

Many of you will know that I have been battling insomnia for quite a while. I went to a sleep clinic in August and discovered I also had sleep apnoea. I have...

Many of you will know that I have been battling insomnia for quite a while. I w...

suzy1959

•2 years ago

60 Replies

Possible flare

Hi all, I reduced my steroids from 9mg to 8mg on 4th Feb. The last three days I have suffered from head pain which does not improve with paracetamol. I have...

Hi all, I reduced my steroids from 9mg to 8mg on 4th Feb. The last three days ...

Lynlea

•2 years ago

9 Replies

Eye op and upping pred

Hi all, I've been on 1mg for 2 weeks and my shoulder pains have been getting steadily worse ( for the second time). I also had a bit of a cold, shivery etc, so...

Hi all, I've been on 1mg for 2 weeks and my shoulder pains have been getting ste...

Blossom20

•2 years ago

4 Replies

fluid build up

morning everyone ,just wondering if anyone else finds they have fluid build up in their feet ,ankles and legs after sitting for a while. I first noticed this...

morning everyone ,just wondering if anyone else finds they have fluid build up i...

Shaza123

•2 years ago

19 Replies

Jaw pain could this be GCA

I'll try to keep this as short as possible. I had PMR for about 3 years and it finally went into remission. I was unable to stop steroids completely due to...

I'll try to keep this as short as possible. I had PMR for about 3 years and it f...

Amkoffee

•2 years ago

10 Replies

What is the ideal Pred dosage?

Is one supposed to take enough to completely eliminate pain and stiffness or is it OK to settle on a dose that is lower so that pain and stiffness are just a...

Is one supposed to take enough to completely eliminate pain and stiffness or is ...

christi48

•2 years ago

19 Replies

Sleep Supplement

I have recently been taking a supplement which claims to help sleep which contains something called Ashwagandha. It certainly has helped me but now I’ve read...

I have recently been taking a supplement which claims to help sleep which contai...

Bayleaf1

•2 years ago

34 Replies

Weak, lead like legs, balance off

Well I just came from rheumy appt, Im down to 17 1/2 mgs from 40 like over 2 mos ago, was having sleep issues, and weird light headedness, etc, after coming...

Well I just came from rheumy appt, Im down to 17 1/2 mgs from 40 like over 2 mos...

arvine

•2 years ago

17 Replies

Reducing Prednisone!

Hi, Although I have been using Prednisone for over three years now I can’t say if gained any wisdom I can give you other than try hard to reduce the dosage...

Hi, Although I have been using Prednisone for over three years now I can’t say ...

GucciPaddy

•2 years ago

6 Replies

Upping my steroid dose? Can I do more harm than good?

Hi, I’ve got myself into a real mess with my PMR and I’m unsure how to move forwards. Basically I under dosed myself with Prednisolone over Christmas 2022 by...

Hi, I’ve got myself into a real mess with my PMR and I’m unsure how to move forw...

Tiggy70

•2 years ago

57 Replies

thank you

just to thank this group for the unending support it gives us sufferers. It is so much appreciated. 💝💝💐💐

just to thank this group for the unending support it gives us sufferers. It is s...

Fiddlemum

•2 years ago

18 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for February 2023

Day 1 of Pred

Prednisolone experience

Reducing Pred after increase for suspect GCA.....communication problems.

Percussive massage gun

Traveling and PMR

Sorry Tapering question 🫣

Calcium and Vitamin D

Relief of Myofascial pain at last.

Side Effects of Corticosteroids

Abbreviations

Actemra IV?

Energy and motivation hasn't really returned after Pred

PMR without steroids?

Purpose of taking prednisone at 2 am

Norovirus and AA.

Is this Pred withdrawal

synacthen test result

Supplement for hair loss

A glass of wine??

Insomnia- solutions?

Possible flare

Eye op and upping pred

fluid build up

Jaw pain could this be GCA

What is the ideal Pred dosage?

Sleep Supplement

Weak, lead like legs, balance off

Reducing Prednisone!

Upping my steroid dose? Can I do more harm than good?

thank you

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